Eisenmenger Syndrome in the Nordic Countries

The following variables are obtained from national registries for each individual fulfilling the inclusion criteria:

• Personal data: Gender, day of birth, vital status (dead/alive), date of death, cause of death, all cause hospitalization days
• Specific cardiac malformation diagnosis
• Heart-lung transplantation.
• Social data: Highest educational level, marital status, employment status (Denmark only)

Primary endpoints

• Incidence and prevalence of Eisenmenger Syndrome
• All-cause mortality
• All-cause morbidity (hospitalization for any cause)
• Heart-lung transplantation
• Advanced treatment
• Mortality with AT
• Highest educational level
• Personal income
• Marital status
• Job status