MyPaTH Story Booth

July 21, 2025 updated by: Kathleen McTigue, University of Pittsburgh
The MyPaTH Story Booth will use an (audio) "document" approach to elicit in depth experiential knowledge or perspectives from patients and caregivers by recording their personal stories.

Study Overview

Status

Recruiting

Conditions

Detailed Description

Modeled after the Storycorps project and healthtalk.org, MyPaTH Story Booth will use an (audio) "document" approach to elicit in depth experiential knowledge or perspectives from patients and caregivers by recording their personal stories. Narratives provide a powerful framework for understanding patient problems and the larger process of illness, coping, and seeking health care. Narratives can provide meaning, context, and perspective for patients' situations and insight into failures in health care delivery, particularly for marginalized patients. MyPaTH Story Booth will provide simple instructions for how participants can work with an interview partner (e.g., a family member or friend) to record their story. MyPath Story Booth may be launched sequentially at each PaTH site to establish an initial archive of patient and caregiver narratives. Individuals who record narratives will be asked to provide limited "tags" to populate a searchable database (e.g., their age, sex, interview topic). The audio booth and procedures will also be made available to PaTH affiliated researchers who wish to augment the narrative database with narratives of patient partners from specific study populations.

Study Type

Observational

Enrollment (Estimated)

2000

Contacts and Locations

This section provides the contact details for those conducting the study, and information on where this study is being conducted.

Study Contact

  • Name: Kathleen M McTigue, MD
  • Phone Number: 4126922940
  • Email: kmm34@pitt.edu

Study Contact Backup

  • Name: Emily L Klawsson, MS
  • Phone Number: 412-586-9796
  • Email: EKK15@pitt.edu

Study Locations

  • United States
    • Pennsylvania
      • Pittsburgh, Pennsylvania, United States, 15213
        • Recruiting
        • University of Pittsburgh
        • Principal Investigator:
          • Kathleen M McTigue, MD, MS, MPH
        • Contact:
          • Emily L Klawson, MS
          • Phone Number: 412-586-9796
          • Email: EKK15@pitt.edu

Participation Criteria

Researchers look for people who fit a certain description, called eligibility criteria. Some examples of these criteria are a person's general health condition or prior treatments.

Eligibility Criteria

Ages Eligible for Study

18 years to 99 years (Adult, Older Adult)

Accepts Healthy Volunteers

N/A

Sampling Method

Non-Probability Sample

Study Population

Anyone over the age of 18 who can provide informed consent

Description

Inclusion Criteria:

  • Over the age of 18

Exclusion Criteria:

  • Researchers will exclude individuals who are not 18 years of age or older and/or do not provide informed consent

Study Plan

This section provides details of the study plan, including how the study is designed and what the study is measuring.

How is the study designed?

Design Details

What is the study measuring?

Primary Outcome Measures

Outcome Measure
Measure Description
Time Frame
Number of stories collected
Time Frame: September 2018
The goal of the project is to generate a searchable archive of patient and caregiver narratives
September 2018

Secondary Outcome Measures

Outcome Measure
Measure Description
Time Frame
Comparison of approaches to categorize story contents
Time Frame: Cross-sectional analysis of the first 100 stories, September 2018
Researchers will compare how story contents are categorized using (a) qualitative research coding with survey data collected from (b) participants and (c) study staff
Cross-sectional analysis of the first 100 stories, September 2018
Number of researchers who access the online story archive
Time Frame: Annually at 2 and 3 years of follow-up the number of researchers who accessed stories will be reviewed.
To support health researchers' use of patient and caregiver narratives in formulating research questions
Annually at 2 and 3 years of follow-up the number of researchers who accessed stories will be reviewed.
Number of research teams who engage stakeholders through the project
Time Frame: Annually at 2 and 3 years of follow-up
The project aims to facilitate connections between individuals who have real-world insights and experience with health care or health care delivery and health researchers.
Annually at 2 and 3 years of follow-up

Collaborators and Investigators

This is where you will find people and organizations involved with this study.

Sponsor

University of Pittsburgh

Investigators

  • Principal Investigator: Kathleen M McTigue, MD, University of Pittsburgh

Publications and helpful links

The person responsible for entering information about the study voluntarily provides these publications. These may be about anything related to the study.

General Publications

Study record dates

These dates track the progress of study record and summary results submissions to ClinicalTrials.gov. Study records and reported results are reviewed by the National Library of Medicine (NLM) to make sure they meet specific quality control standards before being posted on the public website.

Study Major Dates

Study Start

March 1, 2016

Primary Completion (Estimated)

June 1, 2030

Study Completion (Estimated)

June 1, 2030

Study Registration Dates

First Submitted

August 23, 2017

First Submitted That Met QC Criteria

April 10, 2018

First Posted (Actual)

April 11, 2018

Study Record Updates

Last Update Posted (Actual)

July 24, 2025

Last Update Submitted That Met QC Criteria

July 21, 2025

Last Verified

July 1, 2025

More Information

Terms related to this study

Keywords

Other Study ID Numbers

  • STUDY20110315

Plan for Individual participant data (IPD)

Plan to Share Individual Participant Data (IPD)?

NO

This information was retrieved directly from the website clinicaltrials.gov without any changes. If you have any requests to change, remove or update your study details, please contact register@clinicaltrials.gov. As soon as a change is implemented on clinicaltrials.gov, this will be updated automatically on our website as well.

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