iACT--an interactive mHealth monitoring system to enhance psychotherapy for adolescents with sickle cell disease

Abstract

Sickle cell disease (SCD) is the most common inherited disease, and SCD symptoms impact functioning and well-being. For example, adolescents with SCD have a higher tendency of psychological problems than the general population. Acceptance and Commitment Therapy (ACT), a cognitive-behavioral therapy, is an effective intervention to promote quality of life and functioning in adolescents with chronic illness. However, traditional visit-based therapy sessions are restrained by challenges, such as limited follow-up, insufficient data collection, low treatment adherence, and delayed intervention. In this paper, we present Instant Acceptance and Commitment Therapy (iACT), a system designed to enhance the quality of pediatric ACT. iACT utilizes text messaging technology, which is the most popular cell phone activity among adolescents, to conduct real-time psychotherapy interventions. The system is built on cloud computing technologies, which provides a convenient and cost-effective monitoring environment. To evaluate iACT, a trial with 60 adolescents with SCD is being conducted in conjunction with the Georgia Institute of Technology, Children's Healthcare of Atlanta, and Georgia State University.

Figures

Fig. 1

iACT measurements

Fig. 2

Use cases, the responsible cloud services, and the corresponding data storage units.

Fig. 3

iACT conservation between the system (iACT) and an adolescent (Me) who has two daily living consistency goals (i.e., Friendship and Transition/Independence). This conversation also includes the weekly 8-question PROMIS and AFQ-Y8 questionnaires in the end.