Living with Parkinson's disease-managing identity together

Kerstin Stieber Roger, Maria I Medved, Kerstin Stieber Roger, Maria I Medved

Abstract

The specific aim of this paper is to discuss how individuals living with Parkinson's disease and their main family supports perceive communications with each other, with a focus on their roles related to care. The paper is based on individual interviews conducted with individuals and their main family support person. The transcripts were analyzed based on grounded theory and "managing identity together" emerged as the core category. This is discussed in terms of independence, a sense of self-sufficiency and an overall sense of personhood. Implications for other populations conclude the paper.

Keywords: Parkinson's disease; care; caregiver; communication; grounded theory; identity; personhood.

References

    1. Breslin J., MacRae S., Bell J., Singer P. University of Toronto Joint Centre for Bioethics Clinical Ethics Group. Top 10 health care ethics challenges facing the public: Views of Toronto bioethicists. BMC Medical Ethics. 2005;6:1–8.
    1. Caron C. D., Griffith J., Arcand M. End-of-life decision making in dementia: The perspective of family caregivers. Dementia. 2005;4(1):113–136.
    1. Glaser B., Strauss A. The discovery of grounded theory: Strategies for qualitative research. New Brunswick: Aldine Transaction; 1967.
    1. Hawranik P., Strain L. The voices of informal caregivers caring for older adults. Canadian Journal of Nursing Research. 2007;39(1):156–172.
    1. Medved M. I., Brockmeier J. Continuity amid chaos: Neurotrauma, loss of memory, and sense of self. Qualitative Health Research. 2008;18(4):469–479.
    1. Michigan Parkinson Foundation. What is Parkinson's disease? 2003. Retrieved July 19, 2008, from .
    1. Novak M., Campbell L. Aging and society: A Canadian perspective. 5th ed. Toronto: Thomson Nelson; 2006.
    1. Public Health Agency of Canada. Research on Alzheimer's care giving in Canada: Current status and future directions. Chronic Diseases in Canada (CDIC) 2000;25(3/4) Retrieved from December 10, 2009, from .
    1. Roger K. S. Understanding social changes and the experience of dementia. Alzheimer Care Quarterly. 2006a;7:185–193.
    1. Roger K. S. Literature review on palliative care, end of life, and dementia. Palliative and Supportive Care. 2006b;4:1–10.
    1. Roger K. S. It's a problem for other people, because I am seen as a Nuisance: Hearing the voices of people with dementia. Alzheimer Care Quarterly. 2007a;8(1):17–25.
    1. Roger K. S. End-of-Life Care and Dementia. Geriatrics and Aging. 2007b;10(6):380–384.

Source: PubMed

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