Emerging perspectives from the hearing voices movement: implications for research and practice

Dirk Corstens, Eleanor Longden, Simon McCarthy-Jones, Rachel Waddingham, Neil Thomas, Dirk Corstens, Eleanor Longden, Simon McCarthy-Jones, Rachel Waddingham, Neil Thomas

Abstract

The international Hearing Voices Movement (HVM) is a prominent mental health service-user/survivor movement that promotes the needs and perspectives of experts by experience in the phenomenon of hearing voices (auditory verbal hallucinations). The main tenet of the HVM is the notion that hearing voices is a meaningful human experience, and in this article, we discuss the historical growth and influence of the HVM before considering the implications of its values for research and practice in relation to voice-hearing. Among other recommendations, we suggest that the involvement of voice-hearers in research and a greater use of narrative and qualitative approaches are essential. Challenges for implementing user-led research are identified, and avenues for future developments are discussed.

Keywords: auditory hallucinations; service-user involvement; social psychiatry.

© The Author 2014. Published by Oxford University Press on behalf of the Maryland Psychiatric Research Center.

References

    1. Longden E, Corstens D, Dillon J. Recovery, discovery and revolution: the work of Intervoice and the hearing voices movement. In: Coles S, Keenan S, Diamond B, eds. Madness Contested: Power and Practice. Ross-on-Wye, UK: PCCS; 2013:161–180
    1. Dillon J, Hornstein GA. Hearing voices peer support groups: a powerful alternative for people in distress. Psychosis Psychol Soc Integr Appr. 2013;5:286–295
    1. Romme M, Escher S, Dillon J, Corstens D, Morris M, eds. Living with Voices: Fifty Stories of Recovery. Ross-on-Wye, UK: PCCS; 2009
    1. Romme MA, Escher AD. Hearing voices. Schizophr Bull. 1989;15:209–216
    1. Kapur S. Psychosis as a state of aberrant salience: a framework linking biology, phenomenology, and pharmacology in schizophrenia. Am J Psychiatry. 2003;160:13–23
    1. McCabe R, Heath C, Burns T, Priebe S. Engagement of patients with psychosis in the consultation: conversation analytic study. BMJ. 2002;325:1148–1151
    1. Romme M, Escher S. Accepting Voices. London, UK: Mind; 1993
    1. Honig A, Romme MA, Ensink BJ, Escher SD, Pennings MH, deVries MW. Auditory hallucinations: a comparison between patients and nonpatients. J Nerv Ment Dis. 1998;186:646–651
    1. Corstens D, Escher S, Romme M. Accepting and working with voices: the Maastricht approach. In: Moskowitz A, Schäfer I, Dorahy MJ, eds. Psychosis, Trauma and Dissociation: Emerging Perspectives on Severe Psychopathology. Oxford, UK: Wiley-Blackwell; 2008:319–331
    1. Longden E, Corstens D, Escher S, Romme M. Voice hearing in biographical context: a model for formulating the relationship between voices and life history. Psychosis Psychol Soc Integr Appr. 2012;4:224–234
    1. Corstens D, Longden E. The origins of voices: links between life history and voice hearing in a survey of 100 cases. Psychosis Psychol Soc Integr Appr. 2013;5:270–285
    1. Woods A. The voice-hearer. J Ment Health. 2013;22:263–270
    1. Knols M, Corstens D. Tuning in: a story by a patient and a therapist about making sense of voices. Ment Health Today. 2011; Nov–Dec:28–32
    1. Corstens D, Longden E, May R. Talking with voices: exploring what is expressed by the voices people hear. Psychosis Psychol Soc Integr Appr. 2012;4:95–104
    1. Watkins J. Voice Hearing: A Common Human Experience. Melbourne, Australia: Michelle Anderson; 2008
    1. al-Issa I. The illusion of reality or the reality of illusion. Hallucinations and culture. Br J Psychiatry. 1995;166:368–373
    1. Beavan V, Read J, Cartwright C. The prevalence of voice-hearers in the general population: a literature review. J Ment Health. 2011;20:281–292
    1. Johnstone L. Voice hearers are people with problems, not patients with illnesses. In: Romme M, Escher S, eds. Psychosis as a Personal Crisis: An Experience-Based Approach. London, UK: Routledge; 2011:27–36
    1. McCarthy-Jones S, Waegeli A, Watkins J. Spirituality and hearing voices: considering the relation. Psychosis. 2013;5:247–258
    1. Daalman K, Boks MP, Diederen KM, et al. The same or different? A phenomenological comparison of auditory verbal hallucinations in healthy and psychotic individuals. J Clin Psychiatry. 2011;72:320–325
