Factors associated with parental activation in pediatric hematopoietic stem cell transplant
Brian W Pennarola, Angie Mae Rodday, Deborah K Mayer, Sara J Ratichek, Stella M Davies, Karen L Syrjala, Sunita Patel, Kristin Bingen, Mary Jo Kupst, Lisa Schwartz, Eva C Guinan, Judith H Hibbard, Susan K Parsons, HSCT-CHESS Study, Susan K Parsons, Sara J Ratichek, Ruth Ann Weidner, Norma Terrin, Angie Mae Rodday, Tanya Bernstein, Doris Hernandez, Elizabeth J Pedowitz, Brian W Pennarola, David H Gustafson, Fiona McTavish, Susan Stewart, Deborah Mayer, Eva Guinan, Nicholas Domaney, Janice D Russell, Lisa Brennan, Mary Jo Kupst, Kristin Bingen, Rose Lucey, Sunita Patel, Joseph Rosenthal, Colleen Keilty, Karen L Syrjala, Samantha Artherholt, Allison Stover, Debra Bernard, Eun-Ju Lee, Stella Davies, Elizabeth Smith, Sharon Penko, Sonata Joderle, Lisa Schwartz, Ifigenia Mougianis, Heather Hussey, Brian W Pennarola, Angie Mae Rodday, Deborah K Mayer, Sara J Ratichek, Stella M Davies, Karen L Syrjala, Sunita Patel, Kristin Bingen, Mary Jo Kupst, Lisa Schwartz, Eva C Guinan, Judith H Hibbard, Susan K Parsons, HSCT-CHESS Study, Susan K Parsons, Sara J Ratichek, Ruth Ann Weidner, Norma Terrin, Angie Mae Rodday, Tanya Bernstein, Doris Hernandez, Elizabeth J Pedowitz, Brian W Pennarola, David H Gustafson, Fiona McTavish, Susan Stewart, Deborah Mayer, Eva Guinan, Nicholas Domaney, Janice D Russell, Lisa Brennan, Mary Jo Kupst, Kristin Bingen, Rose Lucey, Sunita Patel, Joseph Rosenthal, Colleen Keilty, Karen L Syrjala, Samantha Artherholt, Allison Stover, Debra Bernard, Eun-Ju Lee, Stella Davies, Elizabeth Smith, Sharon Penko, Sonata Joderle, Lisa Schwartz, Ifigenia Mougianis, Heather Hussey
Abstract
Patient activation, the extension of self-efficacy into self-management, is an essential component of effective chronic care. In pediatric populations, caregiver activation is also needed for proper disease management. This study investigates the relationships between parental activation and other characteristics of parent-child dyads (N = 198) presenting for pediatric hematopoietic stem cell transplant. Parental activation concerning their child's health was assessed using the Parent Patient Activation Measure (Parent-PAM), a modified version of the well-validated Patient Activation Measure (PAM). Using hierarchical linear regression and following the Belsky process model for determining parenting behaviors, a multivariate model was created for parental activation on behalf of their child that showed that the parent's age, rating of their own general health, self-activation, and duration of the child's illness were significantly related to Parent-PAM score. Our findings characterize a potentially distinct form of activation in a parent-child cohort preparing for a demanding clinical course.
Conflict of interest statement
Declaration of Conflicting Interests
The authors declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.
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Source: PubMed