Parental Project Amongst 93 Patients With Turner Syndrome (TURNER)

January 7, 2026 updated by: University Hospital, Strasbourg, France
The aim is to describe the parental project, spontaneous pregnancies and pregnancies resulting from egg donation or adoption in women diagnosed with Turner syndrome treated at Strasbourg University Hospitals.

Study Overview

Status

Recruiting

Conditions

Study Type

Observational

Enrollment (Estimated)

93

Contacts and Locations

This section provides the contact details for those conducting the study, and information on where this study is being conducted.

Study Contact

Study Locations

  • France
      • Strasbourg, France, 67091
        • Recruiting
        • Service d'Endocrinologie, Diabétologie, Nutrition - CHU de Strasbourg - France
        • Contact:
        • Principal Investigator:
          • Thibault BAHOUGNE, MD
        • Sub-Investigator:
          • Nathalie JEANDIDIE, MD
        • Sub-Investigator:
          • Olivier PIRRELLO, MD

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

Eligibility Criteria

Ages Eligible for Study

  • Adult

Accepts Healthy Volunteers

No

Sampling Method

Non-Probability Sample

Study Population

Adult women having presented with Turner syndrome confirmed by karyotyping and having expressed a desire to become a parent during consultation

Description

Inclusion Criteria:

  • Adult women (≥18 years old)
  • Treated at Strasbourg University Hospitals for a parental project during the period from January 1, 2009, to December 31, 2019
  • Having presented with Turner syndrome confirmed by karyotyping
  • Having expressed a desire to become a parent during consultation

Exclusion Criteria:

  • No desire to become a parent or missing data
  • Missing data

Study Plan

This section provides details of the study plan, including how the study is designed and what the study is measuring.

How is the study designed?

Design Details

What is the study measuring?

Primary Outcome Measures

Outcome Measure
Measure Description
Time Frame
Success rate of the parental project among patients with Turner syndrome who expressed a desire to become parents
Time Frame: Up to 24 months

Success rate of the parental project among patients with Turner syndrome who expressed a desire to become parents:

Example:

If 10 women try to have a child and 3 succeed, the success rate is 30%.
Up to 24 months

Collaborators and Investigators

This is where you will find people and organizations involved with this study.

Sponsor

University Hospital, Strasbourg, France

Study record dates

These dates track the progress of study record and summary results submissions to ClinicalTrials.gov. Study records and reported results are reviewed by the National Library of Medicine (NLM) to make sure they meet specific quality control standards before being posted on the public website.

Study Major Dates

Study Start (Actual)

November 18, 2025

Primary Completion (Estimated)

November 1, 2027

Study Completion (Estimated)

November 18, 2027

Study Registration Dates

First Submitted

January 7, 2026

First Submitted That Met QC Criteria

January 7, 2026

First Posted (Actual)

January 15, 2026

Study Record Updates

Last Update Posted (Actual)

January 15, 2026

Last Update Submitted That Met QC Criteria

January 7, 2026

Last Verified

January 1, 2026

More Information

Terms related to this study

Keywords

Additional Relevant MeSH Terms

Other Study ID Numbers

  • 9945 (Ohio State University Medical Center)

Drug and device information, study documents

Studies a U.S. FDA-regulated drug product

No

Studies a U.S. FDA-regulated device product

No

This information was retrieved directly from the website clinicaltrials.gov without any changes. If you have any requests to change, remove or update your study details, please contact register@clinicaltrials.gov. As soon as a change is implemented on clinicaltrials.gov, this will be updated automatically on our website as well.

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