Feasibility of Using Telehealth to Deliver the "Powerful Tools for Caregivers" Program

Katrina M Serwe, Gayle I Hersch, Karen Pancheri, Katrina M Serwe, Gayle I Hersch, Karen Pancheri

Abstract

Caregivers report poorer health and wellness than the general population and identify numerous barriers to their attending programs to improve health and wellness. The purpose of this study was to explore the feasibility of employing a telehealth delivery method to enhance access to caregiver wellness programs. This article presents the quantitative results of a mixed methods feasibility study of translating the Powerful Tools for Caregivers (PTC) program to a telehealth delivery format. Four unpaid family caregivers of older adults participated in a telehealth delivered PTC program, a wellness program with established outcomes in the in-person environment. The program was delivered using synchronous videoconferencing methods. High class attendance and a high median total average Telehealth Usability Questionnaire score of 5.7 indicated the telehealth delivery method was feasible. This research suggests that telehealth is a feasible delivery format for a caregiver program traditionally delivered in an in-person format.

Keywords: Caregivers; Feasibility studies; Health promotion; Telehealth; Telemedicine; Usability; Wellness.

References

    1. Bank AL, Arguelles S, Rubert M, Eisdorfer C, Czaja S. The value of telephone support groups among ethnically diverse caregivers of persons with dementia. Gerontologist. 2006;46:134–138.
    1. Boise L, Congleton L, Shannon K. Empowering family caregivers: The powerful tools for caregiving program. Educational Gerontology. 2005;31:573–586. doi: 10.1080/03601270590962523.
    1. Brown EL, Ruggiano N, Page TF, Roberts L, Hristidis V, Whiteman KL, Castro J. CareHeros web and android apps for dementia caregivers. Research in Gerontological Nursing. 2016;9:193–203. doi: 10.3928/19404921-20160229-02.
    1. Burton LC, Zdaniuk B, Schulz R, Jackson S, Hirsch C. Transitions in spousal caregiving. Gerontologist. 2003;43:230–241.
    1. Chiu TM, Eysenbach G. Stages of use: Consideration, initiation, utilization, and outcomes of an internet-mediated intervention. BMC Medical Informatics and Decision Making. 2010;10(73):1–11. doi: 10.1186/1472-6947-10-73.
    1. Chiu T, Marziali E, Colantonio A, Carswell A, Gruneir M, Tang M, Eysenbach G. Internet-based caregiver support for Chinese Canadians taking care of a family member with Alzheimer disease and related dementia. Canadian Journal on Aging. 2009;28:323–336. doi: 10.1017/S0714980809990158.
    1. Demiris G, Oliver D, Courtney KL, Porock D. Use of technology as a support mechanism for caregivers of hospice patients. Journal of Palliative Care. 2005;21:303–309.
    1. Demiris G, Oliver DP, Wittenberg-Lyles E, Washington K. Use of videophones to deliver a cognitive-behavioural therapy to hospice caregivers. Journal of Telemedicine & Telecare. 2011;17:142–145. doi: 10.1258/jtt.2010.100503.
    1. Eisdorfer C, Czaja SJ, Loewenstein DA, Rubert MP, Argüelles S, Mitrani VB, Szapocznik J. The effect of a family therapy and technology-based intervention on caregiver depression. Gerontologist. 2003;43:521–531.
    1. Faett BL, Brienza DM, Geyer MJ, Hoffman LA. Teaching self-management skills in persons with chronic lower limb swelling and limited mobility: Evidence for usability of telerehabilitation. International Journal of Telerehabilitation. 2013;5(1):17–26. doi: 10.5195/ijt.2013.6114.
    1. Gallant MP, Connell CM. Predictors of decreased self-care among spouse caregivers of older adults with dementing illnesses. Journal of Aging and Health. 1997;9:373–395.
    1. Gallienne RL, Moore SM, Brennan PF. Alzheimer’s caregivers psychosocial support via computer network. Journal of Gerontological Nursing. 1993;19:15–22.
    1. Glueckauf RL, Ketterson TU, Loomis JS, Dages P. Online support and education for dementia caregivers: Overview, utilization, and initial program evaluation. Telemedicine Journal and E-Health. 2004;10:223–232.
    1. Griffiths PC, Davis N, Lin J, Wachtel D, Ward S, Painter J, … Johnson TM. Using telehealth technology to support family caregivers: Description of a pilot intervention and preliminary results. Physical & Occupational Therapy in Geriatrics. 2010;28:307–320. doi: 10.3109/02703181.2010.482729.
