Shared decision making: a model for clinical practice

Glyn Elwyn, Dominick Frosch, Richard Thomson, Natalie Joseph-Williams, Amy Lloyd, Paul Kinnersley, Emma Cording, Dave Tomson, Carole Dodd, Stephen Rollnick, Adrian Edwards, Michael Barry, Glyn Elwyn, Dominick Frosch, Richard Thomson, Natalie Joseph-Williams, Amy Lloyd, Paul Kinnersley, Emma Cording, Dave Tomson, Carole Dodd, Stephen Rollnick, Adrian Edwards, Michael Barry

Abstract

The principles of shared decision making are well documented but there is a lack of guidance about how to accomplish the approach in routine clinical practice. Our aim here is to translate existing conceptual descriptions into a three-step model that is practical, easy to remember, and can act as a guide to skill development. Achieving shared decision making depends on building a good relationship in the clinical encounter so that information is shared and patients are supported to deliberate and express their preferences and views during the decision making process. To accomplish these tasks, we propose a model of how to do shared decision making that is based on choice, option and decision talk. The model has three steps: a) introducing choice, b) describing options, often by integrating the use of patient decision support, and c) helping patients explore preferences and make decisions. This model rests on supporting a process of deliberation, and on understanding that decisions should be influenced by exploring and respecting "what matters most" to patients as individuals, and that this exploration in turn depends on them developing informed preferences.

Conflict of interest statement

Glyn Elwyn and Adrian Edwards have developed a range of decision support interventions for patients, including AmnioDex, Prosdex and Bresdex (hosted by NHS Direct in the UK). Michael Barry, Adrian Edwards, Glyn Elwyn, Richard Thomson, Natalie Joseph-Williams are members of the IPDAS collaboration. Glyn Elwyn is a director of Prepare to Share, a consultancy group for shared decision making. Michael Barry receives salary support as president of the Informed Med Decis Making Foundation, a not-for-profit (501 (c) 3) organization. (http://www.informedmedicaldecisions.org). The Foundation develops content for decision support programs. The Foundation has an arrangement with a for-profit company, Health Dialog, to co-produce these programs. The programs are used as part of the decision support and disease management services Health Dialog provides to consumers through health care organizations and employers.

Figures

Figure 1.
Figure 1.
A shared decision making model.

