Patient reported outcomes for preschool children with recurrent wheeze

Makrinioti Heidi, Keating Emily, Holden Benjamin, Coren Michael, Klaber Robert, Blair Mitch, Griffiths Chris, Watson Mando, Bush Andrew, Makrinioti Heidi, Keating Emily, Holden Benjamin, Coren Michael, Klaber Robert, Blair Mitch, Griffiths Chris, Watson Mando, Bush Andrew

Abstract

Children with preschool wheeze regularly attend UK emergency departments. There is no international consensus on any specific personalised management approach. This paper describes the first attempt to co-design patient-centred outcomes with families. Preschool wheezers' parents participated in semi-structured interviews and focus-group discussions to air their concerns and identify potential additional support. Fifty-seven families participated in these interviews. From these, themes were defined through qualitative content analysis. Parental experience was mapped to the patient pathway and seven important personalised outcomes were described. These can be used to inform a tool which following further validation could potentially support management of children with preschool wheeze and provide an additional patient focused clinical outcome measure in audit and research.

Conflict of interest statement

The authors declare no competing interests.

Figures

Fig. 1
Fig. 1
Process map describing patients’ journey during the first episode of wheeze they recall needing to seek for medical support—the red colour indicates admission with acute wheeze and the green colour indicates discharge—the number of parents who have described each journey are added next to each arrow
Fig. 2
Fig. 2
Emotional map describing parental feelings about healthcare services at each point of the journey of their child’s first episode of wheeze—number indicates frequency of parents expressing positive or negative emotions in each setting

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Source: PubMed

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