Direction to an Internet Support Group Compared With Online Expressive Writing for People With Depression And Anxiety: A Randomized Trial

Jeremy Dean, Henry Ww Potts, Chris Barker, Jeremy Dean, Henry Ww Potts, Chris Barker

Abstract

Background: Depression and anxiety are common, often comorbid, conditions, and Internet support groups for them are well used. However, little rigorous research has been conducted on the outcome of these groups.

Objective: This study aimed to evaluate the efficacy of an Internet support group in reducing depression and anxiety, and increasing social support and life satisfaction.

Methods: A randomized trial compared direction to an existing Internet support group for depression and anxiety with an online expressive writing condition. A total of 863 (628 female) United Kingdom, United States, and Canadian volunteers were recruited via the Internet. Online, self-report measures of depression, anxiety, social support, and satisfaction with life were administered at baseline, 3, and 6 months.

Results: All four outcomes - depression, anxiety, social support, and satisfaction with life - improved over the 6 months of the study (all P <.001). There was no difference in outcome between the two conditions: participants responded similarly to the expressive writing and the Internet support group. Engagement with the Internet support group was low, it had high 6-month attrition (692/795, 87%) and low adherence, and it received mixed and often negative feedback. The main problems reported were a lack of comfort and connection with others, negative social comparisons, and the potential for receiving bad advice. Expressive writing had lower attrition (194/295, 65%) and participants reported that it was more acceptable.

Conclusions: Until further evidence accumulates, directing people with depression and anxiety to Internet support groups cannot be recommended. On the other hand, online expressive writing seems to have potential, and its use for people with depression and anxiety warrants further investigation.

Trial registration: Clinicaltrials.gov NCT01149265; https://ichgcp.net/clinical-trials-registry/NCT01149265 (Archived by WebCite at http://www.webcitation.org/6hYISlNFT).

Keywords: Internet support; anxiety; depression; expressive writing; online support.

Conflict of interest statement

Conflicts of Interest: None declared.

Figures

Figure 1
Figure 1
CONSORT-R participant flow chart.
Figure 2
Figure 2
Mean CES-D scores at baseline, 3, and 6 months for all participants.
Figure 3
Figure 3
Mean depression scores on the CES-D at baseline, three, and six months excluding those who did not engage with the ISG.
Figure 4
Figure 4
Expectation of the intervention's utility at baseline, three and six months for all participants eligible for analysis.

