Peer mentoring for individuals with an eating disorder: a qualitative evaluation of a pilot program

Freya Hanly, Benjamin Torrens-Witherow, Narelle Warren, David Castle, Andrea Phillipou, Jennifer Beveridge, Zoe Jenkins, Richard Newton, Leah Brennan, Freya Hanly, Benjamin Torrens-Witherow, Narelle Warren, David Castle, Andrea Phillipou, Jennifer Beveridge, Zoe Jenkins, Richard Newton, Leah Brennan

Abstract

Background: After receiving intensive medical treatment; individuals with eating disorders often require ongoing care to maintain their recovery, build social networks, and reduce risk of relapse.

Methods: To address this important transition period, a six-month peer mentoring program was developed and piloted in Melbourne, Australia. Twelve adults with a past history of an eating disorder (mentors) were paired with 14 individuals with a current eating disorder (mentees). Pairs met for thirteen mentoring sessions in community settings. Throughout the program mentees and mentors completed reflective questions online. Upon completion of the program, qualitative interviews were conducted. Both online reflections and interviews explored themes relating to perceived benefits and challenges of participation in the peer mentoring program, and the differences between mentoring and traditional treatment.

Results: Thematic analysis identified several benefits for mentees; including hope, reconnection with others, and re-engaging with the world. The majority of mentees described their mentor as uniquely supportive due to their past experience of an eating disorder. Mentors reported experiencing benefits such as increased connection with self and others, and indicated that the experience helped them positively reframe their past experience of an eating disorder. Ending the relationship at the completion of the program was a significant challenge for both groups, and managing boundaries was deemed a main challenge by mentors.

Conclusions: Overall, results indicated that this mode of informal support may be worthy of further investigation as an adjunct to clinical treatment programs for this population.

Trial registration: Australian and New Zealand Clinical Trials registration number - ACTRN12617001412325 - Date of registration - 05/10/2017 (Retrospectively registered).

Keywords: Anorexia nervosa; Eating disorder; Peer mentoring; Peer work; Treatment.

Conflict of interest statement

Competing interestsProf Castle reports grants and/or personal fees from Eli Lilly, Janssen-Cilag, Roche, Allergen, Bristol-Myer Squibb, Pfizer, Lundbeck, AstraZeneca, Hospira, Organon, Sanofi-Aventis, Wyeth and Servier, during the conduct of the study and outside the submitted work. All other authors report no competing interests.

© The Author(s) 2020.

Figures

Fig. 1
Fig. 1
Themes and subthemes of mentee experiences
Fig. 2
Fig. 2
Themes and subthemes of mentor experiences