    1. Hanson EJ, Clarke A. The role of telematics in assisting family carers and frail older people at home. Health and Social Care in the Community. 2000;8:129–137.
    1. Kuhn D, Fulton BR, Edelman P. Powerful tools for caregivers: Improving self-care and self-efficacy of family caregivers. Alzheimer’s Care Quarterly. 2003;4:189–200.
    1. Mahoney DF, Tarlow B, Jones RN, Tennstedt S, Kasten L. Factors affecting the use of a telephone-based intervention for caregivers of people with Alzheimer’s disease. Journal of Telemedicine and Telecare. 2001;7:139–148.
    1. Marziali E, Donahue P. Caring for others: Internet video-conferencing group intervention for family caregivers of older adults with neurodegenerative disease. Gerontologist. 2006;46:398–403.
    1. National Academies of Sciences, Engineering Medicine. Families caring for an aging America. Washington, DC: The National Academies Press; 2016.
    1. National Alliance for Caregiving. Caregiving in the U.S. 2009. 2009. Nov, Retrieved from .
    1. National Alliance for Caregiving& AARP Public Policy Institute. Executive summary: Caregiving in the U.S. 2015. Jun, Retrieved from .
    1. O’Connell ME, Crossley M, Cammer A, Morgan D, Allingham W, Cheavins B, … Morgan E. Development and evaluation of a telehealth videoconferenced support group for rural spouses of individuals diagnosed with atypical early-onset dementias. Dementia. 2014;13:382–395. doi: 10.1177/1471301212474143.
    1. Parmanto B, Pulantara IW, Schutte JL, Saptono A, McCue MP. An integrated telehealth system for remote administration of an adult autism assessment. International Journal of Telerehabilitation. 2013;19(2):88–94. doi: 10.1089/tmj.2012.0104.
    1. Parmanto B, Lewis AN, Graham KM, Bertolet MH. Development of the telehealth usability questionnaire (TUQ) International Journal of Telerehabilitation. 2016;8(1):3–10. doi: 10.5195/ijt.2016.6196.
    1. Powerful Tools for Caregivers. The Caregiver Helpbook. 3rd ed. USA: Powerful Tools for Caregivers; 2013.
    1. Reinhard SC, Feinberg LF, Choula R, Houser A. Valuing the invaluable: 2015 update, undeniable progress, but big gaps remain (AARP Public Policy Institute Report) 2015. Retrieved from .
    1. Savolainen L, Hanson E, Magnusson L, Gustavsson T. An internet-based videoconferencing system for supporting frail elderly people and their carers. Journal of Telemedicine & Telecare. 2008;14:79–82. doi: 10.1258/jtt.2007.070601.
    1. Savundranayagam MY, Brintnall-Peterson M. Testing self-efficacy as a pathway that supports self-care among family caregivers in a psychoeducational intervention. Journal of Family Social Work. 2010;13:149–162. doi: 10.1080/10522150903487107.
    1. Savundranayagam MY, Montgomery RJV, Kosloski K, Little TD. Impact of a psychoeducational program on three types of caregiver burden among spouses. International Journal of Geriatric Psychiatry. 2011;26:388–396. doi: 10.1002/gps.2538.
    1. Selwyn N, Gorard S, Furlong J, Madden L. Older adults’ use of information and communications technology in everyday life. Ageing and Society. 2003;23:561–582. doi: 10.1017/S0144686X03001302.
    1. Serwe KM. Doctoral dissertation. 2016. Promoting caregiver wellness through telehealth: An occupational therapy perspective. Retrieved from ProQuest (Accession No. 10244047)
    1. Serwe KM, Hersch GI, Davel Pickens N, Pancheri K. Caregiver perceptions of a telehealth wellness program. American Journal of Occupational Therapy. 71(4) (in press)
    1. Tremont G, Davis JD, Bishop DS, Fortinsky RH. Telephone-delivered psychosocial intervention reduces burden in dementia caregivers. Dementia. 2008;7:503–520. doi: 10.1177/1471301208096632.
    1. University of Pittsburgh School of Health and Rehabilitation Sciences. Telehealth Usability Questionnaire (TUQ) [Measurement instrument] 2012. Retrieved from .
    1. VSee. HIPAA and VSee video conferencing. 2017a. Retrieved from .
    1. VSee. Maximum video call participants. 2017b. Retrieved from .
    1. Won Won C, Fitts SS, Favaro S, Olsen P, Phelan EA. Community-based “powerful tools” intervention enhances health of caregivers. Archives Gerontology and Geriatrics. 2007;46:89–100. doi: 10.1016/j.archger.2007.02.009.

Source: PubMed

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