信息可视化以加强与 HIV 相关的交流 (Info Viz: HIV)
信息可视化以促进 HIV 护理中的临床医患沟通(信息可视化:HIV)
HIV 不成比例地影响拉丁美洲人,他们比白人/大多数人感染更多、疾病进展更快、更多 HIV 相关死亡以及诊断和治疗更慢。 这是美国 (US) 和发展中国家(例如多米尼加共和国 (DR))所关注的问题。 当艾滋病毒感染者的健康素养较低并且难以理解他们管理健康所需的信息时,拉丁美洲人所经历的与艾滋病毒相关的健康差异会变得更加严重。
PI 开发了一组图像来帮助临床医生向拉丁裔艾滋病病毒感染者 (PLWH) 提供信息。 这些图像已被放入移动健康应用程序中,因此临床医生可以在门诊访问期间轻松访问它们。 PI 在 DR 和纽约市对她进行了 PLWH 测试。 因此,这项研究的下一步是确保这些图像对美国 (US) 的拉美裔人具有相关性和有用性,并进一步评估这些图像是否以及在多大程度上可以改善美国和美国 PLWH 的健康结果博士。 因此,我们将调整图像以适应墨西哥血统/后裔的拉丁裔,然后测试它们以确定这些图像是否有助于临床医生通过在美国和 DR 的临床站点进行研究来向患者提供信息。
研究概览
研究类型
注册 (实际的)
阶段
- 不适用
联系人和位置
参与标准
资格标准
适合学习的年龄
接受健康志愿者
描述
纳入标准:
- 参与者必须自我认定为拉丁裔、讲英语或西班牙语、在过去一年的任何时候感染 HIV 并检测到病毒载量(>200 拷贝/mL)或有依从风险的迹象,并计划接受明年在研究中心的护理。
排除标准:
- 不符合纳入标准或不具备理解研究或提供知情同意的心智能力。
学习计划
研究是如何设计的?
设计细节
- 主要用途:卫生服务研究
- 分配:随机化
- 介入模型:并行分配
- 屏蔽:单身的
武器和干预
参与者组/臂 |
干预/治疗 |
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实验性的:治疗
治疗组在进行临床/研究访问时将接受信息图表干预。
在访问提供者期间,提供者在使用信息图表的同时提供健康教育。
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在干预期间,医疗保健提供者使用包含相关信息图表的双语数据库的移动应用程序提供与 HIV 相关的健康教育。
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无干预:控制
对照组接受标准健康教育。
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研究衡量的是什么?
主要结果指标
结果测量 |
措施说明 |
大体时间 |
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随着时间的推移,CD4的变化
大体时间:基线,3个月,6个月,9个月
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基线访问后,分化4(CD4)计数的变化4(CD4)计数以3个月的间隔测量
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基线,3个月,6个月,9个月
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次要结果测量
结果测量 |
措施说明 |
大体时间 |
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SEMCD 量表分数
大体时间:基线、3个月、6个月、9个月
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管理慢性病的自我效能 (SEMCD) 量表是一个 6# 项目问卷,用于衡量一个人使用自我管理技术管理疲劳、疼痛、情绪困扰和其他症状的能力的信心。 每个项目的得分从表示“完全没有信心”的最小值 1 到表示“完全有信心”的最高分 10 分。 最终分数计算为 6 个问题的平均值,范围从 1(最低)到 10(最高),其中较高的分数表示较高的自我效能感(较好的结果)。 |
基线、3个月、6个月、9个月
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随着时间的推移,病毒负荷变化
大体时间:基线,3个月,6个月,9个月
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基线后以3个月的间隔测量的病毒负荷计数的变化
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基线,3个月,6个月,9个月
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与HIV相关的知识评估
大体时间:基线,3个月,6个月,9个月
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14个与HIV相关知识有关的问题是根据干预措施中包含的信息制定的。
参与者将为每个正确答案获得一个分,然后将求和每个问题的分数获得最终分数。
因此,最低分数为0,最高分数将为14,其中得分接近14,表明患者具有更多与HIV相关的知识
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基线,3个月,6个月,9个月
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对提供商量表评分的满意度
大体时间:基线,3个月,6个月,9个月
