Acceptability of a family-centered newborn care model among providers and receivers of care in a Public Health Setting: a qualitative study from India

Enisha Sarin, Arti Maria, Enisha Sarin, Arti Maria

Abstract

Background: Family-centered care (FCC), based on collaborative participation of the family along with a team of health care providers, is found to increase the well-being of sick infants in neonatal critical care units. Over the last 4 years, the neonatal unit of Dr. Ram Manohar Lohia Hospital in Delhi has innovated and developed an implementation framework for FCC. This qualitative study assessed the acceptability of family-centered care among providers and family members of neonates to identify gaps and challenges in implementation.

Methods: In-depth interviews were conducted among a purposive sample of twelve family members of admitted neonates and six providers to examine their perceptions and experiences regarding FCC.

Results: Family members and providers expressed a positive perception and acceptance of FCC based on the competencies and knowledge acquired by parents and other caregivers of essential newborn care. Family members reported being satisfied with the overall health care experience due to the transparency of care and allowing them to be by their baby's bedside. Limitations in the infrastructure or lack of facilities at the public hospital did not seem to dilute these positive perceptions. Providers also perceived FCC as a good practice to be continued in spite of concerns around sharing of nursery space with parents, the need for constant vigilance of parents' practices in handling of their newborns, and the need for separate, designated nursing staff for FCC.

Conclusion: Both providers and receivers of neonatal care found FCC to be an acceptable form of care. Providers identified challenges and suggested possible solutions, such as need of periodic provider sensitization on FCC, improved staff organization, and provision of mother-friendly facilities to enable her to provide around-the-clock care by her baby's bedside. Overcoming these challenges would allow for better integration of FCC within general clinical care in neonatal care units.

Keywords: Family-centered care; India; Neonatal health; Neonatal intensive care unit.

Conflict of interest statement

Ethics approval and consent to participate

The study was reviewed and approved by the Dr. Ram Manohar Lohiya Hospital Institutional Review Board. Consent forms were read out to participants and required their signature. Names of participants were not requested, instead a unique identification number was assigned to each of them. Participants were ensured complete confidentiality, and were given the choice of voluntarily withdrawing from the study.

Consent for publication

We did not require consent for publication as we did not use individual data in the form of images, videos or voice recordings. Voice recordings were transcribed immediately and the recordings destroyed after 1 year of the study so that no identifying information can remain in the raw data.

Competing interests

The authors declare that they have no competing interests.

Publisher’s Note

Springer Nature remains neutral with regard to jurisdictional claims in published maps and institutional affiliations.

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