Identifying Important Clinical Symptoms in Children With Severe Neurological Impairment Using Parent-Reported Outcomes of Symptoms

Abstract

This cross-sectional study evaluates whether the Parent-Reported Outcomes of Symptoms system identifies more symptoms than clinicians do among children with severe neurological impairment.

Conflict of interest statement

Conflict of Interest Disclosures: None reported.

Figures

Figure.. Concordance Between Parent-Reported Outcomes of Symptoms (PRO-Sx) and Clinician-Noted Symptoms Among 100 Children With Severe Neurological Impairment

This figure displays the Cohen κ value with 95% CI for each of the 28 symptoms. The parent-reported symptom prevalence is noted next to each symptom. aThe McNemar test was significant for parents reporting the symptom at a higher proportion than what was documented in clinical notes.