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对提供商的满意度的满意度的总体满意度对提供商和诊所量表的总体满意度,由Dang等人,2016年发表。 我们根据他们对研究的适当性提出了从这个量表中的一些问题。 提出的问题和可能的分数范围如下。 问题1:1-7问题2:1-10问题3:1-7问题4:1-5 然后,通过在四个问题中的每个问题上添加参与者响应来计算总分数。 从该量表提出的问题的总分数范围为4-29,得分较高,表明对HIV提供者的满意度更高。 |
基线,3个月,6个月,9个月
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简化的药物依从性问卷(SMAQ)
大体时间:基线,3个月,6个月,9个月
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我们测量了使用经过验证的简化药物依从性问卷(SMAQ)(Knobel 2002)的依从性抗逆转录病毒疗法的依从性(Knobel 2002)。 这是一项衡量药物依从性的6项问卷。 在此规模上没有最低或最高分数。 参与者根据对这6个问题的回答认为“遵守”(更好的结果)或“不遵守”(更糟的结果)。 如果他们对问题1、2、3或5回答“是”,无论他们在其他问题上的答案如何。 当参与者表明在过去一周(回答问题4)或过去三个月中总非药物的两天以上(问题6)中,他们也被认为是“非依从者”(回答问题4)。 |
基线,3个月,6个月,9个月
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健康状况平均得分
大体时间:基线,3个月,6个月,9个月
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健康状况将在健康状况评估量表上进行评估,参与者在0-100的范围内对其当前的健康状况进行排名,其中0 =死亡或可能的健康状况,而100 =完美或最佳的健康状况(没有HIV感染)。
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基线,3个月,6个月,9个月
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对诊所的满意度
大体时间:基线,3-,6-和9个月
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通过从Dang等,2016年发布的提供商和诊所量表的总体满意度中选择的各种问题来衡量对诊所的满意度。 为了评估对诊所的满意度,我们根据他们对研究的适当性提出了从该规模的一些问题。 包括的问题和可能的分数范围如下。 问题7:1-7点可能的问题8:1-7点可能的问题9:1-5点可能 然后,通过在这三个问题中的每个问题上添加参与者的响应来计算总分数。 从该量表提出的问题的总分数范围为3-19,得分较高,表明对诊所的满意度更高。 |
基线,3-,6-和9个月
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其他结果措施
结果测量 |
措施说明 |
大体时间 |
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健康素养分数:健康素养西班牙语和英语的简短评估 (SAHL S&E)
大体时间:仅基线访问
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健康素养将使用健康素养的简短评估-西班牙语进行评估。
分数范围为 0 - 18,高于 15 的分数表明参与者可能具有足够的健康素养。
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仅基线访问
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健康素养评分:最新生命体征 (NVS)
大体时间:仅基线访问
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健康素养的第二个衡量标准,最新生命体征 (NVS) 也将被执行。
该量表的分数范围为 0-6,其中 0-1 分表示识字能力有限的可能性很高,2-3 分表示识字能力有限的可能性高,而 4-6 分几乎总是表示识字能力足够。
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仅基线访问
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墨西哥裔美国人的简短适应评级量表
大体时间:基线只访问
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墨西哥裔美国人II(ARMA-II)的简短适应评级量表是一个12个项目量表,可以用ARSMA-II的AOS(面向盎格鲁量表)的6个项目和MOS(墨西哥方向量表)的6个项目来衡量适应性(Bauman 2005)。 通过李克特类型的问题收集回答,在每个项目上,分数从1(完全不是)到5(几乎总是/频繁)的响应问题。 ARMA-II已用于墨西哥裔美国人以及其他拉丁裔亚组,包括多米尼加人。 得分是通过求和六个项目子量表的每个分数,然后除以12来获得平均适应分数来计算得分。 因此,可能的得分范围为1-5,得分较高,表明更大的适应性。 注意:该量表仅针对未出生于数据收集数据的参与者。 |
基线只访问
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合作者和调查者
调查人员
- 首席研究员:Samantha Stonbraker, PhD, MPH, RN、University of Colorado College of Nursing
出版物和有用的链接
一般刊物
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