Piloting GETCare: A Remote Goal-based Education and Skills Training Program for Caregivers Poststroke (GETCare)

실험적: GETCare Intervention

행동: GETCare Intervention

This 5-week intervention was administered remotely and individually to caregivers utilizing phone, email, and a secure online platform. The GETCare program was mostly self-led and included five weekly module education topics: basics of stroke, caregiver skills, caregiver changes, meaningful participation, and community resources. Each module incorporated (1) individualized education, (2) goal setting, (3) skills training, and (4) community resource recommendations. The program was led by a licensed occupational therapist who is a certified stroke rehabilitation specialist. The occupational therapist conducted weekly check-ins via email or phone focused on answering questions, tracking goal progress, and assisting in problem solving.

Perceived Stress Scale

Scores range 0-40, higher score indicates higher perceived stress

Perceived Stress Scale

Scores range 0-40, higher score indicates higher perceived stress

Revised Scale for Caregiving Self-efficacy

Scores range 0-100, higher score indicates higher self-efficacy

Revised Scale for Caregiving Self-efficacy

Scores range 0-100, higher score indicates higher self-efficacy

Modified Caregiver Strain Index

Scores range 0-26, higher score indicates higher caregiver strain

Modified Caregiver Strain Index

Scores range 0-26, higher score indicates higher caregiver strain

Patient-Reported Outcomes Measurement Information System-43 Profile v2.1

43 items across seven domains: physical function, anxiety, fatigue, depression, sleep disturbance, ability to participate in social roles and activities, and pain interference;

Scores range 6-30 for each subscale. For subscales of anxiety, depression, fatigue, and sleep disturbance, higher scores indicate worse symptoms. For subscale of social participation, higher scores indicate improved symptoms. Subscales of physical function and pain interference were not included in analyses, since they were not expected to change through this intervention.

Patient-Reported Outcomes Measurement Information System-43 Profile v2.1

43 items across seven domains: physical function, anxiety, fatigue, depression, sleep disturbance, ability to participate in social roles and activities, and pain interference;

Scores range 6-30 for each subscale. For subscales of anxiety, depression, fatigue, and sleep disturbance, higher scores indicate worse symptoms. For subscale of social participation, higher scores indicate improved symptoms. Subscales of physical function and pain interference were not included in analyses, since they were not expected to change through this intervention.

Neuro-Quality of Life (Neuro-QOL) Positive Affect and Well-being v1.0

9 items; Scores range 9-45, higher score indicates higher positive affect and well-being

Neuro-Quality of Life (Neuro-QOL) Positive Affect and Well-being

9 items; Scores range 9-45, higher score indicates higher positive affect and well-being

Knowledge assessment

Evaluate knowledge acquisition of weekly education topics; Scores range 0-35, higher score indicates higher knowledge

Knowledge assessment

Evaluate knowledge acquisition of weekly education topics; Scores range 0-35, higher score indicates higher knowledge

Canadian Occupational Performance Measure

Assesses importance of goal, current performance of goal, and satisfaction with current performance of goal; Scores range 0-10, higher score indicates higher importance, performance, and satisfaction with performance

Canadian Occupational Performance Measure

Assesses importance of goal, current performance of goal, and satisfaction with current performance of goal; Scores range 0-10, higher score indicates higher importance, performance, and satisfaction with performance

Feedback survey

Included a variety of questions (no/yes, Likert scales, and open-ended questions) regarding feedback of the intervention. For example, "Please indicate how helpful the additional handouts and videos were for you" (0 = not at all helpful, 1 = a little helpful, 2 = somewhat helpful, 3 = quite helpful, 4 = extremely helpful).