Experiences and Factors Affecting Usage of an eHealth Tool for Self-Management Among People With Chronic Obstructive Pulmonary Disease: Qualitative Study

Sarah Marklund, Malin Tistad, Sara Lundell, Lina Östrand, Ann Sörlin, Carina Boström, Karin Wadell, Andre Nyberg, Sarah Marklund, Malin Tistad, Sara Lundell, Lina Östrand, Ann Sörlin, Carina Boström, Karin Wadell, Andre Nyberg

Abstract

Background: Self-management strategies are regarded as highly prioritized in chronic obstructive pulmonary disease (COPD) treatment guidelines. However, individual and structural barriers lead to a staggering amount of people with COPD that are not offered support for such strategies, and new approaches are urgently needed to circumvent these barriers. A promising way of delivering health services such as support for self-management strategies is the use of eHealth tools. However, there is a lack of knowledge about the usage of, and factors affecting the use of, eHealth tools over time in people with COPD.

Objective: This study aimed, among people with COPD, to explore and describe the experiences of an eHealth tool over time and factors that might affect usage.

Methods: The eHealth tool included information on evidence-based self-management treatment for people with COPD, including texts, pictures, videos as well as interactive components such as a step registration function with automatized feedback. In addition to the latter, automated notifications of new content and pedometers were used as triggers to increase usage. After having access to the tool for 3 months, 16 individuals (12 women) with COPD were individually interviewed. At 12 months' access to the tool, 7 (5 women) of the previous 16 individuals accepted a second individual interview. Data were analyzed using qualitative content analysis. User frequency was considered in the analysis, and participants were divided into users and nonusers/seldom users depending on the number of logins and minutes of usage per month.

Results: Three main categories, namely, ambiguous impact, basic conditions for usage, and approaching capability emerged from the analysis, which, together with their subcategories, reflect the participants' experiences of using the eHealth tool. Nonusers/seldom users (median 1.5 logins and 1.78 minutes spent on the site per month) reported low motivation, a higher need for technical support, a negative view about the disease and self-management, and had problematic health literacy as measured by the Communicative and Critical Health Literacy Scale (median [range] 154 [5-2102]). Users (median 10 logins and 43 minutes per month) felt comfortable with information technology (IT) tools, had a positive view on triggers, and had sufficient health literacy (median [range] 5 [5-1400]). Benefits including behavior changes were mainly expressed after 12 months had passed and mainly among users.

Conclusions: Findings of this study indicate that the level of motivation, comfortability with IT tools, and the level of health literacy seem to affect usage of an eHealth tool over time. Besides, regarding behavioral changes, gaining benefits from the eHealth tool seems reserved for the users and specifically after 12 months, thus suggesting that eHealth tools can be suitable media for supporting COPD-specific self-management skills, although not for everyone or at all times. These novel findings are of importance when designing new eHealth tools as well as when deciding on whether or not an eHealth tool might be appropriate to use if the goal is to support self-management among people with COPD.

Trial registration: ClinicalTrials.gov NCT02696187; https://ichgcp.net/clinical-trials-registry/NCT02696187.

International registered report identifier (irrid): RR2-10.1136/bmjopen-2017-016851.

Keywords: COPD; chronic disease; eHealth; primary care; qualitative content analysis; self-management.

Conflict of interest statement

Conflicts of Interest: None declared.

©Sarah Marklund, Malin Tistad, Sara Lundell, Lina Östrand, Ann Sörlin, Carina Boström, Karin Wadell, Andre Nyberg. Originally published in the Journal of Medical Internet Research (https://www.jmir.org), 30.04.2021.

Figures

Figure 1
Figure 1
Overview of user experience and factors affecting usage. “Users at three months” represent experiences mainly seen among those who used the COPD Web during the initial three months, “Non-user/seldom-users at three months” represent experiences mainly seen among those who did not use, or used at a limited extent, the COPD Web at three months, “Users and non-user/seldom-users at three months” represents experiences seen among both users and non-user/seldom-users at three months while “12 months” represents experiences mainly expressed at 12 months. *Based on the communicative and critical health literacy scale, Swedish version.

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