- ICH GCP
- US Clinical Trials Registry
- Clinical Trial NCT01465061
A Survey on the Role and Benefits of Online Social Networks on Filipino Patients With Psoriasis
November 1, 2011 updated by: Charlene U. Ang-Tiu, University of the Philippines
With the rise of usage of the internet, online social networks have recently been gaining popularity.
Joining these groups can be beneficial to patients with chronic medical illness, such as psoriasis.This was a cross-sectional online survey of psoriasis patients in the Philippines who are members of online support groups.
The survey was conducted for a period of three months.The purpose of the research project was to describe the demographics, disease characteristics, activities and benefits of online support groups to Filipino patients with psoriasis.
The extent to which members experience empowering processes and outcomes was also evaluated.
Study Overview
Study Type
Observational
Enrollment (Actual)
124
Participation Criteria
Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.
Eligibility Criteria
Ages Eligible for Study
- ADULT
- OLDER_ADULT
- CHILD
Accepts Healthy Volunteers
Yes
Genders Eligible for Study
All
Sampling Method
Non-Probability Sample
Study Population
Members of virtual psoriasis local support networks (Yahoo-based Psoriasis Philippine Online Community, Inc. and Facebook Psoriasis Online Support Group) will be the main subjects of the study.
Description
Inclusion Criteria:
- diagnosis of psoriasis
- individuals who are willing to complete the online survey
- proficiency in English
- membership in an online psoriasis support network
Exclusion Criteria:
- nonmembers
- unwilling to participate in the study
Study Plan
This section provides details of the study plan, including how the study is designed and what the study is measuring.
How is the study designed?
Design Details
Cohorts and Interventions
Group / Cohort |
Intervention / Treatment |
---|---|
Online support user
|
Joining online support group
Other Names:
|
What is the study measuring?
Primary Outcome Measures
Outcome Measure |
Measure Description |
Time Frame |
---|---|---|
Demographic profile of online support users
Time Frame: 3 months
|
The sociodemographic profile of the respondents such as age (mean, range), sex, civil status, level of formal education, employment status were described.
|
3 months
|
Disease characteristics of online support users
Time Frame: 3 months
|
The overall health status (poor, average, good), psoriasis severity (mild, moderate, severe), duration of illness of online support groups were evaluated.
|
3 months
|
Secondary Outcome Measures
Outcome Measure |
Measure Description |
Time Frame |
---|---|---|
Activities performed and extent of participation of online support users
Time Frame: 3 months
|
Participants were also asked regarding their attitudes and experiences with online communities, length of use, log-on frequency and nature of online activities.
|
3 months
|
Empowering processes and outcomes experienced by online support group members
Time Frame: 3 months
|
The frequency with which empowering processes (exchange information, find recognition, share experiences, encounter emotional support, help others) occurred were measured on a 3-point scale (1-seldom to never, 2-sometimes, 3-often).
The outcomes experienced (are better informed, feel more confident in relationship with physician, have improved acceptance, feel more confident with treatment, have enhanced social well-being, have increased optimism and control over the future, have enhanced self-esteem) were assessed on a 3-point scale (1-disagree, 2-neither agree nor disagree, 3-agree).
|
3 months
|
Correlation of variables
Time Frame: 3 months
|
Intervariable correlation (overall health status/psoriasis severity with frequency/duration of usage, educational level/employment status with frequency of usage) were also be assessed for significance.
|
3 months
|
Collaborators and Investigators
This is where you will find people and organizations involved with this study.
Sponsor
Collaborators
Investigators
- Principal Investigator: Charlene U Ang-Tiu, MD, University of the Philippines-Philippine General Hospital Section of Dermatology
Study record dates
These dates track the progress of study record and summary results submissions to ClinicalTrials.gov. Study records and reported results are reviewed by the National Library of Medicine (NLM) to make sure they meet specific quality control standards before being posted on the public website.