References

    1. Horrigan, J.B. . Washington, DC: Pew Internet & American Life Project; 2001. Online Communities: Networks That Nurture Long-Distance Relationships and Local Ties; pp. 1–28.
    1. Potts Henry W W Is e-health progressing faster than e-health researchers? J Med Internet Res. 2006;8:e24. doi: 10.2196/jmir.8.3.e24.
    1. Barak A, Boniel-Nissim M, Suler J. Fostering empowerment in online support groups. Computers in Human Behavior. 2008;24:1867–1883. doi: 10.1016/j.chb.2008.02.004.
    1. Wittchen HU, Jacobi F, Rehm J, Gustavsson A, Svensson M, Jönsson B, Olesen J, Allgulander C, Alonso J, Faravelli C, Fratiglioni L, Jennum P, Lieb R, Maercker A, van OJ, Preisig M, Salvador-Carulla L, Simon R, Steinhausen H. The size and burden of mental disorders and other disorders of the brain in Europe 2010. Eur Neuropsychopharmacol. 2011;21:655–679. doi: 10.1016/j.euroneuro.2011.07.018.
    1. Kessler RC, Chiu WT, Demler O, Merikangas KR, Walters EE. Prevalence, severity, and comorbidity of 12-month DSM-IV disorders in the National Comorbidity Survey Replication. Arch Gen Psychiatry. 2005;62:617–627. doi: 10.1001/archpsyc.62.6.617.
    1. Meltzer H, Bebbington P, Brugha T, Farrell M, Jenkins R, Lewis G. The reluctance to seek treatment for neurotic disorders. Int Rev Psychiatry. 2003;15:123–128. doi: 10.1080/0954026021000046038.
    1. Griffiths KM, Calear AL, Banfield M. Systematic review on Internet Support Groups (ISGs) and depression (1): Do ISGs reduce depressive symptoms? J Med Internet Res. 2009;11:e40. doi: 10.2196/jmir.1270.
    1. Andersson G, Bergström J, Holländare F, Carlbring P, Kaldo V, Ekselius L. Internet-based self-help for depression: randomised controlled trial. Br J Psychiatry. 2005;187:456–461. doi: 10.1192/bjp.187.5.456.
    1. Houston TK, Cooper LA, Ford DE. Internet support groups for depression: a 1-year prospective cohort study. Am J Psychiatry. 2002;159:2062–2068.
    1. Griffiths KM, Mackinnon AJ, Crisp DA, Christensen H, Bennett K, Farrer L. The effectiveness of an online support group for members of the community with depression: a randomised controlled trial. PLoS One. 2012;7:e53244. doi: 10.1371/journal.pone.0053244.
    1. National Institute for Clinical Excellence (NICE) National Institute for Clinical Excellence (NICE) Manchester, UK: National Institute for Clinical Excellence (NICE); 2009. Oct 28, [2016-03-09]. Depression in adults: recognition and management .
    1. Freeman E, Barker C, Pistrang N. Outcome of an online mutual support group for college students with psychological problems. Cyberpsychol Behav. 2008;11:591–593. doi: 10.1089/cpb.2007.0133.
    1. Baikie KA, Geerligs L, Wilhelm K. Expressive writing and positive writing for participants with mood disorders: an online randomized controlled trial. J Affect Disord. 2012;136:310–319. doi: 10.1016/j.jad.2011.11.032.
    1. Pennebaker JW, Beall SK. Confronting a traumatic event: toward an understanding of inhibition and disease. J Abnorm Psychol. 1986;95:274–281.
    1. Frattaroli J. Experimental disclosure and its moderators: a meta-analysis. Psychol Bull. 2006;132:823–865. doi: 10.1037/0033-2909.132.6.823.
    1. Yalom ID, Leszcz M. The theory and practice of group psychotherapy (5th ed.) New York: Basic Books; 2005.
    1. Oh HJ, Ozkaya E, LaRose R. How does online social networking enhance life satisfaction? The relationships among online supportive interaction, affect, perceived social support, sense of community, and life satisfaction. Computers in Human Behavior. 2014;30:69–78. doi: 10.1016/j.chb.2013.07.053.
    1. Pennebaker JW, Francis ME. Cognitive, Emotional, and Language Processes in Disclosure. Cognition and Emotion. 2010;10:601–626. doi: 10.1080/026999396380079.
    1. Riessman F. The 'helper' therapy principle. Social Work. 1965;10:27–32.
    1. Moher D, Schulz KF, Altman DG, CONSORT The CONSORT statement: revised recommendations for improving the quality of reports of parallel group randomized trials. BMC Med Res Methodol. 2001:2.
    1. PsyBlog. [2015-09-14]. .
    1. Psych Central Forum. [2015-09-14]. .
    1. Faul F, Erdfelder E, Lang A, Buchner A. G*Power 3: a flexible statistical power analysis program for the social, behavioral, and biomedical sciences. Behav Res Methods. 2007;39:175–191.
    1. Opinion Online Survey Software. [2015-09-14]. .
    1. Radloff LS. The CES-D Scale: A self-report depression scale for research in the general population. Applied Psychological Measurement. 1977;1:385–401. doi: 10.1177/014662167700100306.
    1. Ogles BM, France CR, Lunnen KM, Bell MT, Goldfarb M. Computerized depression screening and awareness. Community Ment Health J. 1998;34:27–38.
    1. Beekman AT, Deeg DJ, Van LJ, Braam AW, De Vries M Z. Van TW. Criterion validity of the Center for Epidemiologic Studies Depression scale (CES-D): results from a community-based sample of older subjects in the Netherlands. Psychol Med. 1997;27:231–235.