References

    1. Treasure J, Cardi V, Leppanen J, Turton R. New treatment approaches for severe and enduring eating disorders. Physiol Behav [internet]. 2015;152:456–465. Available from: 10.1016/j.physbeh.2015.06.007.
    1. Abbate-Daga G, Amianto F, Delsedime N, De-Bacco C, Fassino S. Resistance to treatment and change in anorexia nervosa: a clinical overview. BMC Psychiatry [internet]. 2013;13:294. Available from: 10.1186/1471-244X-13-294.
    1. Keel PK, Brown TA. Update on course and outcome in eating disorders. Int J Eat Disord [internet]. 2010;43:195–204. Available from: 10.1002/eat.20810.
    1. Arkell J, Robinson P. A pilot case series using qualitative and quantitative methods: biological, psychological and social outcome in severe and enduring eating disorder (anorexia nervosa). Int J Eat Disord [internet]. 2008;41:650–656. Available from: 10.1002/eat.20546.
    1. Samnaliev M, Noh HL, Sonneville KR, Austin SB. The economic burden of eating disorders and related mental health comorbidities: an exploratory analysis using the U.S. medical expenditures panel survey. Prev Med Rep [internet]. 2015;2:32–34. Available from: 10.1016/j.pmedr.2014.12.002.
    1. Levine MP. Loneliness and eating disorders. J Psychol [internet]. 2012;146:243–257. Available from: 10.1080/00223980.2011.606435.
    1. Mehler PS, Brown C. Anorexia nervosa – medical complications. J Eat Disord [internet]. 2015;3:11. Available from: .
    1. Smink FRE, van Hoeken D, Hoek HW. Epidemiology, course, and outcome of eating disorders. Curr Opin Psychiatry [internet]. 2013;26:543–548. Available from: 10.1097/YCO.0b013e328365a24f.
    1. Berkman ND, Lohr KN, Bulik CM. Outcomes of eating disorders: a systematic review of the literature. Int J Eat Disord [internet]. 2007;40:293–309. Available from: .
    1. Troyer KC. A Review of Mindfulness Treatments for Eating Disorders: Implications for Relapse Prevention - Doctoral Research Paper [Doctoral Research Paper] La Mirada: Biola University; 2014.
    1. Fogarty S, Ramjan L, Hay P. A systematic review and meta-synthesis of the effects and experience of mentoring in eating disorders and disordered eating. Eat Behav [internet]. 2016;21:66–75. Available from: 10.1016/j.eatbeh.2015.12.004.
    1. Linville D, Brown T, Sturm K, McDougal T. Eating disorders and social support: perspectives of recovered individuals. Eat Disord [internet]. 2012;20:216–231. Available from: .
    1. Schmidt U, Wade TD, Treasure J. The Maudsley model of anorexia nervosa treatment for adults (MANTRA): development, key features, and preliminary evidence. J Cogn Psychother [internet]. 2014;28:48–71. Available from: 10.1891/0889-8391.28.1.48.
    1. Cockell SJ, Zaitsoff SL, Geller J. Maintaining change following eating disorder treatment. Prof Psychol Res Pract [internet]. 2004;35:527–534. Available from: .
    1. Federici A, Kaplan AS. The patient’s account of relapse and recovery in anorexia nervosa: a qualitative study. Eur Eat Disord Rev J Eat Disord Assoc [internet]. 2008;16:1–10. Available from: .
    1. Dawson L, Rhodes P, Touyz S. “Doing the impossible”: the process of recovery from chronic anorexia nervosa. Qual Health Res [internet]. 2014;24:494–505. Available from: 10.1177/1049732314524029.
    1. Gidugu V, Rogers ES, Harrington S, Maru M, Johnson G, Cohee J, et al. Individual peer support: a qualitative study of mechanisms of its effectiveness. Community Ment Health J [internet]. 2015;51:445–452. Available from: 10.1007/s10597-014-9801-0.
    1. Chinman M, George P, Dougherty RH, Daniels AS, Ghose SS, Swift A, et al. Peer support Services for Individuals with Serious Mental Illnesses: assessing the evidence. Psychiatr Serv [internet]. 2014;65:429–441. Available from: 10.1176/appi.ps.201300244.
    1. Repper J, Carter T. A review of the literature on peer support in mental health services. J Ment Health Abingdon Engl [internet]. 2011;20:392–411. Available from: 10.3109/09638237.2011.583947.
    1. Mead S, MacNeil C. Peer support: what makes it unique? Int J Psychosoc Rehabil [Internet] 2006;10:29–37.
