中国慢性肾脏病护理基于电子健康的自我管理干预

实验性的：基于医疗仪表板的自我管理干预

干预组中的慢性肾病患者将接受常规护理以及基于“医疗仪表板”的定制自我管理干预。

行为的：基于医疗仪表板的自我管理干预

在干预开始之前，慢性肾病患者和护理人员将接受有关使用 Medical Dashboard 的面对面培训课程。 为避免污染，只有干预组的参与者才能通过受密码保护的安全注册流程访问 Medical Dashboard。

无干预：日常护理服务

对照组中的慢性肾病患者将接受常规护理，包括根据症状和疾病严重程度进行个性化住院和门诊治疗，如肾脏病改善全球成果 (KDIGO) 中所述。

Change of chronic kidney disease self-management behavior using Chronic Kidney Disease Self-Management (CKD-SM) instrument

The Chronic Kidney Disease Self-Management (CKD-SM) instrument with 29 items uses a four-point likert scale ranging from 1 (never) to 4 (always) to measure subjects' self-management behavior. Possible scores range from 29 to 116 points, with higher scores indicating better self-management behavior

使用肾病生活质量 36 项简短调查 (KDQOL-36) 从基线到随机分组后 9 个月的慢性肾病生活质量变化

肾脏疾病生活质量 36 项简短调查 (KDQOL-36) 用于评估与健康相关的生活质量。 它有 36 个项目。 可能的分数范围从 0 到 100 分，分数越高表示健康相关生活质量越好

Change of number of complications patients

Change of number of complications patients

Change of chronic kidney disease self-efficacy using Chronic Kidney Disease Self-efficacy (CKD-SE) scale

The Chronic Kidney Disease Self-efficacy (CKD-SE) scale is a 25-item self-administered scale that measures subjects' confidence. Responses range from no confidence (0) to the highest degree of confidence (10). Possible scores range from 0 to 250 points, with higher scores indicating greater levels of confidence

Change of chronic kidney disease illness perception using Brief Illness Perception Questionnaire (BIPQ)

The Brief Illness Perception Questionnaire (BIPQ) is a nine-item scale designed to rapidly assess the cognitive and emotional representations of illness. This scale consists of eight items related to illness perception. In addition, patients are asked to identify the three most important factors that they believe have caused their illness. All of the items except the causal question are rated using a 0 to 10 response scale. Higher scores indicate stronger perceptions along that dimension. The scores of items 3, 4, and 7 are calculated and expressed as reverse scores in this scale. Possible scores range from 0 to 80 points, with higher scores indicating a more threatening view of the illness

Change of chronic kidney disease anxiety and depression status using the Hospital Anxiety and Depression Scale (HADS)

Hospital Anxiety and Depression Scale (HADS) is used to determine the levels of anxiety and depression that a person is experiencing. It is a fourteen item scale that generates ordinal data. Seven items measure symptoms of anxiety and seven items measure symptoms of depression . Each item is coded from 0 to 3. Possible scores range from 0 to 21 points for sub-scale on anxiety or depression, with higher scores indicating greater levels of burden of anxiety or depression