User Experience of an App-Based Treatment for Stress Urinary Incontinence: Qualitative Interview Study

Ina Asklund, Eva Samuelsson, Katarina Hamberg, Göran Umefjord, Malin Sjöström, Ina Asklund, Eva Samuelsson, Katarina Hamberg, Göran Umefjord, Malin Sjöström

Abstract

Background: Stress urinary incontinence (SUI) affects 10%-39% of women. Its first-line treatment consists of lifestyle interventions and pelvic floor muscle training (PFMT), which can be performed supervised or unsupervised. Health apps are increasing in number and can be used to improve adherence to treatments. We developed the Tät app, which provides a 3-month treatment program with a focus on PFMT for women with SUI. The app treatment was evaluated in a randomized controlled trial, which demonstrated efficacy for improving incontinence symptoms and quality of life. In this qualitative interview study, we investigated participant experiences of the app-based treatment.

Objective: This study aimed to explore women's experiences of using an app-based treatment program for SUI.

Methods: This qualitative study is based on telephone interviews with 15 selected women, with a mean age of 47 years, who had used the app in the previous randomized controlled trial. A semistructured interview guide with open-ended questions was used, and the interviews were transcribed verbatim. Data were analyzed according to the grounded theory.

Results: The results were grouped into three categories: "Something new!" "Keeping motivation up!" and "Good enough?" A core category, "Enabling my independence," was identified. The participants appreciated having a new and modern way to access a treatment program for SUI. The use of new technology seemed to make incontinence treatment feel more prioritized and less embarrassing for the subjects. The closeness to their mobile phone and app features like reminders and visual graphs helped support and motivate the women to carry through the PFMT. The participants felt confident that they could perform the treatment program on their own, even though they expressed some uncertainty about whether they were doing the pelvic floor muscle contractions correctly. They felt that the app-based treatment increased their self-confidence and enabled them to take responsibility for their treatment.

Conclusions: Use of the app-based treatment program for SUI empowered the women in this study and helped them self-manage their incontinence treatment. They appreciated the app as a new tool for supporting their motivation to carry through a slightly challenging PFMT program.

Trial registration: ClinicalTrials.gov NCT01848938; https://ichgcp.net/clinical-trials-registry/NCT01848938 (Archived by WebCite at https://ichgcp.net/clinical-trials-registry/NCT01848938).

Keywords: grounded theory; mobile applications; pelvic floor muscle training; qualitative research; self-management; stress; urinary incontinence; women’s health.

Conflict of interest statement

Conflicts of Interest: None declared.

©Ina Asklund, Eva Samuelsson, Katarina Hamberg, Göran Umefjord, Malin Sjöström. Originally published in the Journal of Medical Internet Research (http://www.jmir.org), 14.03.2019.

Figures

Figure 1
Figure 1
Screenshots of the mobile app Tät version 1.9.
Figure 2
Figure 2
Flow of the randomized controlled study and the present interview study.