    1. Dillon J, Longden E. Hearing voices groups: creating safe spaces to share taboo experiences. In: Romme M, Escher S, eds. Psychosis as a Personal Crisis: An Experience Based Approach. London, UK: Routledge; 2011:129–139
    1. McCarthy-Jones S. Hearing Voices: The Histories, Causes and Meanings of Auditory Verbal Hallucinations. Cambridge, UK: Cambridge University Press; 2012
    1. Romme M, Morris M. The recovery process with hearing voices: accepting as well as exploring their emotional background through a supported process. Psychosis Psychol Soc Integr Appr. 2013;5:259–269
    1. Longden E, Madill A, Waterman MG. Dissociation, trauma, and the role of lived experience: toward a new conceptualization of voice hearing. Psychol Bull. 2012;138:28–76
    1. Romme M, Escher S. Making Sense of Voices. London, UK: Mind; 2000
    1. Longden E, Dillon J. The hearing voices movement. In: Cromby J, Harper D, Reavey P, eds. Psychology, Mental Health and Distress. Basingstoke, UK: Palgrave-Macmillan; 2013:151–156
    1. May R, Longden E. Self-help approaches to hearing voices. In: Larøi F, Aleman A, eds. Hallucinations: A Guide to Treatment and Management. Oxford, UK: Oxford University Press; 2010.
    1. Mead S, Hilton D, Curtis L. Peer support: a theoretical perspective. Psychiatric Rehab J. 2001;5:134–141
    1. Read J, Magliano L, Beavan V. Public beliefs about the causes of “schizophrenia”: bad things happen and can drive you crazy. In: Read J, Dillon J, eds. Models of Madness: Psychological, Social and Biological Approaches to Schizophrenia. London, UK: Routledge; 2013:143–156
    1. Johns LC, Nazroo JY, Bebbington P, Kuipers E. Occurrence of hallucinatory experiences in a community sample and ethnic variations. Br J Psychiatry. 2002;180:174–178
    1. Bentall RP, Wickham S, Shevlin M, Varese F. Do specific early-life adversities lead to specific symptoms of psychosis? A study from the 2007 the Adult Psychiatric Morbidity Survey. Schizophr Bull. 2012;38:734–740
    1. Read J, van Os J, Morrison AP, Ross CA. Childhood trauma, psychosis and schizophrenia: a literature review with theoretical and clinical implications. Acta Psychiatr Scand. 2005;112:330–350
    1. McCarthy-Jones S. Voices from the storm: a critical review of quantitative studies of auditory verbal hallucinations and childhood sexual abuse. Clin Psychol Rev. 2011;31:983–992
    1. Varese F, Smeets F, Drukker M, et al. Childhood adversities increase the risk of psychosis: a meta-analysis of patient-control, prospective- and cross-sectional cohort studies. Schizophr Bull. 2012;38:661–671
    1. Beavan V, Read J. Hearing voices and listening to what they say: the importance of voice content in understanding and working with distressing voices. J Nerv Ment Dis. 2010;198:201–205
    1. Badcock JC, Paulik G, Maybery MT. The role of emotion regulation in auditory hallucinations. Psychiatry Res. 2011;185:303–308
    1. Slotema CW, Daalman K, Blom JD, Diederen KM, Hoek HW, Sommer IE. Auditory verbal hallucinations in patients with borderline personality disorder are similar to those in schizophrenia. Psychol Med. 2012;42:1873–1878
    1. Diederen KM, Daalman K, de Weijer AD, et al. Auditory hallucinations elicit similar brain activation in psychotic and nonpsychotic individuals. Schizophr Bull. 2012;38:1074–1082
    1. Mawson A, Cohen K, Berry K. Reviewing evidence for the cognitive model of auditory hallucinations: The relationship between cognitive voice appraisals and distress during psychosis. Clin Psychol Rev. 2010;30:248–258
    1. Andrew EM, Gray NS, Snowden RJ. The relationship between trauma and beliefs about hearing voices: a study of psychiatric and non-psychiatric voice hearers. Psychol Med. 2008;38:1409–1417
    1. Chin JT, Hayward M, Drinnan A. “Relating” to voices: Exploring the relevance of this concept to people who hear voices. Psychol Psychother. 2009;82:1–17
    1. Hayward M, Overton J, Dorey T, Denney J. Relating therapy for people who hear voices: a case series. Clin Psychol Psychother. 2009;16:216–227
    1. Beavan V. Towards a definition of “hearing voices”: a phenomenological approach. Psychosis Psychol Soc Integr Appr. 2011;3:63–73
    1. Neil ST, Price J, Pitt L, et al. Working together: service users and researchers in psychosis research. Psychosis Psychol Soc Integr Appr. 2013;5:306–316
    1. Schrader S. Illuminating the heterogeneity of voices in a multiple perspectives research paradigm. Psychosis Psychol Soc Integr Appr. 2013;5:216–225