    1. Fuhr DC, Salisbury TT, De Silva MJ, Atif N, van Ginneken N, Rahman A, et al. Effectiveness of peer-delivered interventions for severe mental illness and depression on clinical and psychosocial outcomes: a systematic review and meta-analysis. Soc Psychiatry Psychiatr Epidemiol [internet]. 2014;49:1691–1702. Available from: 10.1007/s00127-014-0857-5.
    1. Lawn DS, Smith A, Hunter K. Mental health peer support for hospital avoidance and early discharge: an Australian example of consumer driven and operated service. J Ment Health [internet]. 2008;17:498–508. Available from: 10.1080/09638230701530242.
    1. Sledge WH, Lawless M, Sells D, Wieland M, O’Connell MJ, Davidson L. Effectiveness of peer support in reducing readmissions of persons with multiple psychiatric hospitalizations. Psychiatr Serv Wash DC [internet]. 2011;62:541–544. Available from: 10.1176/ps.62.5.pss6205_0541.
    1. Craig T, Doherty I, Jamieson-Craig R, Boocock A, Attafua G. The consumer-employee as a member of a mental health assertive outreach team. I. Clinical and social outcomes. J Ment Health [internet]. 2004;13:59–69. Available from: 10.1080/09638230410001654567.
    1. Sells D, Davidson L, Jewell C, Falzer P, Rowe M. The treatment relationship in peer-based and regular case management for clients with severe mental illness. Psychiatr Serv Wash DC [internet]. 2006;57:1179–1184. Available from: .
    1. Cook JA, Copeland ME, Floyd CB, Jonikas JA, Hamilton MM, Razzano L, et al. A randomized controlled trial of effects of wellness recovery action planning on depression, anxiety, and recovery. Psychiatr Serv Wash DC [internet]. 2012;63:541–547. Available from: 10.1176/appi.ps.201100125.
    1. Greenfield TK, Stoneking BC, Humphreys K, Sundby E, Bond J. A randomized trial of a mental health consumer-managed alternative to civil commitment for acute psychiatric crisis. Am J Community Psychol [internet]. 2008;42:135–144. Available from: 10.1007/s10464-008-9180-1.
    1. Walker G, Bryant W. Peer support in adult mental health services: a metasynthesis of qualitative findings. Psychiatr Rehabil J [internet]. 2013;36:28–34. Available from: 10.1037/h0094744.
    1. MacLellan J, Surey J, Abubakar I, Stagg HR. Peer support Workers in Health: a qualitative Metasynthesis of their experiences. PLOS ONE [internet]. 2015;10:e0141122. Available from: 10.1371/journal.pone.0141122.
    1. Moran GS, Russinova Z, Gidugu V, Yim JY, Sprague C. Benefits and mechanisms of recovery among peer providers with psychiatric illnesses. Qual Health Res [internet]. 2012;22:304–319. Available from: 10.1177/1049732311420578.
    1. Johnston C, Smethurst N, Gowers S. Should people with a history of an eating disorder work as eating disorder therapists? Eur Eat Disord Rev [internet]. 2005;13:301–310. Available from: 10.1002/erv.659.
    1. Cabral L, Strother H, Muhr K, Sefton L, Savageau J. Clarifying the role of the mental health peer specialist in Massachusetts, USA: insights from peer specialists, supervisors and clients. Health Soc Care Community [internet]. 2014;22:104–112. Available from: 10.1111/hsc.12072.
    1. Hurley J, Cashin A, Mills J, Hutchinson M, Kozlowski D, Graham I. Qualitative study of peer workers within the ‘Partners in Recovery’ programme in regional Australia. Int J Ment Health Nurs [internet]. 2018;27:187–195. Available from: 10.1111/inm.12308.
    1. Silver J, Nemec PB. The role of the peer specialists: unanswered questions. Psychiatr Rehabil J [internet]. 2016;39:289–291. Available from: .
    1. Beveridge J, Phillipou A, Edwards K, Hobday A, Hilton K, Wyett C, et al. Peer mentoring for eating disorders: evaluation of a pilot program. Pilot Feasibility Stud [internet]. 2018;4:75. Available from: 10.1186/s40814-018-0268-6.
    1. Lippi DE. The impact of a mentoring relationship upon women in the process of recovering from eating disorders [Doctoral Dissertation] Philadelphia: Temple University; 2000.
    1. Perez M, Van Diest AK, Cutts S. Preliminary examination of a mentor-based program for eating disorders. J Eat Disord [internet]. 2014;2:24. Available from: 10.1186/s40337-014-0024-0.
    1. Ramjan LM, Hay P, Fogarty S. Benefits of a mentoring support program for individuals with an eating disorder: a proof of concept pilot program. BMC Res Notes [internet]. 2017;10:709. Available from: 10.1186/s13104-017-3026-6.
