Supporting Goal-Oriented Primary Health Care for Seniors with Complex Care Needs Using Mobile Technology: Evaluation and Implementation of the Health System Performance Research Network, Bridgepoint Electronic Patient Reported Outcome Tool

Carolyn Steele Gray, Walter P Wodchis, Ross Upshur, Cheryl Cott, Brian McKinstry, Stewart Mercer, Ted E Palen, Tim Ramsay, Kednapa Thavorn, Project Collaborators And Technology Partner, QoC Health Inc, Carolyn Steele Gray, Walter P Wodchis, Ross Upshur, Cheryl Cott, Brian McKinstry, Stewart Mercer, Ted E Palen, Tim Ramsay, Kednapa Thavorn, Project Collaborators And Technology Partner, QoC Health Inc

Abstract

Background: Older adults experiencing multiple chronic illnesses are at high risk of hospitalization and health decline if they are unable to manage the significant challenges posed by their health conditions. Goal-oriented care approaches can provide better care for these complex patients, but clinicians find the process of ascertaining goals "too complex and too-time consuming," and goals are often not agreed upon between complex patients and their providers. The electronic patient reported outcomes (ePRO) mobile app and portal offers an innovative approach to creating and monitoring goal-oriented patient-care plans to improve patient self-management and shared decision-making between patients and health care providers. The ePRO tool also supports proactive patient monitoring by the patient, caregiver(s), and health care provider. It was developed with and for older adults with complex care needs as a means to improve their quality of life.

Objective: Our proposed project will evaluate the use, effectiveness, and value for money of the ePRO tool in a 12-month multicenter, randomized controlled trial in Ontario; targeting individuals 65 or over with two or more chronic conditions that require frequent health care visits to manage their health conditions.

Methods: Intervention groups using the ePRO tool will be compared with control groups on measures of quality of life, patient experience, and cost-effectiveness. We will also evaluate the implementation of the tool.

Results: The proposed project presented in this paper will be funded through the Canadian Institute for Health Research (CIHR) eHealth Innovation Partnerships Program (eHIPP) program (CIHR-348362). The expected completion date of the study is November, 2019.

Conclusions: We anticipate our program of work will support improved quality of life and patient self-management, improved patient-centered primary care delivery, and will encourage the adoption of goal-oriented care approaches across primary health care systems. We have partnered with family health teams and quality improvement organizations in Ontario to ensure that our research is practical and that findings are shared widely. We will work with our established international network to develop an implementation framework to support continued adaptation and adoption across Canada and internationally.

Keywords: complex care needs; cost-effectiveness analysis; eHealth/mHealth solutions; goal-oriented care; health outcomes; implementation; patient-centered care; pragmatic trial; primary health care; seniors.

Conflict of interest statement

Conflicts of Interest: None declared.

Figures

Figure 1
Figure 1
Development approach.
Figure 2
Figure 2
ePRO evaluation data capture diagram.

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