Study Major Dates
Study Start
February 1, 2011
Primary Completion (ACTUAL)
June 1, 2011
Study Completion (ACTUAL)
August 1, 2011
Study Registration Dates
First Submitted
October 26, 2011
First Submitted That Met QC Criteria
November 1, 2011
First Posted (ESTIMATE)
November 4, 2011
Study Record Updates
Last Update Posted (ESTIMATE)
November 4, 2011
Last Update Submitted That Met QC Criteria
November 1, 2011
Last Verified
November 1, 2011
More Information
Terms related to this study
Keywords
Additional Relevant MeSH Terms
Other Study ID Numbers
- MED01032011
This information was retrieved directly from the website clinicaltrials.gov without any changes. If you have any requests to change, remove or update your study details, please contact register@clinicaltrials.gov. As soon as a change is implemented on clinicaltrials.gov, this will be updated automatically on our website as well.
Clinical Trials on Psoriasis
-
ProgenaBiomeRecruitingPsoriasis | Psoriasis Vulgaris | Psoriasis of Scalp | Psoriatic Plaque | Psoriasis Universalis | Psoriasis Face | Psoriasis Nail | Psoriasis Diffusa | Psoriasis Punctata | Psoriasis Palmaris | Psoriasis Circinata | Psoriasis Annularis | Psoriasis Genital | Psoriasis GeographicaUnited States
-
Clin4allRecruitingPsoriasis of Scalp | Psoriasis Nail | Psoriasis Palmaris | Psoriasis Genital | Psoriasis PlantarisFrance
-
Innovaderm Research Inc.CompletedScalp Psoriasis | Pustular Palmo-plantar Psoriasis | Non-pustular Palmo-plantar Psoriasis | Elbow Psoriasis | Lower Leg PsoriasisCanada
-
AmgenCompletedPsoriasis-Type Psoriasis | Plaque-Type PsoriasisUnited States
-
Centre of Evidence of the French Society of DermatologyRecruitingPsoriasis | Psoriasis Vulgaris | Psoriasis of Scalp | Psoriatic Plaque | Psoriasis Universalis | Psoriasis Palmaris | Psoriatic Erythroderma | Psoriatic Nail | Psoriasis Guttate | Psoriasis Inverse | Psoriasis PustularFrance
-
UCB Biopharma S.P.R.L.CompletedModerate to Severe Psoriasis | Generalized Pustular Psoriasis and Erythrodermic PsoriasisJapan
-
Janssen Pharmaceutical K.K.RecruitingGeneralized Pustular Psoriasis | Erythrodermic PsoriasisJapan
-
Eli Lilly and CompanyCompletedGeneralized Pustular Psoriasis | Erythrodermic PsoriasisJapan
-
TakedaNot yet recruitingGeneralized Pustular Psoriasis | Erythrodermic Psoriasis
-
Shanghai Huaota Biopharmaceutical Co., Ltd.RecruitingGeneralized Pustular Psoriasis (GPP)China
Clinical Trials on Online support group
-
Temple UniversityCancer Support Community, Research and Training Institute, PhiladelphiaCompletedBreast NeoplasmsUnited States
-
Dokuz Eylul UniversityThe Scientific and Technological Research Council of TurkeyRecruiting
-
British Columbia Cancer AgencyUniversity of British Columbia; McMaster University; University of Calgary; Tom... and other collaboratorsUnknown
-
FHI 360CompletedHIV/AIDS | Medication Adherence | Health Behavior | Adolescent BehaviorNigeria
-
Columbia UniversityCompletedCOVID-19 | MS (Multiple Sclerosis) | Support GroupsUnited States
-
University of JyvaskylaAcademy of FinlandCompleted
-
University of Jyvaskylathe Finnish Cultural Foundation, Central Finland Regional FundCompleted
-
University College, LondonUnknown
-
Memorial Sloan Kettering Cancer CenterCompletedMesotheliomaUnited States
-
Women's College HospitalSunnybrook Health Sciences Centre; Centre for Addiction and Mental Health; University...Completed