References

    1. O’Connor A, Wennberg JE, Legare F, Llewellyn-Thomas HA, Moulton BW, Sepucha KR, et al. Toward the “tipping point”: decision aids and informed patient choice. Health Aff. 2007;26(3):716–25. doi: 10.1377/hlthaff.26.3.716.
    1. Elwyn G, Coulter A, Laitner S, Walker E, Watson P, Thomson R. Implementing shared decision making in the NHS. BMJ. 2010;341:c5146. doi: 10.1136/bmj.c5146.
    1. Department of Health. Equity and excellence: liberating the NHS. London: 2010.
    1. Senate and House of Representatives. Patient Protection and Affordable Care Act. HR 3590. Washington: 2010.
    1. Makoul G, Clayman ML. An integrative model of shared decision making in medical encounters. Patient Educ Couns. 2006;60:301–12. doi: 10.1016/j.pec.2005.06.010.
    1. President’s Commission. President’s Commission for the Study of Ethical Problems in Medicine and Biomedical and Behavioral Research. Making Health Care Decisions. The Ethical and Legal Implications of Informed Consent in the Patient–Practitioner Relationship. Washington DC: 1982.
    1. Levenstein J. The patient-centred general practice consultation. S Afr Fam Pract. 1984;5:276–82.
    1. Barry MJ, Edgman-Levitan S. Shared decision making–pinnacle of patient-centered care. New Engl J Med. 2012;366(9):780–1. doi: 10.1056/NEJMp1109283.
    1. Emanuel EJ, Emanuel LL. Four models of the physician-patient relationship. JAMA. 1992;267:2221. doi: 10.1001/jama.1992.03480160079038.
    1. Charles C, Gafni A, Whelan T. Shared decision-making in the medical encounter: what does it mean? (Or it takes at least two to tango) Soc Sci Med. 1997;44:681–92. doi: 10.1016/S0277-9536(96)00221-3.
    1. Towle A, Godolphin W. Framework for teaching and learning informed shared decision making. BMJ. 1999;319:766–9. doi: 10.1136/bmj.319.7212.766.
    1. Elwyn G, Edwards AG, Kinnersley P, Grol R. Shared decision-making and the concept of equipoise: the competences of involving patients in healthcare choices. Br J Gen Pract. 2000;50(460):892–9.
    1. Ryan R, Deci E. Self-determination theory and the facilitation of intrinsic motivation, social development, and well-being. Am Psychol. 2000;55(1):68–78. doi: 10.1037/0003-066X.55.1.68.
    1. Entwistle VA, Carter SM, Cribb A, McCaffery K. Supporting patient autonomy: the importance of clinician-patient relationships. J Gen Intern Med. 2010;25(7):741–5. doi: 10.1007/s11606-010-1292-2.
    1. Mackenzie C. Relational autonomy, normative authority and perfectionism. J Soc Philos. 2008;39(4):512–33. doi: 10.1111/j.1467-9833.2008.00440.x.
    1. King J, Moulton B. Rethinking Informed Consent: The Case for Shared Medical Decision-Making. Am J Law Med. 2006;32(4):429–501.
    1. Wear S. Informed consent: Patient autonomy and clinician beneficence within health care. Washington DC: Georgetown Univ Pr; 1998.
    1. Zikmund-Fisher BJ, Couper MP, Singer E, Levin CA, Fowler FJ, Ziniel S, et al. The DECISIONS study: a nationwide survey of United States adults regarding 9 common medical decisions. Med Decis Making. 30(5 Suppl):20 S–34S.
    1. Coulter A. Do patients want a choice and does it work? BMJ. 2010;341:973–5. doi: 10.1136/bmj.c4989.
    1. Stewart M, Brown J, Weston W, McWinney I, McWilliam C, Freeman T. Patient Centred Medicine: Transforming the Clinical Method. Thousand Oaks, CA: Sage Publications; 1995.
    1. Epstein RM, Alper BS, Quill TE. Communicating Evidence for Participatory Decision Making. JAMA. 2004;291:2359–66. doi: 10.1001/jama.291.19.2359.
    1. Levinson W, Lesser CS, Epstein RM. Developing physician communication skills for patient-centered care. Health affairs (Project Hope) 2010;29(7):1310–8. doi: 10.1377/hlthaff.2009.0450.
    1. Braddock CH, Fihn SD, Levinson W, Jonsen AR, Pearlman RA. How doctors and patients discuss routine clinical decisions: informed decision making in the outpatient setting. J Gen Intern Med. 1997;12:339–45.
    1. Silverman J, Kurtz S, Draper J, Silverman J, Kurtz S, Draper J, et al. Skills for communicating with patients. Abingdon: Radcliffe Medical Press; 1998.
    1. Stacey D, Bennett C, Barry M, Col N, Eden K, Holmes-Rovner, M Llewellyn-Thomas, H Lyddiatt A, et al. Decision aids for people facing health treatment or screening decisions. Cochrane Database of Systematic Reviews. 2011;as well as(10):CD001431.
    1. Frosch D, Kaplan R. Shared decision making in clinical medicine: past research and future directions. Am J Prev Med. 1999;17:285–94. doi: 10.1016/S0749-3797(99)00097-5.
    1. Schneider CE, CE S. The practice of autonomy: patients, doctors, and medical decisions. New York: Oxford University Press; 1998.
    1. Gafni A, Charles C, Whelan T. The physician-patient encounter: the physician as a perfect agent for the patient versus the informed decision-making model. Soc Sci Med. 1998;47(3):347–54. doi: 10.1016/S0277-9536(98)00091-4.
