Online and Recovery-Oriented Support Groups Facilitated by Peer Support Workers in Times of COVID-19: Protocol for a Feasibility Pre-Post Study

Jean-Francois Pelletier, Janie Houle, Marie-Hélène Goulet, Robert-Paul Juster, Charles-Édouard Giguère, Jonathan Bordet, Isabelle Hénault, Alain Lesage, Luigi De Benedictis, Frédéric Denis, Roger Ng, Jean-Francois Pelletier, Janie Houle, Marie-Hélène Goulet, Robert-Paul Juster, Charles-Édouard Giguère, Jonathan Bordet, Isabelle Hénault, Alain Lesage, Luigi De Benedictis, Frédéric Denis, Roger Ng

Abstract

Background: In times of pandemics, social distancing, isolation, and quarantine have precipitated depression, anxiety, and substance misuse. Scientific literature suggests that patients living with mental health problems or illnesses (MHPIs) who interact with peer support workers (PSWs) experience not only the empathy and connectedness that comes from similar life experiences but also feel hope in the possibility of recovery. So far, it is the effect of mental health teams or programs with PSWs that has been evaluated.

Objective: This paper presents the protocol for a web-based intervention facilitated by PSWs. The five principal research questions are whether this intervention will have an impact in terms of (Q1) personal-civic recovery and (Q2) clinical recovery, (Q3) how these recovery potentials can be impacted by the COVID-19 pandemic, (Q4) how the lived experience of persons in recovery can be mobilized to cope with such a situation, and (Q5) how sex and gender considerations can be taken into account for the pairing of PSWs with service users beyond considerations based solely on psychiatric diagnoses or specific MHPIs. This will help us assess the impact of PSWs in this setting.

Methods: PSWs will lead a typical informal peer support group within the larger context of online peer support groups, focusing on personal-civic recovery. They will be scripted with a fixed, predetermined duration (a series of 10 weekly 90-minute online workshops). There will be 2 experimental subgroups-patients diagnosed with (1) psychotic disorders (n=10) and (2) anxiety or mood disorders (n=10)-compared to a control group (n=10). Random assignment to the intervention and control arms will be conducted using a 2:1 ratio. Several instruments will be used to assess clinical recovery (eg, the Recovery Assessment Scale, the Citizenship Measure questionnaire). The COVID-19 Stress Scales will be used to assess effects in terms of clinical recovery and stress- or anxiety-related responses to COVID-19. Changes will be compared between groups from baseline to endpoint in the intervention and control groups using the Student paired sample t test.

Results: This pilot study was funded in March 2020. The protocol was approved on June 16, 2020, by the Research Ethics Committees of the Montreal Mental Health University Institute. Recruitment took place during the months of July and August, and results are expected in December 2020.

Conclusions: Study results will provide reliable evidence on the effectiveness of a web-based intervention provided by PSWs. The investigators, alongside key decision makers and patient partners, will ensure knowledge translation throughout, and our massive open online course (MOOC), The Fundamentals of Recovery, will be updated with the evidence and new knowledge generated by this feasibility study.

Trial registration: ClinicalTrials.gov NCT04445324; https://ichgcp.net/clinical-trials-registry/NCT04445324.

International registered report identifier (irrid): PRR1-10.2196/22500.

Keywords: COVID-19; COVID-19 Stress Scales; clinical recovery; feasibility; internet-based peer support groups; intervention; mental health; peer support; peer support workers; personal-civic recovery; recovery.

Conflict of interest statement

Conflicts of Interest: None declared.

©Jean-Francois Pelletier, Janie Houle, Marie-Hélène Goulet, Robert-Paul Juster, Charles-Édouard Giguère, Jonathan Bordet, Isabelle Hénault, Alain Lesage, Luigi De Benedictis, Frédéric Denis, Roger Ng. Originally published in JMIR Research Protocols (http://www.researchprotocols.org), 18.12.2020.

Figures

Figure 1
Figure 1
Cumulative total of MOOC (massive open online course) registrants during the first 20 weeks of 2020. WHO: World Health Organization.
Figure 2
Figure 2
Weekly variations in new registrants to the MOOC (massive open online course) during the first 20 weeks of 2020. WHO: World Health Organization.

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Source: PubMed

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