Medical staff opposition to a deep and continuous palliative sedation request under Claeys-Leonetti law

Claire Vitale, Alexandre de Nonneville, Marie Fichaux, Sebastien Salas, Claire Vitale, Alexandre de Nonneville, Marie Fichaux, Sebastien Salas

Abstract

Background: For the year 2018, the French government plans a revision of bioethics laws, including certainly the recent Claeys-Leonetti law introducing the right to deep and continuous sedation at the request of palliative patients and prohibiting euthanasia for end-of-life patients. Because there is no published data on medical staff opposition to a deep and continuous palliative sedation request under Claeys-Leonetti law, we believe this report may give insight into physicians' decision making, into the role of criteria for prudent practice, and thus contribute to the bioethical debate.

Case presentation: We report a 70-year-old patient with squamous cell carcinoma of the hypopharyngeal region, who categorically refused any treatment since one year and asked for deep and continuous palliative sedation until death after attempting suicide. The patient's request was examined and denied by palliative multidisciplinary board, in accordance with by the French Oncology Coordination Centre guidelines. This situation did not fulfil the criteria requested by Claeys-Leonetti law.

Conclusions: As highlighted by the present case-report, patient's expectation regarding palliative sedation can be ambivalent with properly so called euthanasia or assisted suicide. This ambivalent perception was part of the controversy surrounding the parliamentary debate, which is still relevant. This case report supports that deep and continuous sedation under Claeys-Leonetti law need to meet specific criteria defined by the law and documented in the medical files as a safeguard against inappropriate practice. In fact, one of the shortcomings of the current arrangements of Claeys-Leonetti law is a lack of objective medical-based criteria. So it is necessary that scientific peer-reviews papers be published quickly in order to deepen the bioethical debate on the end of life.

Keywords: Claeys-Leonetti; End-of-life; Medical staff opposition; Palliative care; Sedation.

Conflict of interest statement

Ethics approval and consent to participate

Verbal informed consent was obtained from the patient’s support person (daughter in-law) for publication of this case report. In fact, because of the death of the patient we just asked this one. This procedure was approved by the local ethics committee named Comité d’éthique d’Aix Marseille Université.

Consent for publication

Informed consent was obtained from the patient’s support person (daughter in law) for publication of this case report.

Competing interests

The authors declare that they have no competing interests.

Publisher’s Note

Springer Nature remains neutral with regard to jurisdictional claims in published maps and institutional affiliations.

References

    1. LOI n° 2016–87 du 2 février 2016 créant de nouveaux droits en faveur des malades et des personnes en fin de vie. 2016. Available from:
    1. LOI n° 2005–370 du 22 avril 2005 relative aux droits des malades et à la fin de vie. 2005. Available from :
    1. Abarshi E, Rietjens J, Robijn L, Caraceni A, Payne S, Deliens L, et al. International variations in clinical practice guidelines for palliative sedation: a systematic review. BMJ Support Palliat Care. 2017;7(3):223–229.
    1. Cherny NI, Radbruch L. The board of EAPC. European Association for Palliative Care (EAPC) recommended framework for the use of sedation in palliative care. Palliat Med. 2009;23:581–593. doi: 10.1177/0269216309107024..
    1. Boulanger A. Les directives anticipées et le désir de maîtrise de sa fin de vie. Médecine Droit. 2017;2017(146):136–140. doi: 10.1016/j.meddro.2017.09.006.
    1. Prado BL, Gomes DBD, Usón Júnior PLS, Taranto P, França MS, Eiger D, et al. Continuous palliative sedation for patients with advanced cancer at a tertiary care cancer center. BMC Palliat Care. 2018;17:13. doi: 10.1186/s12904-017-0264-2.
    1. de Nonneville A, Marin A, Chabal T, Tuzzolino V, Fichaux M, Salas S. End-of-life practices in France under the Claeys-Leonetti law: report of three cases in the oncology unit. Case Rep Oncol. 2016;9(3):650–654. doi: 10.1159/000450940.
    1. Boulanger A, Chabal T, Fichaux M, Destandau M, La Piana JM, Auquier P, et al. Opinions about the new law on end-of-life issues in a sample of french patients receiving palliative care. BMC Palliat Care. 2017;16(1):7. doi: 10.1186/s12904-016-0174-8.
    1. Raus K, Chambaere K, Sterckx S. Controversies surrounding continuous deep sedation at the end of life: the parliamentary and societal debates in France. BMC Med Ethics. 2016 [cited 2017 May 9];17. Available from: /.
    1. Meyer-Zehnder B, Albisser Schleger H, Tanner S, Schnurrer V, Vogt DR, Reiter-Theil S, et al. how to introduce medical ethics at the bedside - factors influencing the implementation of an ethical decision-making model. BMC Med Ethics. 2017;18:16.
    1. Juth N, Lindblad A, Lynöe N, Sjöstrand M, Helgesson G. European Association for Palliative Care (EAPC) framework for palliative sedation: an ethical discussion. BMC Palliat care. 2010 Sep 13;9:20.
    1. Gurschick L, Mayer DK, Palliative Sedation HLC. An analysis of international guidelines and position statements. Am J Hosp Palliat Care. 2015;32(6):660–671. doi: 10.1177/1049909114533002.
    1. Viganò A, Dorgan M, Bruera E, Suarez-Almazor ME. The relative accuracy of the clinical estimation of the duration of life for patients with end of life cancer. Cancer. 1999;86(1):170–176. doi: 10.1002/(SICI)1097-0142(19990701)86:1<170::AID-CNCR23>;2-S.
    1. Papavasiliou EE, Chambaere K, Deliens L, Brearley S, Payne S, Rietjens J, et al. Physician-reported practices on continuous deep sedation until death: a descriptive and comparative study. Palliat Med. 2014;28(6):491–500. doi: 10.1177/0269216314530768.
    1. Cartwright CM, White BP, Willmott L, Williams G, Parker MH. Palliative care and other physicians’ knowledge, attitudes and practice relating to the law on withholding/withdrawing life-sustaining treatment: survey results. Palliat Med. 2016;30(2):171–179. doi: 10.1177/0269216315587996.

Source: PubMed

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