User Involvement in Developing the MYPLAN Mobile Phone Safety Plan App for People in Suicidal Crisis: Case Study

Niels Buus, Anette Juel, Hila Haskelberg, Hanne Frandsen, Jette Louise Skovgaard Larsen, Jo River, Kate Andreasson, Merete Nordentoft, Tracey Davenport, Annette Erlangsen, Niels Buus, Anette Juel, Hila Haskelberg, Hanne Frandsen, Jette Louise Skovgaard Larsen, Jo River, Kate Andreasson, Merete Nordentoft, Tracey Davenport, Annette Erlangsen

Abstract

Background: The effect of safety planning for people in suicidal crisis is not yet determined, but using safety plans to mitigate acute psychological crisis is regarded as best practice. Between 2016 and 2017, Australian and Danish stakeholders were involved in revising and updating the Danish MYPLAN mobile phone safety plan and translating the app into a culturally appropriate version for Australia.

Objective: The objective of this study was to examine the negotiation of stakeholders' suggestions and contributions to the design, function, and content of the MYPLAN app and to characterize significant developments in the emerging user-involving processes.

Methods: We utilized a case study design where 4 focus groups and 5 user-involving workshops in Denmark and Australia were subjected to thematic analysis.

Results: The analyses identified 3 consecutive phases in the extensive development of the app: from phase 1, Suggesting core functions, through phase 2, Refining functions, to phase 3, Negotiating the finish. The user-involving processes continued to prevent closure and challenged researchers and software developers to repeatedly reconsider the app's basic user interface and functionality. It was a limitation that the analysis did not include potentially determinative backstage dimensions of the decision-making process.

Conclusions: The extended user involvement prolonged the development process, but it also allowed for an extensive exploration of different user perspectives and needs.

Keywords: mobile apps; patient participation; primary prevention; self-injurious behavior; suicide, attempted.

Conflict of interest statement

Conflicts of Interest: None declared.

©Niels Buus, Anette Juel, Hila Haskelberg, Hanne Frandsen, Jette Louise Skovgaard Larsen, Jo River, Kate Andreasson, Merete Nordentoft, Tracey Davenport, Annette Erlangsen. Originally published in JMIR Mental Health (http://mental.jmir.org), 16.04.2019.

Figures

Figure 1
Figure 1
Organization of the app development process.