    1. Lepping P, Sambhi RS, Whittington R, Lane S, Poole R. Clinical relevance of findings in trials of antipsychotics: systematic review. Br J Psychiatry. 2011;198:341–345
    1. Kay SR, Opler LA, Lindenmayr JP. The Positive and Negative Syndrome Scale (PANSS): rationale and standardisation. Br J Psychaitry.1989;(suppl 7):59–67
    1. Haddock G, McCarron J, Tarrier N, Faragher EB. Scales to measure dimensions of hallucinations and delusions: the psychotic symptom rating scales (PSYRATS). Psychol Med. 1999;29:879–889
    1. Haddock G, Wood L, Watts R, Dunn G, Morrison AP, Price J. The Subjective Experiences of Psychosis Scale (SEPS): psychometric evaluation of a scale to assess outcome in psychosis. Schizophr Res. 2011;133:244–249
    1. Greenwood KE, Sweeney A, Williams S, et al. CHoice of Outcome in Cbt for psychosEs (CHOICE): the development of a new service user-led outcome measure of CBT for psychosis. Schizophr Bull. 2010;36:126–135
    1. Neil ST, Kilbride M, Pitt L, et al. The questionnaire about the process of recovery (QPR): a measurement tool developed in collaboration with service users. Psychosis Psychol Soc Integr Appr. 2009;1:145–155
    1. Wunderink L, Nieboer RM, Wiersma D, Sytema S, Nienhuis FJ. Recovery in remitted first-episode psychosis at 7 years of follow-up of an early dose reduction/discontinuation or maintenance treatment strategy: long-term follow-up of a 2-year randomized clinical trial. JAMA Psychiatry. 2013;70:913–920
    1. Garrett M. “Normalizing” the voice hearing experience: the continuum between auditory hallucinations and ordinary mental life. In: Larøi F, Aleman A, eds. Hallucinations: A Guide to Treatment and Management. Oxford, UK: Oxford University Press; 2010: 183–204
    1. Sanjuan J, Aguilar EJ, Artigas F. Pharmacological treatment of hallucinations. In: Laroi F, Aleman A, eds. Hallucinations: A Guide to Treatment and Management. Oxford, UK: Oxford University Press; 2010:9–28
    1. Harrow M, Jobe TH, Faull RN. Do all schizophrenia patients need antipsychotic treatment continuously throughout their lifetime? A 20-year longitudinal study. Psychol Med. 2012;42:2145–2155
    1. Corstens D, Longden E, Rydinger B, Bentall R, van Os J. Treatment of hallucinations: a comment. Psychosis Psychol Soc Integr Appr. 2013;5:98–102
    1. Caroll M. Am I Going Mad? The Unsettling Phenomena of Spiritual Evolution. Kinglake, Australia: Inner Peace Publishing; 2009
    1. Read J, Bentall RP. Negative childhood experiences and mental health: theoretical, clinical and primary prevention implications. Br J Psychiatry. 2012;200:89–91
    1. Read JP, Wardell JD, Colder CR. Reciprocal associations between PTSD symptoms and alcohol involvement in college: a three-year trait-state-error analysis. J Abnorm Psychol. 2013;122:984–997
    1. Thomas P, Longden E. Madness, childhood adversity and narrative psychiatry: caring and the moral imagination. Med Humanit. 2013;39:119–125
    1. Resnick SG, Fontana A, Lehman AF, Rosenheck RA. An empirical conceptualization of the recovery orientation. Schizophr Res. 2005;75:119–128
    1. McCarthy-Jones S, Marriott M, Knowles RE, Rowse G, Thompson AR. What is psychosis? A meta-synthesis of inductive qualitative studies exploring the experience of psychosis. Psychosis. 2013;5:1–16
    1. Weinmann S, Aderhold V. Antipsychotic medication, mortality and neurodegeneration: the need for more selective use and lower doses. Psychosis Psychol Soc Integr Appr. 2010;2:50–69
    1. Bola JR, Lehtinen K, Cullberg J, Ciompi L. Psychosocial treatment, antipsychotic postponement, and low-dose medication strategies in first-episode psychosis: a review of the literature. Psychosis Psychol Soc Integr Appr. 2009;1:4–18
    1. Seikkula J, Alakare B, Aaltonen J, et al. Five years experiences of first-episode non-affective psychosis in Open Dialogue approach: treatment principles, follow-up outcomes and two case analyses. Psychotherapy Res. 2006;16:214–228
    1. Calton T, Ferriter M, Huband N, Spandler H. A systematic review of the Soteria paradigm for the treatment of people diagnosed with schizophrenia. Schizophr Bull. 2008;34:181–192
    1. Dillon J. The tale of an ordinary little girl. Psychosis Psychol Soc Integr Appr. 2010;2:79–83
    1. Longden E. Learning From the Voices in My Head. New York, NY: TED Books; 2013
    1. Milligan D, McCarthy-Jones S, Winthrope A, Dudley R. Time changes everything? A qualitative investigation of the experience of auditory verbal hallucinations over time. Psychosis. 2013;5:107–118

Source: PubMed

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