    1. Ramjan LM, Fogarty S, Nicholls D, Hay P. Instilling hope for a brighter future: a mixed-method mentoring support programme for individuals with and recovered from anorexia nervosa. J Clin Nurs [internet]. 2018;27:e845–e857. Available from: 10.1111/jocn.14200.
    1. Beveridge J, Phillipou A, Jenkins Z, Newton R, Brennan L, Hanly F, et al. Peer mentoring for eating disorders: results from the evaluation of a pilot program. J Eat Disord [internet]. 2019;7:13. Available from: 10.1186/s40337-019-0245-3.
    1. Fusch P, Ness L. Are we there yet? Data saturation in qualitative research. Qual Rep [Internet] 2015;20:1408–1416.
    1. Simpson A, Flood C, Rowe J, Quigley J, Henry S, Hall C, et al. Results of a pilot randomised controlled trial to measure the clinical and cost effectiveness of peer support in increasing hope and quality of life in mental health patients discharged from hospital in the UK. BMC Psychiatry [internet]. 2014;14:30. Available from: 10.1186/1471-244X-14-30.
    1. NVivo qualitative data analysis Software. Version 10. Doncaster: QSR International Pty Ltd.; 2014.
    1. Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol [Internet] 2006;3:77–101. Available from: .
    1. Snyder CR. Hope theory: rainbows in the mind. Psychol Inq [internet]. 2002;13:249–275. Available from: .
    1. Davidson L, Bellamy C, Guy K, Miller R. Peer support among persons with severe mental illnesses: a review of evidence and experience. World Psychiatry Off J World Psychiatr Assoc WPA [internet]. 2012;11:123–128. Available from: 10.1016/j.wpsyc.2012.05.009.
    1. Solomon P. Peer support/peer provided services underlying processes, benefits, and critical ingredients. Psychiatr Rehabil J [internet]. 2004;27:392–401. Available from: 10.2975/27.2004.392.401.
    1. Long S, Wallis D, Leung N, Meyer C. “All eyes are on you”: anorexia nervosa patient perspectives of in-patient mealtimes. J Health Psychol [internet]. 2012;17:419–428. Available from: 10.1177/1359105311419270.
    1. Greenwood N, Habibi R, Mackenzie A, Drennan V, Easton N. Peer support for Carers: a qualitative investigation of the experiences of Carers and peer volunteers. Am J Alzheimers Dis Dementias® [internet]. 2013;28:617–626. Available from: 10.1177/1533317513494449.
    1. Watson E. Round two in peer support – personal reflections. Thurstine B, editor. J Ment Health Train Educ Pract [internet]. 2013;8:159–162. Available from: 10.1108/JMHTEP-04-2013-0015.
    1. Mollica RF. Healing invisible wounds: paths to Hope and recovery in a violent world. 1. Nashville: Vanderbilt University Press; 2008.
    1. Bellamy C, Schmutte T, Davidson L. An update on the growing evidence base for peer support. Ment Health Soc Incl [internet]. 2017;21:161–167. Available from: 10.1108/MHSI-03-2017-0014.
    1. Daniels AS, Bergeson S, Fricks L, Ashenden P, Powell I. Pillars of peer support: advancing the role of peer support specialists in promoting recovery. Basset T, Ryan P, editors. J Ment Health Train Educ Pract [internet]. 2012;7:60–69. Available from: 10.1108/17556221211236457.
    1. Brennan MA, Emmerling ME, Whelton WJ. Emotion-focused group therapy: addressing self-criticism in the treatment of eating disorders. Couns Psychother Res [internet]. 2015;15:67–75. Available from: 10.1080/14733145.2014.914549.
    1. Mortell CM. An examination of the relationships among traditional femininity, assertiveness and disturbances in eating [Doctoral dissertation]. [University, MS. Oxford: University of Mississippi; 1996.
    1. van de Mortel T. Faking it: social desirability response bias in self-report research. Aust J Adv Nurs [Internet] 2008;25:40–48.
    1. Arnow KD, Feldman T, Fichtel E, Lin IH, Egan A, Lock J, Westerman M, Darcy AM. A qualitative analysis of male eating disorder symptoms. Eat Disord 2017;25:297–309.Available from: 10.1080/10640266.2017.1308729.
    1. Shaharabani Saidon H, Shafran N, Rafaeli E. Teach them how to say goodbye: the CMRA model for treatment endings. J Psychother Integr [internet]. 2018;28:385–400. Available from: 10.1037/int0000127.

Source: PubMed

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