References

    1. Price M, Yuen EK, Goetter EM, Herbert JD, Forman EM, Acierno R, Ruggiero KJ. mHealth: a mechanism to deliver more accessible, more effective mental health care. Clin Psychol Psychother. 2014;21(5):427–36. doi: 10.1002/cpp.1855.
    1. Luxton DD, McCann RA, Bush NE, Mishkind MC, Reger GM. mHealth for mental health: Integrating smartphone technology in behavioral healthcare. Professional Psychology: Research and Practice. 2011 Dec;42(6):505–12. doi: 10.1037/a0024485.
    1. Grundy Q, Parker L, Raven M, Gillies D, Mintzes B, Jureidini J, Bero L. The University of Sydney. Sydney: Australian Communications Consumer Action Network; 2017. [2019-03-27]. Finding peace of mind: Navigating the marketplace of mental health apps .
    1. Archangeli C, Marti FA, Wobga-Pasiah EA, Zima B. Mobile health interventions for psychiatric conditions in children: a scoping review. Child Adolesc Psychiatr Clin N Am. 2017 Dec;26(1):13–31. doi: 10.1016/j.chc.2016.07.009.
    1. Donker T, Petrie K, Proudfoot J, Clarke J, Birch MR, Christensen H. Smartphones for smarter delivery of mental health programs: a systematic review. J Med Internet Res. 2013;15(11):e247. doi: 10.2196/jmir.2791.
    1. Larsen ME, Nicholas J, Christensen H. A systematic assessment of smartphone tools for suicide prevention. PLoS One. 2016;11(4):e0152285. doi: 10.1371/journal.pone.0152285.
    1. Torous J, Andersson G, Bertagnoli A, Christensen H, Cuijpers P, Firth J, Haim A, Hsin H, Hollis C, Lewis S, Mohr DC, Pratap A, Roux S, Sherrill J, Arean PA. Towards a consensus around standards for smartphone apps and digital mental health. World Psychiatry. 2019 Feb;18(1):97–98. doi: 10.1002/wps.20592.
    1. Gysin-Maillart A, Schwab S, Soravia L, Megert M, Michel K. A novel brief therapy for patients who attempt suicide: a 24-months follow-Up randomized controlled study of the Attempted Suicide Short Intervention Program (ASSIP) PLoS Med. 2016 Mar;13(3):e1001968. doi: 10.1371/journal.pmed.1001968.
    1. Stanley B, Brown G, Brent DA, Wells K, Poling K, Curry J, Kennard BD, Wagner A, Cwik MF, Klomek AB, Goldstein T, Vitiello B, Barnett S, Daniel S, Hughes J. Cognitive-behavioral therapy for suicide prevention (CBT-SP): treatment model, feasibility, and acceptability. J Am Acad Child Adolesc Psychiatry. 2009 Oct;48(10):1005–13. doi: 10.1097/CHI.0b013e3181b5dbfe.
    1. Boudreaux ED, Miller I, Goldstein AB, Sullivan AF, Allen MH, Manton AP, Arias SA, Camargo CA. The Emergency Department Safety Assessment and Follow-up Evaluation (ED-SAFE): method and design considerations. Contemp Clin Trials. 2013 Sep;36(1):14–24. doi: 10.1016/j.cct.2013.05.008.
    1. Stanley B, Brown GK. Safety planning intervention: a brief intervention to mitigate suicide risk. Cogn Behav Pract. 2012 May;19(2):256–264. doi: 10.1016/j.cbpra.2011.01.001.
    1. Gamarra JM, Luciano MT, Gradus JL, Wiltsey Stirman S. Assessing variability and implementation fidelity of suicide prevention safety planning in a regional VA healthcare system. Crisis. 2015;36(6):433–9. doi: 10.1027/0227-5910/a000345.
    1. Bryan CJ, Mintz J, Clemans TA, Leeson B, Burch TS, Williams SR, Maney E, Rudd MD. Effect of crisis response planning vs contracts for safety on suicide risk in US army soldiers: a randomized clinical trial. J Affect Disord. 2017 Dec 01;212:64–72. doi: 10.1016/j.jad.2017.01.028.
    1. O'Toole MS, Arendt MB, Pedersen CM. Testing an app-assisted treatment for suicide prevention in a randomized controlled trial: effects on suicide risk and depression. Behav Ther. 2019 Dec;50(2):421–9. doi: 10.1016/j.beth.2018.07.007.
    1. Tighe J, Shand F, Ridani R, Mackinnon A, De La Mata L, Christensen H. Ibobbly mobile health intervention for suicide prevention in Australian indigenous youth: a pilot randomised controlled trial. BMJ Open. 2017 Dec 27;7(1):e013518. doi: 10.1136/bmjopen-2016-013518.
    1. Aguirre RT, McCoy MK, Roan M. Development Guidelines from a Study of Suicide Prevention Mobile Applications (Apps) J Technol Hum Serv. 2013 Jul;31(3):269–93. doi: 10.1080/15228835.2013.814750.
    1. Nicholas J, Boydell K, Christensen H. mHealth in psychiatry: time for methodological change. Evid Based Ment Health. 2016 May;19(2):33–4. doi: 10.1136/eb-2015-102278.
    1. Larsen LJ, Frandsen H, Erlangsen A. MYPLAN-a mobile phone application for supporting people at risk of suicide. Crisis. 2016 May;37(3):236–40. doi: 10.1027/0227-5910/a000371.
    1. Buus N, Erlangsen A, River J, Andreasson K, Frandsen H, Larsen J. Stakeholder perspectives on using and developing the MYPLAN suicide prevention mobile phone application: a focus group study. Arch Suicide Res Oct. 2018;8:1–16. doi: 10.1080/13811118.2018.1489319.
    1. Tang PC, Smith MD, Adler-Milstein J, Delbanco T, Downs SJ, Ness DL, Parker RN, Sands DZ. National Academy of Sciences. 2016. [2019-03-27]. The Democratization of Health Care .
    1. Harper Shehadeh M, Heim E, Chowdhary N, Maercker A, Albanese E. Cultural adaptation of minimally guided interventions for common mental disorders: a systematic review and meta-analysis. JMIR Ment Health. 2016 Sep 26;3(3):e44. doi: 10.2196/mental.5776.
    1. van Spijker BA, Batterham PJ, Calear AL, Farrer L, Christensen H, Reynolds J, Kerkhof AJ. The suicidal ideation attributes scale (SIDAS): community-based validation study of a new scale for the measurement of suicidal ideation. Suicide Life Threat Behav. 2014 Aug;44(4):408–19. doi: 10.1111/sltb.12084.
    1. Thomas G. How to Do Your Case Study. London: Sage Publications; 2011.
    1. Coffey A, Atkinson P. Making Sense of Qualitative Data: Complementary Research Strategies (And Social Thought) Thousand Oaks: Sage; 1996.
    1. Crabtree BF, Miller WL. Clinical research: a multimethod typology and qualitative roadmap. In: Miller WL, Crabtree BF, editors. Doing Qualitative Research (Research Methods for Primary Care) Thousand Oaks: Sage; 1999. pp. 3–30.
    1. Karsten A. Participation models. Citizens, Youth, Online. A chase through the maze. 2 edition. N/A: N/A; 2012.
    1. Hanley B, Bradburn J, Barnes M, Evans C, Goodare H, Kelson M, Kent A, Oliver S, Thomas S, Wallcraft J. Involving the Public in NHS, Public Health, and Social Care Research: Briefing Notes for Researchers (2nd edition) Hoboken: Wiley; 2004.
    1. Kenny R, Dooley B, Fitzgerald A. Developing mental health mobile apps: exploring adolescents' perspectives. Health Informatics J. 2016 Jun;22(2):265–75. doi: 10.1177/1460458214555041.
    1. Hetrick SE, Robinson J, Burge E, Blandon R, Mobilio B, Rice SM, Simmons MB, Alvarez-Jimenez M, Goodrich S, Davey CG. Youth codesign of a mobile phone app to facilitate self-monitoring and management of mood symptoms in young people with major depression, suicidal ideation, and self-harm. JMIR Ment Health. 2018 Jan 23;5(1):e9. doi: 10.2196/mental.9041.
    1. Hawton K, Witt KG, Taylor Salisbury TL, Arensman E, Gunnell D, Hazell P, Townsend E, van Heeringen K. Psychosocial interventions for self-harm in adults. Cochrane Database Syst Rev. 2016 May 12;(5):CD012189. doi: 10.1002/14651858.CD012189.
    1. Andreasson K, Krogh J, Bech P, Frandsen H, Buus N, Stanley B, Kerkhof A, Nordentoft M, Erlangsen A. MYPLAN -mobile phone application to manage crisis of persons at risk of suicide: study protocol for a randomized controlled trial. Trials. 2017 Dec 11;18(1):171. doi: 10.1186/s13063-017-1876-9.

Source: PubMed

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