Technical report: Ethical and policy issues in genetic testing and screening of children
Lainie Friedman Ross, Howard M Saal, Karen L David, Rebecca R Anderson, American Academy of Pediatrics, American College of Medical Genetics and Genomics, Mary E Fallat, Aviva L Katz, Mark R Mercurio, Margaret R Moon, Alexander L Okun, Sally A Webb, Kathryn L Weise, Armand H Matheny Antommaria, Ian R Holzman, Lainie F Ross, Douglas S Diekema, Kevin W Coughlin, Steven J Ralston, Jessica W Berg, Alison Baker, Robert A Saul, Stephen R Braddock, Emily Chen, Debra L Freedenberg, Marilyn C Jones, James M Perrin, Beth Anne Tarini, Howard M Saal, Gregory M Enns, Jeffrey R Gruen, Katrina M Dipple, Stuart K Shapira, Sara M Copeland, Melissa A Parisi, W Allen Hogge, Paul Spire, Karen L David, Louis E Bartoshesky, Rebecca R Anderson, Robert G Best, Jodi D Hoffman, Masamichi Ito, Amy A Lemke, Mitzi L Murray, Richard R Sharp, Vikas Bhambhani, Lynn D Fleisher, Alexander Asamoah, Gary S Gottesman, Lainie F Ross, Lainie Friedman Ross, Howard M Saal, Karen L David, Rebecca R Anderson, American Academy of Pediatrics, American College of Medical Genetics and Genomics, Mary E Fallat, Aviva L Katz, Mark R Mercurio, Margaret R Moon, Alexander L Okun, Sally A Webb, Kathryn L Weise, Armand H Matheny Antommaria, Ian R Holzman, Lainie F Ross, Douglas S Diekema, Kevin W Coughlin, Steven J Ralston, Jessica W Berg, Alison Baker, Robert A Saul, Stephen R Braddock, Emily Chen, Debra L Freedenberg, Marilyn C Jones, James M Perrin, Beth Anne Tarini, Howard M Saal, Gregory M Enns, Jeffrey R Gruen, Katrina M Dipple, Stuart K Shapira, Sara M Copeland, Melissa A Parisi, W Allen Hogge, Paul Spire, Karen L David, Louis E Bartoshesky, Rebecca R Anderson, Robert G Best, Jodi D Hoffman, Masamichi Ito, Amy A Lemke, Mitzi L Murray, Richard R Sharp, Vikas Bhambhani, Lynn D Fleisher, Alexander Asamoah, Gary S Gottesman, Lainie F Ross
Abstract
The genetic testing and genetic screening of children are commonplace. Decisions about whether to offer genetic testing and screening should be driven by the best interest of the child. The growing literature on the psychosocial and clinical effects of such testing and screening can help inform best practices. This technical report provides ethical justification and empirical data in support of the proposed policy recommendations regarding such practices in a myriad of settings.
Source: PubMed