Experience of Young Adult Kidney Patients Requiring Haemodialysis (YAoHD)

March 20, 2026 updated by: University of Hertfordshire

To Explore the Experience of Young Adults (16-30) Receiving In-centre Haemodialysis (HD) and Seek to Understand the Barriers to Opportunities for Social Interaction and How we Might Reduce Social Isolation in the Dialysis Setting.

This study has been designed with individuals with lived experience of kidney disease and is a mixed methods study. The aim is to explore experiences of young adults (16-30) receiving haemodialysis in a centre or in a hospital, to understand barriers to opportunities for social interaction and to develop co-produced resources to address social isolation in the dialysis setting.

This aim of this study is to give a voice to young adults who are receiving haemodialysis in a centre or hospital setting.

There will be 3 parts to this study:

  1. What is the support for young adults on haemodialysis. A survey will be sent out to all of the haemodialysis units to find out about support for young adults. Young adults who have had haemodialysis in a unit will be asked about their experiences. We will ask if they feel lonely or social isolated.
  2. To explore the experiences of young adults on haemodialysis. We will have focus groups and interviews with young adults and ask them about experiencing haemodialysis in a unit. Young adults from diverse backgrounds will be recruited. This is to make sure that the recommendations and resources are meeting the needs of all young adults.
  3. Develop recommendation and resources for young adults on haemodialysis. A workshop with young adults and individuals with experience of haemodialysis. Will be held. Resources and recommendations, for improving the experience of young adults on haemodialysis will be developed. Interventions for implementing will be discussed as well. This will be a face-to-face workshop but with if useful people can attend virtually.

This study is an opportunity to help change or improve young adults experience in the future. Having haemodialysis as a young adult shouldn't make a person feel lonely or isolated.

Study Overview

Status

Active, not recruiting

Conditions

Study Type

Observational

Enrollment (Estimated)

92

Contacts and Locations

This section provides the contact details for those conducting the study, and information on where this study is being conducted.

Study Locations

  • United Kingdom
      • Stevenage, United Kingdom, SG1 4AB
        • East and North Hertfordshire Teaching NHS Trust

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

Eligibility Criteria

Ages Eligible for Study

  • Child
  • Adult

Accepts Healthy Volunteers

No

Sampling Method

Non-Probability Sample

Study Population

Young adults (16-30) who have experience of in-centre Haemodialysis

Description

Inclusion Criteria:

  • Young adults (16-30) with kidney failure requiring haemodialysis.
  • Had haemodialysis in a dialysis unit
  • Has capacity to participate.

Exclusion Criteria:

  • Young adults <16 or >30 with kidney failure requiring haemodialysis.
  • No experience of in-centre haemodialysis.
  • No capacity to consent

Study Plan

This section provides details of the study plan, including how the study is designed and what the study is measuring.

How is the study designed?

Design Details

What is the study measuring?

Primary Outcome Measures

Outcome Measure
Time Frame
To assess if young adults with kidney disease experience loneliness
Time Frame: through study completion, an average of 1 year
through study completion, an average of 1 year

Secondary Outcome Measures

Outcome Measure
Time Frame
To identify if young adults with kidney disease requiring haemodialysis undertake self management of their kidney disease
Time Frame: through study completion, an average of 1 year
through study completion, an average of 1 year
To explore feelings around being a young adult on haemodialysis
Time Frame: through study completion, an average of 1 year
through study completion, an average of 1 year
To identify what support there is for young adults on haemodialysis
Time Frame: through study completion, an average of 1 year
through study completion, an average of 1 year

Collaborators and Investigators

This is where you will find people and organizations involved with this study.

Sponsor

University of Hertfordshire

Collaborators

East and North Hertfordshire NHS Trust

Investigators

  • Principal Investigator: Karen Nagalingam, University of Hertfordshire

Study record dates

These dates track the progress of study record and summary results submissions to ClinicalTrials.gov. Study records and reported results are reviewed by the National Library of Medicine (NLM) to make sure they meet specific quality control standards before being posted on the public website.

Study Major Dates

Study Start (Actual)

August 1, 2025

Primary Completion (Estimated)

July 1, 2026

Study Completion (Estimated)

March 31, 2027

Study Registration Dates

First Submitted

December 4, 2025

First Submitted That Met QC Criteria

March 20, 2026

First Posted (Actual)

March 27, 2026

Study Record Updates

Last Update Posted (Actual)

March 27, 2026

Last Update Submitted That Met QC Criteria

March 20, 2026

Last Verified

March 1, 2026

More Information

Terms related to this study

Keywords

Other Study ID Numbers

  • 1806-NHS-HSET-2025

Plan for Individual participant data (IPD)

Plan to Share Individual Participant Data (IPD)?

UNDECIDED

Drug and device information, study documents

Studies a U.S. FDA-regulated drug product

No

Studies a U.S. FDA-regulated device product

No

This information was retrieved directly from the website clinicaltrials.gov without any changes. If you have any requests to change, remove or update your study details, please contact register@clinicaltrials.gov. As soon as a change is implemented on clinicaltrials.gov, this will be updated automatically on our website as well.

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