    1. Parikh RM, Eden DT, Price TR, Robinson RG. The sensitivity and specificity of the Center for Epidemiologic Studies Depression Scale in screening for post-stroke depression. Int J Psychiatry Med. 1988;18:169–181.
    1. Spitzer RL, Kroenke K, Williams Janet B W. Löwe B. A brief measure for assessing generalized anxiety disorder: the GAD-7. Arch Intern Med. 2006;166:1092–1097. doi: 10.1001/archinte.166.10.1092.
    1. Kroenke K, Spitzer RL, Williams Janet B W. Monahan PO, Löwe B. Anxiety disorders in primary care: prevalence, impairment, comorbidity, and detection. Ann Intern Med. 2007;146:317–325.
    1. Sherbourne CD, Stewart AL. The MOS social support survey. Soc Sci Med. 1991;32:705–714.
    1. Diener E, Emmons RA, Larsen RJ, Griffin S. The Satisfaction With Life Scale. J Pers Assess. 1985;49:71–75. doi: 10.1207/s15327752jpa4901_13.
    1. Pavot W, Diener E. Review of the Satisfaction With Life Scale. Psychological Assessment. 1993;5:164–172. doi: 10.1037/1040-3590.5.2.164.
    1. Weinman J, Wright S, Johnston M. Measures in health psychology: A user's portfolio. Windsor, UK: NFER-Nelson; 1995.
    1. Weinman J, Petrie KJ, Moss-morris R, Horne R. The illness perception questionnaire: A new method for assessing the cognitive representation of illness. Psychology & Health. 1996;11:431–445. doi: 10.1080/08870449608400270.
    1. Broadbent E, Petrie KJ, Main J, Weinman J. The brief illness perception questionnaire. J Psychosom Res. 2006;60:631–637. doi: 10.1016/j.jpsychores.2005.10.020.
    1. Chang T, Yeh CJ, Krumboltz JD. Process and outcome evaluation of an on-line support group for Asian American male college students. Journal of Counseling Psychology. 2001;48:319–329. doi: 10.1037/0022-0167.48.3.319.
    1. Pennebaker J, Chung C, Ireland M, Gonzales A, Booth R. The developmentpsychometric properties of LIWC2007. 2007. [2015-09-14]. .
    1. Braun V, Clarke V. Using thematic analysis in psychology. Qualitative Research in Psychology. 2006;3:77–101. doi: 10.1191/1478088706qp063oa.
    1. Dedoose Online Qualitative Analysis Program. [2015-09-14]. .
    1. Eysenbach G. The law of attrition. J Med Internet Res. 2005;7:e11. doi: 10.2196/jmir.7.1.e11.
    1. Richards D, Richardson T. Computer-based psychological treatments for depression: a systematic review and meta-analysis. Clin Psychol Rev. 2012;32:329–342. doi: 10.1016/j.cpr.2012.02.004.
    1. Christensen H, Griffiths KM, Jorm AF. Delivering interventions for depression by using the internet: randomised controlled trial. BMJ. 2004;328:265. doi: 10.1136/.
    1. Clarke G, Reid E, Eubanks D, O'Connor E, DeBar LL, Kelleher C, Lynch F, Nunley S. Overcoming depression on the Internet (ODIN): a randomized controlled trial of an Internet depression skills intervention program. J Med Internet Res. 2002;4:e14. doi: 10.2196/jmir.4.3.e14.
    1. Clarke G, Eubanks D, Reid E, Kelleher C, O'Connor E, DeBar LL, Lynch F, Nunley S, Gullion C. Overcoming Depression on the Internet (ODIN) (2): a randomized trial of a self-help depression skills program with reminders. J Med Internet Res. 2005;7:e16. doi: 10.2196/jmir.7.2.e16.
    1. van SA, Cuijpers P, Smits N. Effectiveness of a web-based self-help intervention for symptoms of depression, anxiety, and stress: randomized controlled trial. J Med Internet Res. 2008;10:e7. doi: 10.2196/jmir.954.
    1. Warmerdam L, van SA, Twisk J, Riper H, Cuijpers P. Internet-based treatment for adults with depressive symptoms: randomized controlled trial. J Med Internet Res. 2008;10:e44. doi: 10.2196/jmir.1094.
    1. Breuer L, Barker C. Online support groups for depression: benefits and barriers. SAGE Open. 2015;5:1–8. doi: 10.1177/2158244015574936.
    1. Eysenbach G, Powell J, Englesakis M, Rizo C, Stern A. Health related virtual communities and electronic support groups: systematic review of the effects of online peer to peer interactions. BMJ. 2004;328:1166. doi: 10.1136/bmj.328.7449.1166.
    1. Pennebaker JW, Mayne TJ, Francis ME. Linguistic predictors of adaptive bereavement. J Pers Soc Psychol. 1997;72:863–871.
    1. Shaw BR, Jeong YH, Hawkins RP, McTavish FM, Gustafson DH. Communicating about self and others within an online support group for women with breast cancer and subsequent outcomes. J Health Psychol. 2008;13:930–939. doi: 10.1177/1359105308095067.
    1. Barker C, Pistrang N, Elliott R. Research Methods in Clinical Psychology: An Introduction for Students and P. Chichester, UK: John Wiley & Sons; 2016.
    1. Greenhalgh T, Potts Henry W W. Wong G, Bark P, Swinglehurst D. Tensions and paradoxes in electronic patient record research: a systematic literature review using the meta-narrative method. Milbank Q. 2009;87:729–788. doi: 10.1111/j.1468-0009.2009.00578.x.
    1. Preece J. Online Communities: Designing Usability, Supporting Sociability. Chichester, UK: John Wiley; 2000.

Source: PubMed

3
Se inscrever