Parental uncertainty about transferring their adolescent with congenital heart disease to adult care

Åsa Burström, Mariela Acuna Mora, Maria Öjmyr-Joelsson, Carina Sparud-Lundin, Annika Rydberg, Katarina Hanseus, Björn Frenckner, Margret Nisell, Philip Moons, Ewa-Lena Bratt, Åsa Burström, Mariela Acuna Mora, Maria Öjmyr-Joelsson, Carina Sparud-Lundin, Annika Rydberg, Katarina Hanseus, Björn Frenckner, Margret Nisell, Philip Moons, Ewa-Lena Bratt

Abstract

Aims: To study parent's levels of uncertainty related to the transfer from pediatric to adult care in adolescents with congenital heart disease (CHD) and to identify potentially correlating factors.

Background: Parents acknowledge that during transition they struggle with finding ways of feeling secure in handing over the responsibility and letting go of control. Well-prepared and informed parents who feel secure are most likely better skilled to support their adolescent and to hand over the responsibility.

Design: A cross-sectional study.

Methods: Overall, 351 parents were included (35% response rate). Parental uncertainty was assessed using a Linear Analogue Scale (0-100). Data were collected between January - August 2016. Potential correlates were assessed using the readiness for transition questionnaire and sociodemographic data.

Results: The mean parental uncertainty score was 42.5. Twenty-four percent of the parents had a very low level of uncertainty (score 0-10) and 7% had a very high level (score 91-100). Overall, 26% of the mothers and 36% of the fathers indicated that they had not started thinking of the transfer yet. The level of uncertainty was negatively associated with the level of perceived overall readiness. Adolescents' age, sex, CHD complexity, and parental age were not related to uncertainty.

Conclusion: A wide range in the levels of uncertainty was found. Parents who were less involved in the care, or perceived their adolescent as readier for the transition, felt less uncertain. Still, thirty percent of the parents had not started to think about the transfer to adult care.

Keywords: adolescents; congenital heart disease; nursing; parental uncertainty; readiness for transition; transfer; transition.

Conflict of interest statement

No conflict of interest has been declared by the authors.

© 2018 The Authors. Journal of Advanced Nursing Published by John Wiley & Sons Ltd.

Figures

Figure 1
Figure 1
The distribution of the Parental Uncertainty scores (n = 144 parents)

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Source: PubMed

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