References

    1. Haylen BT, de Ridder Dirk, Freeman RM, Swift SE, Berghmans B, Lee J, Monga A, Petri E, Rizk DE, Sand PK, Schaer GN, International Urogynecological Association. International Continence Society An International Urogynecological Association (IUGA)/International Continence Society (ICS) joint report on the terminology for female pelvic floor dysfunction. Neurourol Urodyn. 2010;29(1):4–20. doi: 10.1002/nau.20798.
    1. Abrams P, Cardozo L, Khoury S, Wein A, editors. Incontinence: Fifth Edition. Arnhem, The Netherlands: EAU; 2013. Epidemiology of Urinary Incontinence (UI) other Lower Urinary Tract Symptoms (LUTS), Pelvic Organ Prolapse (POP), Anal Incontinence (AI)
    1. Ebbesen MH, Hunskaar S, Rortveit G, Hannestad YS. Prevalence, incidence and remission of urinary incontinence in women: longitudinal data from the Norwegian HUNT study (EPINCONT) BMC Urol. 2013 May 30;13:27. doi: 10.1186/1471-2490-13-27.
    1. Siddiqui NY, Levin PJ, Phadtare A, Pietrobon R, Ammarell N. Perceptions about female urinary incontinence: a systematic review. Int Urogynecol J. 2014 Jul;25(7):863–71. doi: 10.1007/s00192-013-2276-7.
    1. Lukacz ES, Santiago-Lastra Y, Albo ME, Brubaker L. Urinary Incontinence in Women: A Review. JAMA. 2017 Oct 24;318(16):1592–1604. doi: 10.1001/jama.2017.12137.
    1. Dumoulin C, Cacciari LP, Hay-Smith EJC. Pelvic floor muscle training versus no treatment, or inactive control treatments, for urinary incontinence in women. Cochrane Database Syst Rev. 2018 Dec 04;10:CD005654. doi: 10.1002/14651858.CD005654.pub4.
    1. Dumoulin C, Hunter KF, Moore K, Bradley CS, Burgio KL, Hagen S, Imamura M, Thakar R, Williams K, Chambers T. Conservative management for female urinary incontinence and pelvic organ prolapse review 2013: Summary of the 5th International Consultation on Incontinence. Neurourol Urodyn. 2016 Jan;35(1):15–20. doi: 10.1002/nau.22677.
    1. Dumoulin C, Hay-Smith J, Frawley H, McClurg D, Alewijnse D, Bo K, Burgio K, Chen S, Chiarelli P, Dean S, Hagen S, Herbert J, Mahfooza A, Mair F, Stark D, Van KM, International Continence Society 2014 consensus statement on improving pelvic floor muscle training adherence: International Continence Society 2011 State-of-the-Science Seminar. Neurourol Urodyn. 2015 Sep;34(7):600–5. doi: 10.1002/nau.22796.
    1. Statista. [2018-06-11]. Smartphone user penetration as percentage of total global population from 2014 to 2021
    1. Svenskarna och internet 2017. [2018-06-12]. .
    1. Pew Research Center. [2018-06-12]. Mobile Fact Sheet
    1. Research 2 Guidance. [2018-06-12]. 84,000 health app publishers in 2017 – Newcomers differ in their go-to-market approach
    1. Hamine S, Gerth-Guyette E, Faulx D, Green BB, Ginsburg AS. Impact of mHealth chronic disease management on treatment adherence and patient outcomes: a systematic review. J Med Internet Res. 2015;17(2):e52. doi: 10.2196/jmir.3951.
    1. Birkhoff SD, Smeltzer SC. Perceptions of Smartphone User-Centered Mobile Health Tracking Apps Across Various Chronic Illness Populations: An Integrative Review. J Nurs Scholarsh. 2017 Jul;49(4):371–378. doi: 10.1111/jnu.12298.
    1. . [2019-01-25]. – research into the treatment of urinary incontinence .
    1. Asklund I, Nyström Emma, Sjöström Malin, Umefjord G, Stenlund H, Samuelsson E. Mobile app for treatment of stress urinary incontinence: A randomized controlled trial. Neurourol Urodyn. 2017 Jun;36(5):1369–1376. doi: 10.1002/nau.23116.
    1. Sjöström M, Lindholm L, Samuelsson E. Mobile App for Treatment of Stress Urinary Incontinence: A Cost-Effectiveness Analysis. J Med Internet Res. 2017 May 08;19(5):e154. doi: 10.2196/jmir.7383.
    1. Hoffman V, Söderström L, Samuelsson E. Self-management of stress urinary incontinence via a mobile app: two-year follow-up of a randomized controlled trial. Acta Obstet Gynecol Scand. 2017 Oct;96(10):1180–1187. doi: 10.1111/aogs.13192.
