Commentary: 20 years online with "Your Disease Risk"

Graham A Colditz, Hank Dart, Graham A Colditz, Hank Dart

Abstract

The Your Disease Risk tool ( yourdiseaserisk.wustl.edu ) went live to the public in January 2000 and was one of the first personalized health risk assessment sites on the Internet. Its launch marked the culmination of years of work by a large, multi-disciplinary university team whose primary goal was to translate the science on cancer prevention into accurate, engaging, and useful messages for the public. Today, 20 years on, Your Disease Risk has expanded from its initial four cancers to include 18 different tools designed for today's users. This commentary reviews important moments and lessons learned in the first two decades of Your Disease Risk.

Keywords: Application; Commentary; Prevention; Risk assessment; Risk communication; Translational medicine.

Conflict of interest statement

The authors declare that they have no conflict of interest.

Figures

Fig. 1
Fig. 1
Your Cancer Risk in January 2000
Fig. 2
Fig. 2
Your Disease Risk in 2020

References

    1. Colditz GA, Atwood KA, Emmons K, Monson RR, Willett WC, Trichopoulos D, Hunter DJ (2000) Harvard report on cancer prevention volume 4: Harvard Cancer Risk Index. Risk Index Working Group, Harvard Center for Cancer Prevention. Cancer causes & control : CCC 11 (6):477–488
    1. Harvard Center for Cancer Prevention Harvard report on cancer prevention. Volume 1: causes of human cancer. Cancer Causes Control CCC. 1996;7(Suppl 1 (3)):S3–59.
    1. Harvard Center for Cancer Prevention Harvard Report on Cancer Prevention Volume 2: Prevention of human cancer. Cancer Causes Control CCC. 1997;8(1):S1–S50.
    1. Marshall AA, Zaccardelli A, Yu Z, Prado MG, Liu X, Miller Kroouze R, Kalia SS, Green RC, Triedman NA, Lu B, Deane KD, Iversen MD, Karlson EW, Sparks JA. Effect of communicating personalized rheumatoid arthritis risk on concern for developing RA: a randomized controlled trial. Patient Educ Couns. 2019;102(5):976–983. doi: 10.1016/j.pec.2018.12.011.
    1. Prado MG, Iversen MD, Yu Z, Miller Kroouze R, Triedman NA, Kalia SS, Lu B, Green RC, Karlson EW, Sparks JA. Effectiveness of a web-based personalized rheumatoid arthritis risk tool with or without a health educator for knowledge of rheumatoid arthritis risk factors. Arthritis Care Res (Hoboken) 2018;70(10):1421–1430. doi: 10.1002/acr.23510.
    1. Sparks JA, Iversen MD, Miller Kroouze R, Mahmoud TG, Triedman NA, Kalia SS, Atkinson ML, Lu B, Deane KD, Costenbader KH, Green RC, Karlson EW. Personalized risk estimator for rheumatoid arthritis (PRE-RA) family study: rationale and design for a randomized controlled trial evaluating rheumatoid arthritis risk education to first-degree relatives. Contemp Clin Trials. 2014;39(1):145–157. doi: 10.1016/j.cct.2014.08.007.
    1. Emmons KM, Koch-Weser S, Atwood K, Conboy L, Rudd R, Colditz G. A qualitative evaluation of the Harvard cancer risk index. J Health Commun. 1999;4(3):181–193. doi: 10.1080/108107399126904.
    1. Lipkus IM, Samsa G, Rimer BK. General performance on a numeracy scale among highly educated samples. Med Decis Making. 2001;21(1):37–44. doi: 10.1177/0272989X0102100105.
    1. Zikmund-Fisher BJ. The right tool is what they need, not what we have: a taxonomy of appropriate levels of precision in patient risk communication. Med Care Res Rev. 2013;70(1 Suppl):37S–49S. doi: 10.1177/1077558712458541.
    1. Howlader N, Noone AM, Krapcho M, Miller D, Brest A, Yu M, Ruhl J, Tatalovich Z, Mariotto A, Lewis DR, Chen HS, Feuer EJ, Cronin KA. SEER cancer statistics review, 1975–2017. Bethesda, MD: National Cancer Institute; 2020.
    1. Han PK, Hootsmans N, Neilson M, Roy B, Kungel T, Gutheil C, Diefenbach M, Hansen M. The value of personalised risk information: a qualitative study of the perceptions of patients with prostate cancer. BMJ Open. 2013;3(9):e003226. doi: 10.1136/bmjopen-2013-003226.
    1. Emmons KM, Wong M, Puleo E, Weinstein N, Fletcher R, Colditz G. Tailored computer-based cancer risk communication: correcting colorectal cancer risk perception. J Health Commun. 2004;9(2):127–141. doi: 10.1080/10810730490425295.
    1. Fowler SL, Klein WMP, Ball L, McGuire J, Colditz GA, Waters EA. Using an internet-based breast cancer risk assessment tool to improve social-cognitive precursors of physical activity. Med Decis Making. 2017;37(6):657–669. doi: 10.1177/0272989X17699835.
