减轻社区居民痴呆症和口咽吞咽困难患者护理伙伴的负担试点随机对照试验

实验性的：增强控制 + WeCareToFeed 吞咽困难

参与者接受医疗团队的常规护理，并获得言语病理学后续护理的联系信息。 参与者还将获得 WeCareToFeedDysphagia 网络工具的访问权限，并收到使用该工具的短信提醒。

行为的：WeCareToFeed 吞咽困难网络工具

该网络工具使用书面和视频内容、护理伙伴感言、常见问题和资源链接来提供准确的信息（例如吞咽困难饮食）、设定切合实际的期望、确定/支持喂养目标（生活质量考虑因素）、承认/支持护理伙伴的感受，并提供口咽吞咽困难 (OD) 管理的能力/技能。

无干预：增强控制

参与者接受医疗团队的常规护理，并获得言语病理学后续护理的联系信息。

Mean Care Partner Burden at 3 Months Post Hospital Discharge

Burden will be measured using the Zarit Burden Scale (ZBI-22), a validated measure that assesses 22 statements related to personal strain accompanying caring for another person, which is rated with 5 frequency-related response categories, scored 0 (never) to 4 (nearly always). The total score ranges between 0 and 88 (higher scores indicating higher burden). A score less than 21 has been suggested to indicate care-partner burden. Outcome measures will be captured through a link to an online questionnaire which will be sent to the care partner's smart phone/device via text message.

同意试点研究的百分比

同意百分比将按照护理合作伙伴同意超过符合资格并接触过的人数来计算。 成功将被定义为大于或等于 40% 的所接触的护理合作伙伴自愿参加该研究。

出院后 1 个月护理合作伙伴流失百分比

流失百分比将计算为未完成 1 个月评估的同意参与者总数除以同意参与者总数。 成功将被定义为出院后 1 个月的人员流失率小于或等于 30%。

出院后 3 个月的护理合作伙伴流失百分比

流失百分比将计算为未完成 3 个月评估的同意参与者总数与同意参与者总数。 成功将被定义为出院后 3 个月时的流失率小于或等于 30%。

Mean Care Partner Burden at 1 Month Post Hospital Discharge

Burden will be measured using the Zarit Burden Scale (ZBI-22), a validated measure that assesses 22 statements related to personal strain accompanying caring for another person, which is rated with 5 frequency-related response categories, scored 0 (never) to 4 (nearly always). The total score ranges between 0 and 88 (higher scores indicating higher burden). A score less than 21 has been suggested to indicate care-partner burden. Outcome measures will be captured through a link to an online questionnaire which will be sent to the care partner's smart phone/device via text message.

Mean Care Partner Quality of Life at 1 Month Post Hospital Discharge

Care Partner Quality of Life (CarerQol) will be measured using the validated Care-Related Qol-7D. The Care-Related Qol-7D measures well-being (CarerQol-VAS or visual analog scale) and subjective burden. The CarerQol-VAS measures happiness, using endpoints between 'completely unhappy' (0) and 'completely happy' (10). Subjective burden is measured on 7 dimensions (fulfillment, relational problems, mental health, daily activities problems, physical health, and support), and rated as (i) no, (ii) some, and (iii) a lot. The weighted score ranges from 0-100 (worst to best caregiving situation). Higher scores indicate higher quality of life. Outcome measures will be captured through a link to an online questionnaire which will be sent to the care partner's smart phone/device via text message.

Mean Care Partner Quality of Life at 3 Months Post Hospital Discharge

Care Partner Quality of Life (CarerQol) will be measured using the validated Care-Related Qol-7D. The Care-Related Qol-7D measures well-being (CarerQol-VAS or visual analog scale) and subjective burden. The CarerQol-VAS measures happiness, using endpoints between 'completely unhappy' (0) and 'completely happy' (10). Subjective burden is measured on 7 dimensions (fulfillment, relational problems, mental health, daily activities problems, physical health, and support), and rated as (i) no, (ii) some, and (iii) a lot. The weighted score ranges from 0-100 (worst to best caregiving situation). Higher scores indicate higher quality of life. Outcome measures will be captured through a link to an online questionnaire which will be sent to the care partner's smart phone/device via text message.

Percent Engagement With the WeCareToFeedDysphagia Tool

Engagement with WeCareToFeedDysphagia will be defined as percent of care partners viewing 2 or more pages within the tool. Success will be defined as greater than or equal to 45% of care partners engaging with the tool. Data will be captured via Google Analytics data to assess program usage in the domains of time/date of login, duration of page views, and document downloaded Engagement with the tool will be reported for the intervention arm only.