Perspectives of Family Carers of Older People From Turkish and Moroccan Origin in Belgium on Advance Care Planning

Perspectives of Family Carers of Older People From Turkish and Moroccan Origin in Flanders and Brussels, Belgium, on Advance Care Planning: An Exploratory Interview Study

In this study, we will explore the perspective of family carers of older adults from Turkish and Moroccan origin in Flanders and Brussels, Belgium, concerning advance care planning (ACP), more specifically concerning their knowledge about ACP, their experiences with and their points of view on ACP for their family member and their own preferences regarding how to be involved in the process of ACP for their relatives.

Study Overview

• Status: Completed
• Conditions: Advance Care Planning; Family Caregivers; Ethnic Minorities
• Intervention / Treatment: Other: one to one interviews

Detailed Description

Whether or not someone wants to engage in ACP, is often the result of a complex interplay of meanings, events, processes and assumptions constructed by the patient and is best approached by qualitative methods. Semi-structured interviews will be used in order to explore the respondents' knowledge about and experience with ACP, also their views concerning ACP for their relatives and how do they prefer to engage in the process of ACP for their relatives will be explored.

• Study Type: Interventional
• Enrollment (Actual): 25
• Phase: Not Applicable

Contacts and Locations

• Study Contact: Name: Petra Van den Borre; Phone Number: +3224774311; Email: petra.van.den.borre@vub.be

Study Locations

• Belgium
  • Brussels, Belgium, 1090
    • Faculteit Geneeskunde en Farmacie

Participation Criteria

Eligibility Criteria

• Ages Eligible for Study: 18 years and older (Adult, Older Adult)
• Accepts Healthy Volunteers: Yes

Description

Inclusion Criteria:

• Family carers of older adults with a Turkish or a Moroccan origin who have participated in our previous studies with NCT03930823 and NCT04335214, as identified by the older adults as the most significant family carer. Older adults in our previous studies were men and women, all 65 years and older and living in Flanders and Brussels.
• and who live in Belgium and are 18 years or older and fluent in French or Dutch language.
• and who have also given informed consent to participate in this qualitative interview study

Exclusion Criteria:

• None

Study Plan

How is the study designed?

Design Details

• Primary Purpose: Other
• Allocation: N/A
• Interventional Model: Single Group Assignment
• Masking: None (Open Label)

Number of Arms

1

Arms and Interventions

Participant Group / Arm	Intervention / Treatment
Other: One to one interviews with family carers of older people from Turkish and Moroccan origin; one to one interviews	Other: one to one interviews; one to one interviews to explore the perspective of family carers of older adults of Turkish and Moroccan origin in Flanders and Brussels, Belgium, concerning advance care planning (ACP)

What is the study measuring?

Primary Outcome Measures

Outcome Measure	Measure Description	Time Frame
Knowledge of family carers of older adults from Turkish and Moroccan origin about advance care planning	This is a qualitative study. We developed a semi-structured interview guide with the following questions: Have you ever heard of advance care planning? Does that term mean anything to you? What do you know about communicating wishes in advance to family members or doctor and notice this?	12 months

Secondary Outcome Measures

Outcome Measure	Measure Description	Time Frame
Experiences of family carers of older adults from Turkish and Moroccan origin have with engaging in the process of ACP for their relatives	This is a qualitative study. We developed a semi-structured interview guide with the following questions: Have you personally already spoken with some of your relatives about their future wishes what matters to him/her regarding his/her healthcare? If No: why? If yes: how?	12 months

Other Outcome Measures

Outcome Measure	Measure Description	Time Frame
Family carers from Turkish and Moroccan origin views regarding their relatives engaging in the process of ACP?	This is a qualitative study. We developed a semi-structured interview guide with the following questions: Do you think it would be important that your relative discusses his/her wishes with someone? Can you explain it more in detail?	12 months
How do family carers of older adults with Turkish and Moroccan origin prefer to engage in the process of ACP for their relatives?	This is a qualitative study. We developed a semi-structured interview guide with the following questions: What do you think about speaking openly with your relative about ACP? Who do you think should be involved? Which role do you want in this process?; What do you hope this conversation will bring about? What are your expectations? What would you like to discuss? - Would you need help to start this conversation? Or would you record this alone?	12 months

Collaborators and Investigators

• Sponsor: Universitair Ziekenhuis Brussel
• Investigators: Principal Investigator: Hakki Demirkapu, MD, Vrije Universiteit Brussel

Study record dates

Study Major Dates

• Study Start (Actual): March 15, 2022
• Primary Completion (Actual): December 31, 2022
• Study Completion (Actual): May 1, 2023

Study Registration Dates

• First Submitted: February 4, 2022
• First Submitted That Met QC Criteria: February 4, 2022
• First Posted (Actual): February 15, 2022

Study Record Updates

• Last Update Posted (Actual): May 11, 2023
• Last Update Submitted That Met QC Criteria: May 10, 2023
• Last Verified: May 1, 2022

More Information

Terms related to this study

• Other Study ID Numbers: ACP2021M&T

Plan for Individual participant data (IPD)

• Plan to Share Individual Participant Data (IPD)?: NO

Drug and device information, study documents

• Studies a U.S. FDA-regulated drug product: No
• Studies a U.S. FDA-regulated device product: No