    1. Hamberg K, Johansson E, Lindgren G, Westman G. Scientific rigour in qualitative research--examples from a study of women's health in family practice. Fam Pract. 1994 Jun;11(2):176–81.
    1. Corbin J, Strauss A. Basics of qualitative research. 3rd edition. Techniques and procedures for developing grounded theory. Thousand Oaks: Sage Publications, Inc; 2008.
    1. O'Connor S, Hanlon P, O'Donnell CA, Garcia S, Glanville J, Mair FS. Understanding factors affecting patient and public engagement and recruitment to digital health interventions: a systematic review of qualitative studies. BMC Med Inform Decis Mak. 2016 Sep 15;16(1):120. doi: 10.1186/s12911-016-0359-3.
    1. Casey M, Hayes PS, Glynn F, OLaighin G, Heaney D, Murphy AW, Glynn LG. Patients' experiences of using a smartphone application to increase physical activity: the SMART MOVE qualitative study in primary care. Br J Gen Pract. 2014 Aug;64(625):e500–8. doi: 10.3399/bjgp14X680989.
    1. Björk A, Sjöström M, Johansson EE, Samuelsson E, Umefjord G. Women's experiences of internet-based or postal treatment for stress urinary incontinence. Qual Health Res. 2014 Apr;24(4):484–93. doi: 10.1177/1049732314524486.
    1. Anderson K, Burford O, Emmerton L. Mobile Health Apps to Facilitate Self-Care: A Qualitative Study of User Experiences. PLoS One. 2016;11(5):e0156164. doi: 10.1371/journal.pone.0156164.
    1. Tatara N, Arsand E, Skrøvseth SO, Hartvigsen G. Long-term engagement with a mobile self-management system for people with type 2 diabetes. JMIR Mhealth Uhealth. 2013;1(1):e1. doi: 10.2196/mhealth.2432.
    1. Borello-France D, Burgio KL, Goode PS, Ye W, Weidner AC, Lukacz ES, Jelovsek J, Bradley CS, Schaffer J, Hsu Y, Kenton K, Spino C, Pelvic Floor Disorders Network Adherence to behavioral interventions for stress incontinence: rates, barriers, and predictors. Phys Ther. 2013 Jun;93(6):757–73. doi: 10.2522/ptj.20120072.
    1. Lieffers JRL, Arocha JF, Grindrod K, Hanning RM. Experiences and Perceptions of Adults Accessing Publicly Available Nutrition Behavior-Change Mobile Apps for Weight Management. J Acad Nutr Diet. 2018 Feb;118(2):229–239.e3. doi: 10.1016/j.jand.2017.04.015.
    1. Frøisland DH, Arsand E, Skårderud F. Improving diabetes care for young people with type 1 diabetes through visual learning on mobile phones: mixed-methods study. J Med Internet Res. 2012;14(4):e111. doi: 10.2196/jmir.2155.
    1. French B, Thomas L, Harrison J, Coupe J, Roe B, Booth J, Cheater F, Leathley M, Watkins C, Hay-Smith J, ICONS Project Team and the ICONS Patient‚ Public and Carer Groups Client and clinical staff perceptions of barriers to and enablers of the uptake and delivery of behavioural interventions for urinary incontinence: qualitative evidence synthesis. J Adv Nurs. 2017 Jan;73(1):21–38. doi: 10.1111/jan.13083.
    1. Henderson JW, Wang S, Egger MJ, Masters M, Nygaard I. Can women correctly contract their pelvic floor muscles without formal instruction? Female Pelvic Med Reconstr Surg. 2013;19(1):8–12. doi: 10.1097/SPV.0b013e31827ab9d0.
    1. Dumoulin C, Alewijnse D, Bo K, Hagen S, Stark D, Van Kampen Marijke, Herbert J, Hay-Smith J, Frawley H, McClurg D, Dean S. Pelvic-Floor-Muscle Training Adherence: Tools, Measurements and Strategies-2011 ICS State-of-the-Science Seminar Research Paper II of IV. Neurourol Urodyn. 2015 Sep;34(7):615–21. doi: 10.1002/nau.22794.
    1. Läkemedelsverket. [2019-01-25]. Legislation - Medical Devices
    1. Carroll JK, Moorhead A, Bond R, LeBlanc WG, Petrella RJ, Fiscella K. Who Uses Mobile Phone Health Apps and Does Use Matter? A Secondary Data Analytics Approach. J Med Internet Res. 2017 Apr 19;19(4):e125. doi: 10.2196/jmir.5604.

Source: PubMed

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