Development of the Leiden Independence Questionnaire for Support Staff: a measure of staff behaviour regarding promoting independence of people with intellectual disabilities

J Sandjojo, W A Gebhardt, A M E E Zedlitz, J Hoekman, E Dusseldorp, J A den Haan, A W M Evers, J Sandjojo, W A Gebhardt, A M E E Zedlitz, J Hoekman, E Dusseldorp, J A den Haan, A W M Evers

Abstract

Background: Support staff of adults with intellectual disability (ID) play an important role in promoting independence in home and community settings. However, little is known about the types of behaviours staff should use to promote independence and instruments that assess such behaviour do not yet exist. The aim of this study was therefore to develop and initially validate a reliable questionnaire that measures the degree to which support staff display behaviours that promote independence in people with ID.

Method: The Leiden Independence Questionnaire for Support Staff (LIQSS) was constructed to measure the extent to which support staff promote independence in people with ID. The LIQSS was completed by 142 staff members working with people with ID. For the psychometric evaluation of the LIQSS, a principal component analysis was performed with an oblique rotation in all items. Next, the principal component analysis was performed with a forced three-component extraction, and three sub-scales were computed. To assess internal consistency, Cronbach's α was calculated for each of the sub-scales.

Results: The LIQSS was found to consist of three internally consistent (Cronbach's α was respectively 0.92, 0.79 and 0.76) and meaningful components: (1) communication, agreements and coordination; (2) positive encouragement and tailoring; and (3) supporting independent performance. The final 22 items had factor loadings between 0.44 and 0.91 on their corresponding component and a minimal difference in loading to the other factors of 0.20.

Conclusions: The LIQSS appears to be an instrument with positive face validity and reliability (internal consistency) that assesses the degree to which support staff promote independence in people with ID. To increase the instrument's value for both scientific research and clinical practice, studies should focus on the further validation of the LIQSS.

Keywords: independence; intellectual disabilities; questionnaire; self-management; support staff.

Conflict of interest statement

The authors declare that they have no conflicts of interest.

© 2018 The Authors. Journal of Intellectual Disability Research published by MENCAP and International Association of the Scientific Study of Intellectual and Developmental Disibilities and John Wiley & Sons Ltd.

