Patients' Lived Experience in a Multicomponent Intervention for Fibromyalgia Syndrome in Primary Care: A Qualitative Interview Study

Victoria Mailen Arfuch, Rosa Caballol Angelats, Carina Aguilar Martín, Alessandra Queiroga Gonçalves, Noèlia Carrasco-Querol, Gemma González Serra, Maria Cinta Sancho Sol, Immaculada Fusté Anguera, Emilie Friberg, Anna Berenguera, Victoria Mailen Arfuch, Rosa Caballol Angelats, Carina Aguilar Martín, Alessandra Queiroga Gonçalves, Noèlia Carrasco-Querol, Gemma González Serra, Maria Cinta Sancho Sol, Immaculada Fusté Anguera, Emilie Friberg, Anna Berenguera

Abstract

Fibromyalgia syndrome (FMS) disrupts patients' biopsychosocial spheres. A multicomponent intervention (MCI) program, which combined health education, cognitive behavioral therapy, and physical activity, was conducted in South Catalonia's primary care centers with the aim of improving symptom self-management and quality of life. A qualitative interview study was carried out to understand patients' lived experiences during the intervention program. Sampled purposively, 10 patients were interviewed via phone calls and face-to-face. The encounters were audio-recorded, verbatim transcribed, and analyzed through thematic analysis. As a result, four themes emerged: legitimizing fibromyalgia through the MCI, the MCI as a socializing experience, learning how to live with FMS through the MCI, and room for improving the MCI. Participants agreed on the program being an insightful experience that promoted illness knowledge and acceptance and that improved their coping skills and symptom self-management. The inclusion of additional psychological guidance, expressive psychological group therapy, and providing relatives with information were proposed for enhancing the program. Our findings have contributed to gaining insight into the subjective impact of the MCI and identifying new therapeutic targets to tailor the program to patients' needs, which will hopefully increase its effectiveness and improve their quality of life.

Keywords: fibromyalgia syndrome; interview study; multicomponent intervention; primary care; qualitative research; thematic analysis.

Conflict of interest statement

The authors declare no conflict of interest. The funders had no role in the design of the study; in the collection, analyses, or interpretation of data; in the writing of the manuscript; or in the decision to publish the results.

Figures

Figure 1
Figure 1
Study sample flow chart.
Figure 2
Figure 2
Themes and categories figure.

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