Palliative and Supportive Care to Help People With Arthritis to Live Well (ENRICH) (ENRICH)

Exploring Perspectives on Palliative and Supportive Care, to Inform Recommendations to Help People Live Well With Inflammatory Arthritis Throughout the Disease Course (ENRICH)

Palliative Care (PC) focuses on maximising quality of life and care for patients and their families in the last 1000 days of life. Supportive Care (SC) is provided earlier in life for people with a long-term health condition.

People living with inflammatory arthritis, (such as rheumatoid arthritis) can experience ongoing pain, stiffness, limitations in their joints, and intrusive fatigue. This impacts daily living activities and emotional well-being. People with inflammatory arthritis would value support to manage symptoms across the course of their disease. They would like PC healthcare professionals (HCPs) to understand their conditions better, so they can live well to the end of their lives.

Aims:

The investigators will explore the potential role of Palliative and Supportive Care (PSC) for people with inflammatory arthritis. The investigators will describe any unmet patient need. The investigators will develop clinical and research recommendations to help people with inflammatory arthritis live well over the course of their disease.

Plan:

The investigators research will be conducted in three studies:

Study 1: The investigators will conduct 1:1 online interviews with people with inflammatory arthritis to understand how PSC is perceived by them, and what their views are on how PSC may support them to live well.

Study 2: The investigators will send an online survey to Rheumatologists, Primary Care, Community and PC HCPs, to understand:

• if and how they work together currently;
• their views on the role of PSC supporting people with inflammatory arthritis to live well.

Study 3: The investigators will conduct online focus groups with volunteers from Studies 1 and 2, representatives from relevant national charities/organisations, and people who commission health services. Together the group will discuss the research findings and agree:

• what the gap in patient care is;
• recommendations for future clinical practice and research;
• the key areas of importance for patients which should be measured in future work

Study Overview

• Status: Recruiting
• Conditions: Inflammatory Arthritis; Palliative Care
• Intervention / Treatment: Other: NONE - observational study

• Study Type: Observational
• Enrollment (Estimated): 120

Contacts and Locations

• Study Contact: Name: Dr Sharon Grieve Research Development and Delivery Lead, DPhil; Phone Number: 00 44 1225 722988; Email: sharon.grieve@dorothyhouse-hospice.org.uk

Study Locations

• United Kingdom
  • Wiltshire
    • Bath, Wiltshire, United Kingdom, BA15 2LE
      • Recruiting
      • Dorothy House Hospice
      • Contact: Sharon Grieve, DPhil; Phone Number: 00 44 1225 722 988; Email: sharon.grieve@dorothyhouse-hospice.org.uk

Participation Criteria

Eligibility Criteria

• Ages Eligible for Study: Adult; Older Adult
• Accepts Healthy Volunteers: No

• Sampling Method: Non-Probability Sample

Study Population

Adults with inflammatory arthritis

Description

Inclusion Criteria:

• Adults (> 18 years) with a diagnosis of arthritis (Rheumatoid, Psoriatic or Juvenile Idiopathic) or Axial Spondyloarthritis
• able to understand and communicate in verbal and written English (or via an interpreter nominated by the participant or provided via an agency by the research team)
• in receipt, or not in receipt of Palliative Care services
• access to Microsoft Teams or a telephone
• consent to sharing preferred contact details

Exclusion Criteria:

• Cognitive impairment that impedes communication
• non-English speaker (should an interpreter not be available).

Study Plan

How is the study designed?

Number of groups / cohorts

1

Cohorts and Interventions

Group / Cohort	Intervention / Treatment
Inflammatory arthritis	Other: NONE - observational study; N/A as observational study

What is the study measuring?

Primary Outcome Measures

Outcome Measure	Measure Description	Time Frame
Primary outcomes	The primary outcomes for this research will be: A description of the nature and scope of unmet patient need,; Clinical and research recommendations, informed by expert opinion and the 'six pillars' framework of the British Society of Lifestyle Medicine, which describe the potential role of PSC for people with inflammatory arthritis throughout the disease course.; Patient identified areas of importance which should be measured in future work.	through to study completion, an average of one year

Collaborators and Investigators

• Sponsor: Dorothy House Hospice
• Collaborators: University Hospitals Bristol and Weston NHS Foundation Trust; University of the West of England; Royal United Hospitals Bath NHS Foundation Trust

Study record dates

Study Major Dates

• Study Start (Actual): February 19, 2026
• Primary Completion (Estimated): January 1, 2027
• Study Completion (Estimated): April 1, 2027

Study Registration Dates

• First Submitted: January 20, 2026
• First Submitted That Met QC Criteria: March 24, 2026
• First Posted (Actual): March 25, 2026

Study Record Updates

• Last Update Posted (Actual): March 25, 2026
• Last Update Submitted That Met QC Criteria: March 24, 2026
• Last Verified: January 1, 2026

More Information

Terms related to this study

• Keywords: Palliative Care; Inflammatory arthritis
• Additional Relevant MeSH Terms: Musculoskeletal Diseases; Joint Diseases; Arthritis
• Other Study ID Numbers: 348144; 23281 (Other Grant/Funding Number: Arthritis UK)

Plan for Individual participant data (IPD)

• Plan to Share Individual Participant Data (IPD)?: NO

Drug and device information, study documents

• Studies a U.S. FDA-regulated drug product: No
• Studies a U.S. FDA-regulated device product: No