References

    1. Aldridge J. (2010) Promoting the independence of people with intellectual disabilities. Learning Disability Practice 13, 31–36.
    1. Bartholomew L. K., Parcel G. S., Kok G., Gottlieb N. H. & Fernández M. E. (2011) Planning Health Promotion Programs: An Intervention Mapping Approach. Jossey‐Bass, San Francisco.
    1. Beadle‐Brown J., Hutchinson A. & Whelton B. (2012) Person‐centred active support – increasing choice, promoting independence and reducing challenging behaviour. Journal of Applied Research in Intellectual Disabilities 25, 291–307.
    1. Bond R. J. & Hurst J. (2010) How adults with learning disabilities view living independently. British Journal of Learning Disabilities 38, 286–292.
    1. Browder D. M. & Shapiro E. S. (1985) Applications of self‐management to individuals with severe handicaps: a review. Journal of the Association for Persons with Severe Handicaps 10, 200–208.
    1. Dollar C. A., Fredrick L. D., Alberto P. A. & Luke J. K. (2012) Using simultaneous prompting to teach independent living and leisure skills to adults with severe intellectual disabilities. Research in Developmental Disabilities 33, 189–195.
    1. Dusseljee J. C. E., Rijken P. M., Cardol M., Curfs L. M. G. & Groenewegen P. P. (2011) Participation in daytime activities among people with mild or moderate intellectual disability. Journal of Intellectual Disability Research 55, 4–18.
    1. Evers A. W. M., Gieler U., Hasenbring M. I. & van Middendorp H. (2014) Incorporating biopsychosocial characteristics into personalized healthcare: a clinical approach. Psychotherapy and Psychosomatics 83, 148–157.
    1. Felce D., Bowley C., Baxter H., Jones E., Lowe K. & Emerson E. (2000) The effectiveness of staff support: evaluating active support training using a conditional probability approach. Research in Developmental Disabilities 21, 243–255.
    1. Ferretti R. P., Cavalier A. R., Murphy M. J. & Murphy R. (1993) The self‐management of skills by persons with mental retardation. Research in Developmental Disabilities 14, 189–205.
    1. Field A. (2009) Discovering Statistics Using SPSS. SAGE Publications, London.
    1. French D. P., Cooke R., Mclean N., Williams M. & Sutton S. (2007) What do people think about when they answer theory of planned behaviour questionnaires? A ‘think aloud’ study. Journal of Health Psychology 12, 672–687.
    1. Haigh A., Lee D., Shaw C., Hawthorne M., Chamberlain S., Newman D. W. et al (2013) What things make people with a learning disability happy and satisfied with their lives: an inclusive research project. Journal of Applied Research in Intellectual Disabilities 26, 26–33.
    1. Hale L. A., Trip H. T., Whitehead L. & Conder J. (2011) Self‐management abilities of diabetes in people with an intellectual disability living in New Zealand. Journal of Policy and Practice in Intellectual Disabilities 8, 223–230.
    1. Harchik A. E., Sherman J. A. & Sheldon J. B. (1992) The use of self‐managment procedures by people with developmental disabilities: a brief review. Research in Developmental Disabilities 13, 211–227.
    1. Hastings R. P. (2010) Support staff working in intellectual disability services: the importance of relationships and positive experiences. Journal of Intellectual and Developmental Disability 35, 207–210.
    1. Holtgraves T. (2004) Social desirability and self‐reports: testing models of socially desirable responding. Personality and Social Psychology Bulletin 30, 161–172.
    1. Kuijken N. M. J., Naaldenberg J., Nijhuis‐van der Sanden M. W. & Van Schrojenstein‐Lantman de Valk H. M. J. (2016) Healthy living according to adults with intellectual disabilities: towards tailoring health promotion initiatives. Journal of Intellectual Disability Research 60, 228–241.
    1. Van Laarhoven T. & Van Laarhoven‐Myers T. (2006) Comparison of three video‐based instructional procedures for teaching daily living skills to persons with developmental disabilities. Education and Training in Developmental Disabilities 41, 365–381.
    1. Netherlands Institute for Social Research (2014) Zorg Beter Begrepen. Verklaringen voor de groeiende vraag naar zorg voor mensen met een verstandelijke beperking. Sociaal en Cultureel Planbureau, Den Haag.
    1. Petner‐Arrey J. & Copeland S. R. (2015) ‘You have to care.’ Perceptions of promoting autonomy in support settings for adults with intellectual disability. British Journal of Learning Disabilities 43, 38–48.
    1. Revilla M. A., Saris W. E. & Krosnick J. A. (2014) Choosing the number of categories in agree–disagree scales. Sociological Methods & Research 43, 73–97.
    1. Rose N., Rose J. & Kent S. (2012) Staff training in intellectual disability services: a review of the literature and implications for mental health services provided to individuals with intellectual disability. International Journal of Developmental Disabilities 58, 24–39.
    1. Sandjojo, J. , Eltringham, E. G. , Gebhardt, W. A. , Zedlitz, A. M. E. E. , Hoekman, J. , den Haan, J. A. et al (in preparation) Interventions for promoting self‐management in daily life for people with ID: a systematic review of studies' effectiveness and applied behavioural change techniques.
    1. Sandjojo J., Gebhardt W. A., Zedlitz A. M. E. E., Hoekman J., den Haan J. A. & Evers A. W. M. (in press) Promoting independence of people with intellectual disabilities: a focus group study. Perspectives from people with intellectual disabilities, legal representatives, and support staff. Journal of Policy and Practice in Intellectual Disability, 1–16.
    1. Sandjojo J., Zedlitz A. M. E. E., Gebhardt W. A., Hoekman J., Dusseldorp E., den Haan J. A. et al (2018) Training staff to promote self‐management in people with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities 31, 840–850.
    1. Schalock R. L. (2004) The concept of quality of life: what we know and do not know. Journal of Intellectual Disability Research 48, 203–216.
    1. Sexton E., O'Donovan M. A., Mulryan N., McCallion P. & McCarron M. (2016) Whose quality of life? A comparison of measures of self‐determination and emotional wellbeing in research with older adults with and without intellectual disability. Journal of Intellectual and Developmental Disability 41, 324–337.
    1. Shogren K. A., Wehmeyer M. L., Palmer S. B., Forber‐Pratt A. J., Little T. J. & Lopez S. (2015) Causal agency theory: reconceptualizing a functional model of self‐determination. Education and Training in Autism and Developmental Disabilities 50, 251–263.
    1. Sigafoos J., O'Reilly M., Cannella H., Upadhyaya M., Edrisinha C., Lancioni G. E. et al (2005) Computer‐presented video prompting for teaching microwave oven use to three adults with developmental disabilities. Journal of Behavioral Education 14, 189–201.
    1. Smith K. A., Shepley S. B., Alexander J. L. & Ayres K. M. (2015) The independent use of self‐instructions for the acquisition of untrained multi‐step tasks for individuals with an intellectual disability: a review of the literature. Research in Developmental Disabilities 40, 19–30.
    1. Spriggs A. D., Mims P. J., van Dijk W. & Knight V. F. (2017) Examination of the evidence base for using visual activity schedules with students with intellectual disability. Journal of Special Education 51, 14–26.
    1. Totsika V., Toogood S., Hastings R. P. & Nash S. (2008) Interactive training for active support: perspectives from staff. Journal of Intellectual and Developmental Disability 33, 225–238.
    1. United Nations (2006) Convention of the rights of persons with persons with disabilities. Available at: .
    1. Van de Mortel T. F. (2008) Faking it: social desirability response bias in self‐report research. Australian Journal of Advanced Nursing 25, 40–48.
    1. Vilaseca R., Gràcia M., Beltran F. S., Dalmau M., Alomar E., Adam‐Alcocer A. L. et al (2017) Needs and supports of people with intellectual disability and their families in Catalonia. Journal of Applied Research in Intellectual Disabilities 30, 33–46.
    1. Wehmeyer M. L., Kelchner K. & Richards S. (1996) Essential characteristics of self determined behavior of individuals with mental retardation. American Journal on Mental Retardation 100, 632–642.
    1. Wong P. K. S. & Wong D. F. K. (2008) Enhancing staff attitudes, knowledge and skills in supporting the self‐determination of adults with intellectual disability in residential settings in Hong Kong: a pretest–posttest comparison group design. Journal of Intellectual Disability Research 52, 230–243.
    1. Young A. F., Naji S. & Kroll T. (2012) Support for self‐management of cardiovascular disease by people with learning disabilities. Family Practice 29, 467–475.

Source: PubMed

3
Předplatit