    1. Cortez S, Milbrandt M, Kaphingst K, James A, Colditz G. The readability of online breast cancer risk assessment tools. Breast Cancer Res Treat. 2015;154(1):191–199. doi: 10.1007/s10549-015-3601-2.
    1. Kaphingst KA, Zanfini CJ, Emmons KM. Accessibility of web sites containing colorectal cancer information to adults with limited literacy (United States) Cancer Causes Control CCC. 2006;17(2):147–151. doi: 10.1007/s10552-005-5116-3.
    1. Kim DJ, Rockhill B, Colditz GA. Validation of the Harvard cancer risk index: a prediction tool for individual cancer risk. J Clin Epidemiol. 2004;57(4):332–340. doi: 10.1016/j.jclinepi.2003.08.013.
    1. De Vito KM, Baer HJ, Dart H, Chiuve SE, Rimm EB, Colditz GA. Validation of a risk prediction tool for coronary heart disease in middle-aged women. BMC Womens Health. 2015;15:101. doi: 10.1186/s12905-015-0250-x.
    1. Dart H, Wolin KY, Colditz GA. Commentary: eight ways to prevent cancer: a framework for effective prevention messages for the public. Cancer Causes Control CCC. 2012 doi: 10.1007/s10552-012-9924-y.
    1. Wolin KY, Dart H, Colditz GA. Eight ways to stay healthy after cancer: an evidence-based message. Cancer Causes Control CCC. 2013;24(5):827–837. doi: 10.1007/s10552-013-0179-z.
    1. Lophatananon A, Usher-Smith J, Campbell J, Warcaba J, Silarova B, Waters EA, Colditz GA, Muir KR. Development of a cancer risk prediction tool for use in the uk primary care and community settings. Cancer Prev Res (Phila) 2017;10(7):421–430. doi: 10.1158/1940-6207.CAPR-16-0288.
    1. Elias S, Grooters HG, Bausch-Goldbohm RA, van den Brandt PA, Kampman E, van Leeuwen FE, Peeters PH, de Vries E, Wigger S, Kiemeney LA. The Dutch cancer society cancer risk test. Ned Tijdschr Geneeskd. 2012;156(21):A4888.
    1. O'Neill E, Davies-Cole, J., Ellis, E., (2013) Community health kiosks in district of Columbia: a health disparities information system. Paper presented at the 141st APHA Annual Meeting, Boston, MA, November 6, 2013
    1. Revill J (2004) Harvard can now asses your health risks via the internet. The Guardian, July 4, 2004.
    1. Parker-Pope T (2006) Website tallies your risk of disease and tells you what you can do about it. Wall Street J, October 31, 2006
    1. Voelker R. Quick uptakes: online risk assessment expands. JAMA. 2000;284(4):430. doi: 10.1001/jama.284.4.430-b.
    1. Favorite health resources (2008) New York Times, September 29, 2008
    1. Health: Finding a Diagnosis (2006) US News and World Report, November 12, 2006
    1. Parker-Pope T (2009) A better health quiz. New York Times, March 27, 2009
    1. Weinstein ND, Atwood K, Puleo E, Fletcher R, Colditz G, Emmons K. Colon cancer: risk perceptions and risk communication. J Health Commun. 2004;9(1):53–65. doi: 10.1080/10810730490271647.
    1. Colditz G, Izadi S, Dart H, Waters E, James A. Integrating a health risk assessment mobile app into diverse primary care settings—a Pilot Project. Cancer Epidemiol Biomarkers Prev. 2017;26(Issue 2 Supplement):51.
    1. Haas JS, Baer HJ, Eibensteiner K, Klinger EV, St Hubert S, Getty G, Brawarsky P, Orav EJ, Onega T, Tosteson AN, Bates DW, Colditz G. A cluster randomized trial of a personalized multi-condition risk assessment in primary care. Am J Prev Med. 2017;52(1):100–105. doi: 10.1016/j.amepre.2016.07.013.
    1. Baer HJ, Schneider LI, Colditz GA, Dart H, Andry A, Williams DH, Orav EJ, Haas JS, Getty G, Whittemore E, Bates DW. Use of a web-based risk appraisal tool for assessing family history and lifestyle factors in primary care. J Gen Intern Med. 2013 doi: 10.1007/s11606-013-2338-z.
    1. Liu Y, Colditz GA, Rosner BA, Dart H, Wei E, Waters EA. Comparison of performance between a short categorized lifestyle exposure-based colon cancer risk prediction tool and a model using continuous measures. Cancer Prev Res (Phila) 2018;11(12):841–848. doi: 10.1158/1940-6207.CAPR-18-0196.
    1. Rifas-Shiman SL, Willett WC, Lobb R, Kotch J, Dart C, Gillman MW. PrimeScreen, a brief dietary screening tool: reproducibility and comparability with both a longer food frequency questionnaire and biomarkers. Public Health Nutr. 2001;4(2):249–254. doi: 10.1079/PHN200061.

Source: PubMed

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