Reliability and Validity of the Turkish Version of the Multiple Sclerosis Knowledge Questionnaire

Reliability and Validity of the Turkish Version of the Multiple Sclerosis Knowledge Questionnaire

Sponsors

Lead sponsor: Ege University

Source Ege University
Brief Summary

Multiple Sclerosis Knowledge Questionnaire (MSKQ) is a 25-item self administered questionnaire assessing a patient's level of knowledge regarding multiple sclerosis (MS). Turkish translation of the questionnaire was prepared and participants in the annual patient education seminar in the investigators' university hospital were asked to answer these questions before and after the seminar.Their results were analysed to assess their level of knowledge about their disease.

Detailed Description

Multiple sclerosis knowledge questionnaire was developed in Italy (1) and was reported to be useful in measuring patients' level of knowledge about their disease. The English version of the questionnaire was translated into Turkish by three physicians than back translated into English by two separate linguists. Initially 5 MS patients were asked to answer this first version of the questionnaire and report any difficulties in understanding the items. Their feedback was used to give the questionnaire its final shape. For the validation stage, patients that were diagnosed as having MS and who attended the annual MS patient education seminar were enrolled into the study. They answered the questions twice, before and after the seminar. Their answers were analysed to measure their level of knowledge about their disease.

Overall Status Completed
Start Date May 2016
Completion Date May 2016
Primary Completion Date May 2016
Study Type Observational
Primary Outcome
Measure Time Frame
reliability of the questionnaire 1 day
Secondary Outcome
Measure Time Frame
Number of correct answers 1 day
Enrollment 58
Condition
Intervention

Intervention type: Other

Intervention name: Multiple Sclerosis Knowledge Questionnaire

Description: A 25-item self-administered questionnaire

Arm group label: Multiple Sclerosis patients

Eligibility

Sampling method: Non-Probability Sample

Criteria:

Inclusion Criteria:

- Diagnosed as having Multiple Sclerosis

- Attends the annual patient education seminar at the investigators' university hospital

- Older than 18 years of age

- Can read and write

Exclusion Criteria:

- Does not accept to answer the questionnaire

- Unable to answer the questions due to a cognitive impairment

Gender: All

Minimum age: 18 Years

Maximum age: N/A

Healthy volunteers: No

Overall Official
Verification Date

April 2019

Responsible Party

Responsible party type: Principal Investigator

Investigator affiliation: Ege University

Investigator full name: Ece Cinar

Investigator title: Principal investigator

Keywords
Has Expanded Access No
Condition Browse
Arm Group

Arm group label: Multiple Sclerosis patients

Description: Patients that attended an annual patient education seminar at the investigators' university hospital were asked to fill out the Turkish version of the Multiple Sclerosis Knowledge Questionnaire

Patient Data No
Study Design Info

Observational model: Case-Only

Time perspective: Cross-Sectional

Source: ClinicalTrials.gov