Multiple sclerosis patients need and want information on exercise promotion from healthcare providers: a qualitative study

Yvonne C Learmonth, Brynn C Adamson, Julia M Balto, Chung-Yi Chiu, Isabel Molina-Guzman, Marcia Finlayson, Barry J Riskin, Robert W Motl, Yvonne C Learmonth, Brynn C Adamson, Julia M Balto, Chung-Yi Chiu, Isabel Molina-Guzman, Marcia Finlayson, Barry J Riskin, Robert W Motl

Abstract

Background: There is growing recognition of the benefits and safety of exercise and its importance in the comprehensive care of persons with multiple sclerosis (MS), yet uptake is low.

Objective: We explored the needs and wants of patients with MS regarding exercise promotion through healthcare providers.

Setting and participants: Participants were adults with MS who had mild-or-moderate disability and a range of exercise levels. All participants lived in the Midwest of the United States.

Methods: Fifty semi-structured interviews were conducted and analysed using thematic analysis. Two themes emerged, namely interactions between patients and healthcare providers and needs and wants of patients.

Results: Analysis of participant accounts illustrate that current exercise promotion by healthcare providers does not meet patient needs and wants. The identified needs and wants of persons with MS involved (i) information and knowledge on the benefits of exercise and exercise prescription, (ii) materials to allow home and community exercise and (iii) tools for initiating and maintaining exercise behaviour.

Discussion and conclusion: Patients with MS frequently interact with healthcare providers and are generally unsatisfied with exercise promotion during interactions. Healthcare providers can address the low uptake of exercise among persons with MS by acting upon the identified unmet needs involving materials, knowledge and behaviour change strategies for exercise.

Keywords: exercise promotion; healthcare communication; multiple sclerosis; qualitative.

© 2016 The Authors Health Expectations Published by John Wiley & Sons Ltd.

Figures

Figure 1
Figure 1
Participant recruitment and number of participants representing each disability and activity group. Note: Disability and activity level based on the self‐reported Expanded Disability Status Scale (SR‐EDSS)23 and the Godin Leisure‐Time Exercise Questionnaire (GLTEQ).24
Figure 2
Figure 2
Key components of exercise promotion in MS through healthcare providers care.

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