    1. O’Connor A, Bennett C, Stacey D, Barry M, Col N, Eden K, et al. Decision aids for people facing health treatment or screening decisions. Cochrane Database of Systematic Reviews. 2009;Citation:(3):CD001431. doi: 10.1002/14651858.CD001431.
    1. Politi MC, Clark MA, Ombao H, Dizon D, Elwyn G. Communicating uncertainty can lead to less decision satisfaction: a necessary cost of involving patients in shared decision making? Health Expectations [Internet]. 2011 Mar [cited 2011 Oct 4];14(1):84–91. Available from: doi:10.1111/j.1369-7625.2010.00626.x
    1. Quill T, Cassel C. Nonabandonment: a central obligation for physicians. Ann Intern Med. 1995;122:368–74.
    1. Say R, Murtagh M, Thomson R. Patients’ preference for involvement in medical decision making: a narrative review. Patient Educ Counsel. 2006;60(2):102. doi: 10.1016/j.pec.2005.02.003.
    1. Epstein RM, Street RL. Shared mind: communication, decision making, and autonomy in serious illness. Annals of Family Medicine. 9(5):454–61.
    1. Walter FM, Emery JD, Rogers M, Britten N. Women’s views of optimal risk communication and decision making in general practice consultations about the menopause and hormone replacement therapy. Patient Educ Counsel. 2004;53(2):121–8. doi: 10.1016/j.pec.2003.11.001.
    1. Epstein RM, Peters E. Beyond information: exploring patients’ preferences. JAMA. 2009;302(2):195–7. doi: 10.1001/jama.2009.984.
    1. Rapley T. Distributed decision making: the anatomy of decisions-in-action. Sociol Health Illness. 2008;30(3):429–44. doi: 10.1111/j.1467-9566.2007.01064.x.
    1. Elwyn G, Miron-Shatz T. Deliberation before determination: the definition and evaluation of good decision making. Health Expectations. 2009;13:139–47. doi: 10.1111/j.1369-7625.2009.00572.x.
    1. Elwyn G, Frosch D, Volandes AE, Edwards A, Montori VM. Investing in Deliberation: A Definition and Classification of Decision Support Interventions for People Facing Difficult Health Decisions. Med Decis Making. 2010;30(6):701–11. doi: 10.1177/0272989X10386231.
    1. O’Connor A, Graham I, Visser A. Implementing shared decision making in diverse health care systems: the role of patient decision aids. Patient Educ Counsel. 2005;57(3):247–9. doi: 10.1016/j.pec.2005.04.010.
    1. Elwyn G, Edwards A, Gwyn R, Grol R. Towards a feasible model for shared decision making: focus group study with general practice registrars. BMJ. 1999;319(7212):753–6. doi: 10.1136/bmj.319.7212.753.
    1. Hauer KE, Fernandez A, Teherani A, Boscardin CK, Saba GW. Assessment of medical students’ shared decision-making in standardized patient encounters. J Gen Intern Med. 2011;26(4):367–72. doi: 10.1007/s11606-010-1567-7.
    1. Lloyd A, Joseph Williams N, Beasley A, Tomkinson A, Elwyn G. Shared decision making in a multidisciplinary head and neck cancer team: a case study of developing Option Grids. International Journal of Person Centered Medicine. 2012;In Press.
    1. Braddock C, Edwards K, Hasenberg M, Laidley T, Levinson W. Informed decision making in outpatient setting: time to get back to basics. JAMA. 1999;282:2313–20. doi: 10.1001/jama.282.24.2313.
    1. Elwyn G, Hutchings H, Edwards A, Rapport F, Wensing M, Cheung W-Y, et al. The OPTION scale: measuring the extent that clinicians involve patients in decision-making tasks. Health Expectations. 2005;8(1):34–42. doi: 10.1111/j.1369-7625.2004.00311.x.
    1. Schiffrin D. Discourse markers. Cambridge University Press; 1988.
    1. Edwards A, Elwyn G, Mulley A. Explaining risks: turning numerical data into meaningful pictures. BMJ. 2002;324(7341):827–30. doi: 10.1136/bmj.324.7341.827.
    1. Paling J. Strategies to help patients understand risks. BMJ. 2003;327(7417):745–8. doi: 10.1136/bmj.327.7417.745.
    1. Kurtz S, Silverman J. The Calgary—Cambridge Referenced Observation Guides: an aid to defining the curriculum and organizing the teaching in communication training programmes. Med Educ. 1996;30(2):83–9. doi: 10.1111/j.1365-2923.1996.tb00724.x.
    1. Breslin M, Mullan RJ, Montori VM. The design of a decision aid about diabetes medications for use during the consultation with patients with type 2 diabetes. Patient Educ Couns. 2008;73:465–72. doi: 10.1016/j.pec.2008.07.024.
    1. Whelan T, Levine M, Willan A, Gafni A, Sanders K, Mirsky D, et al. Effect of a decision aid on knowledge and treatment decision making for breast cancer surgery: a randomized trial. JAMA. 2004;292(4):435. doi: 10.1001/jama.292.4.435.
    1. A to Z Inventory - Patient Decision Aids - Ottawa Health Research Institute [Internet]. [cited 2012 Apr 3]; Available from:

Source: PubMed

Подписаться