Investıgatıon Of The Awareness Of The Parents Of Cerebral Palsy Children (CP)

Investıgatıon Of The Awareness Of The Parents Of The Cerebral Palsy Children About The Disease, Physiotherapy And Rehabilitation

Parents of Cerebral Palsy (CP) children participate in treatments, education services and general medical check-ups; They have many responsibilities such as the use of drugs, devices, educational materials. Therefore, involving parents of CP children in the rehabilitation process provides a stronger rehabilitation service for their children. In the studies, it was stated that the active participation of the parents in the physiotherapy and rehabilitation process increases the success rate of the treatment and the participation of the parents plays a key role for the success of the physiotherapy and rehabilitation.

Study Overview

• Status: Completed
• Conditions: Cerebral Palsy; Parenting; Parents; Physical Disability; Awareness
• Intervention / Treatment: Other: assessment

Detailed Description

Cerebral Palsy (CP) children have a different clinical picture that includes many diseases. Abnormal muscle tone, insufficiency of postural control, weakness of muscle strength, abnormal behavior patterns and sensory problems are common symptoms, especially motor impairment can be in these children. These symptoms cause orthopedic problems, deformity and developmental delay over time. Motor disorders may be accompanied by various problems such as cognitive disorders, sensory, speech, cognitive, communication and behavioral problems, epilepsy and secondary musculoskeletal system problems. Functional skills such as independent sitting, standing, walking, balance, coordination, and fine motor skills are affected in these children due to different damage of neuronal system. This negatively affects the independence of activity in the child's daily life. CP children's treatment; It is carried out by a multidisciplinary team of specialists, such as specialist physicians, physiotherapists, psychologists, social counselors, child neurologists, orthopedists, vision-hearing specialists, pediatricians, occupational therapists, special educators, orthotics technicians, and with the participation of parents. The most important element of the rehabilitation team is the parents. In the postnatal period, parents are the primary responsible persons for the care of the child. This responsibility increases even more in the child with CP. The motor activity loss and movement disorder that develops in a child increase the functional dependency of the child in his daily life and cause him to need more support. All family members are somehow involved in the health services provided to these children. Parents are constantly involved in the life of the CP children and become aware of their child's abilities and needs. Parents of children participate in treatments, education services and general medical check-ups; They have many responsibilities such as the use of drugs, devices, educational materials. Therefore, involving parents of children in the rehabilitation process provides a stronger rehabilitation service for their children. In the studies, it was stated that the active participation of the parents in the physiotherapy and rehabilitation process increases the success rate of the treatment and the participation of the parents plays a key role for the success of the physiotherapy and rehabilitation. Parental support contributes to health and well-being and influences the success of long-term rehabilitation. With the increasing importance of family-centered practices in recent years, parents have started to take an active part in rehabilitation studies by continuing the practices in the clinic at home and in the community. It is an increasingly important view that parents play an important role in the lives of CP children. The acceptance of family-oriented care and the emergence of new theories on motor development have affected the treatment approach to these children, and the practices have become more family and function-centered rather than child-centered. The aim of this study is to investigate the awareness of parents of CP children about the disease, sports and physiotherapy and rehabilitation.

• Study Type: Observational
• Enrollment (Actual): 80

Contacts and Locations

Study Locations

• Turkey
  • Kahramanmaras, Turkey, 46100
    • Kahramanmaras Sutcu Imam University

Participation Criteria

Eligibility Criteria

• Ages Eligible for Study: 4 years to 18 years (Child, Adult)
• Accepts Healthy Volunteers: No
• Genders Eligible for Study: All

• Sampling Method: Probability Sample

Study Population

The universe of the research will consist of the parents of children with cerebral palsy who can be reached, who receive active treatment in special education and rehabilitation centers.

Description

Inclusion Criteria:

• Being the parents of children with cerebral palsy between the ages of 4-18
• Volunteering to participate in the study
• Having communication skills to answer the questions in the personal information form and the evaluation form.

Exclusion Criteria:

• Having any psychiatric diagnosis of parents

Study Plan

How is the study designed?

Design Details

• Observational Models: Family-Based
• Time Perspectives: Prospective

Number of groups / cohorts

1

Cohorts and Interventions

Group / Cohort	Intervention / Treatment
1/parents of the Cerebral Palsy children; parents of the children with cerebral palsy will be evaluated about the awereness of their children's disease, physical and social activities and physiotherapy and rehabilitation.	Other: assessment; To examine the awareness of parents of Cerebral Palsy children about the disease, physiotherapy and rehabilitation.

What is the study measuring?

Primary Outcome Measures

Outcome Measure	Measure Description	Time Frame
1/The awareness of parents of children with Cerebral Palsy (CP) about the disease, physiotherapy and rehabilitation	The awareness of parents of children with Cerebral Palsy (CP) about the disease, physiotherapy and rehabilitation will be assessed with a 50-question questionnaire prepared by the researcher.	first day of assessment

Secondary Outcome Measures

Outcome Measure	Measure Description	Time Frame
Demographic information of parents	Demographic information of parents will be recorded (age, gender, height, body weight).	first day of assessment
Demographic information of the children	Demographic information of the children will be recorded (age, gender, height, body weight,physiotherapy and rehabilitation years, diagnosis duration of the disease).	first day of assessment

Collaborators and Investigators

• Sponsor: Kahramanmaras Sutcu Imam University

Study record dates

Study Major Dates

• Study Start (Actual): January 1, 2022
• Primary Completion (Actual): February 15, 2022
• Study Completion (Actual): February 28, 2022

Study Registration Dates

• First Submitted: January 15, 2022
• First Submitted That Met QC Criteria: January 15, 2022
• First Posted (Actual): January 28, 2022

Study Record Updates

• Last Update Posted (Actual): September 14, 2022
• Last Update Submitted That Met QC Criteria: September 10, 2022
• Last Verified: September 1, 2022

More Information

Terms related to this study

• Keywords: parents; cerebral palsy; Awareness; physiotherapy and rehabilitation
• Additional Relevant MeSH Terms: Brain Diseases; Central Nervous System Diseases; Nervous System Diseases; Neurologic Manifestations; Brain Damage, Chronic; Cerebral Palsy; Paralysis
• Other Study ID Numbers: KSUFTR

Plan for Individual participant data (IPD)

• Plan to Share Individual Participant Data (IPD)?: No

Drug and device information, study documents

• Studies a U.S. FDA-regulated drug product: No
• Studies a U.S. FDA-regulated device product: No