Experience of co-creation of a health plan and support for sustainable physical activity among people with chronic widespread pain: a qualitative interview study in Sweden

Caroline Feldthusen, Anna Bergenheim, Emmelie Barenfeld, Inger Gjertsson, Anette Larsson, Kaisa Mannerkorpi, Caroline Feldthusen, Anna Bergenheim, Emmelie Barenfeld, Inger Gjertsson, Anette Larsson, Kaisa Mannerkorpi

Abstract

Objectives: The aim of this study was to gain deeper knowledge about how people with chronic widespread pain (CWP) experience the co-creation of a health plan for sustainable physical activity, working in partnership with a physiotherapist, supported by a digital platform.

Design: Qualitative semistructured in-depth individual interviews were analysed with qualitative content analysis.

Setting: Five primary healthcare centres in western Sweden.

Participants: The interviewees comprised 19 individuals with CWP who had previously participated in a person-centred intervention involving co-creation of a health plan and support via a digital platform. The interviews were carried out from late 2019 to spring 2020, 1-6 months after the respondents' final follow-up.

Results: The analysis resulted in an overarching theme; hope for physical activity that actually works, illustrating the experience of taking part in co-creating a reasonable health plan, based on the respondents' own goals and interests with the potential to actually work. This theme was based on two categories: a plan tailored for me and a frame for participation and accessibility to help fulfil the plan. The digital platform provided a way to participate and an assurance that there was someone there for them if necessary.

Conclusions: The co-creation of a health plan nurtured hope of having developed a manageable plan for physical activity that could lead to improved future health and well-being. Digital support may serve as a valuable complement in order to sustain and adjust the planned physical activity.

Trial registration number: ClinicalTrials.gov Identifier: NCT03434899.

Keywords: PAIN MANAGEMENT; QUALITATIVE RESEARCH; RHEUMATOLOGY; Telemedicine.

Conflict of interest statement

Competing interests: None declared.

© Author(s) (or their employer(s)) 2022. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ.

Figures

Figure 1
Figure 1
Theme, categories and subcategories.

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