- ICH GCP
- US Clinical Trials Registry
- Clinical Trial NCT02931669
Meaning, Value and Purpose of Augmentative and Alternative Communication (AAC) (AAC)
What Does AAC Mean to You?: An Exploration of the Meaning and Value of AAC to Users and Stakeholders.(AAC: Augmentative and Alternative Communication)
Study Overview
Status
Conditions
Intervention / Treatment
Detailed Description
Research indicates that AAC (Augmentative and Alternative Communication) has the potential to change the lives of many people with complex communication needs, but is often under-utilised and/or abandoned. Therefore, the research aims to investigate the meaning, value, and purpose of AAC for different stakeholder groups, as well as to what extent these are shared or unique? This information will support Speech and Language Therapists to understand the meaning, value, and purpose of AAC for key stakeholders, and therefore adapt intervention to meet these needs. It can also support families considering AAC in decision making. Participants can also benefit through reflecting on what AAC means to them. It is also an important part of evidence based practice to listen to the voice of the client and family.
A qualitative descriptive study is proposed, utilising thematic analysis. The study will be implemented using a survey which will be presented in different formats (paper/online/face-to-face) depending on the stakeholder. It will investigate the perceptions of people who use AAC, family members, teaching staff and health professionals who work with AAC users. Family members, adult AAC users, teachers and health professionals will receive a link to an online survey, distributed by professional groups and charities. Parents of children attending local special schools will be given paper copies of the survey. Face to face interviews with up to 5 children who use AAC will also be carried out at local special schools, following consent from the parents. Interviews will be conducted by a trained Speech and Language Therapist using symbols to support communication via a Talking Mats style approach,and children will be accompanied by an adult. It is estimated that interviews will last between 20 and 30 minutes.
Participants filling in the paper or online survey are encouraged to write as much or as little as they like; it is estimated that it will take around 10 minutes to complete, although others may spend longer.
Study Type
Enrollment (Actual)
Contacts and Locations
Study Locations
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Dublin, Ireland, dublin 2
- Trinity College Dublin
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Participation Criteria
Eligibility Criteria
Ages Eligible for Study
Accepts Healthy Volunteers
Genders Eligible for Study
Sampling Method
Study Population
Description
Inclusion Criteria:
- Those who use AAC (both children and adults), their family members and carers, and health professionals and teaching staff who work with AAC users.
Children who use AAC will be aged between 4 and 18 years of age. There is no age limit on other participants
Exclusion Criteria:
- Those who do not meet the inclusion criteria. No other exclusion criteria have been applied.
Study Plan
How is the study designed?
Design Details
Cohorts and Interventions
Group / Cohort |
Intervention / Treatment |
---|---|
Adult AAC users
Will be accessed via online forums to fill in online anonymous survey link
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Children who use AAC
Parents at local special schools will be given the opportunity for their child to participate in a face to face symbol based interview.
They will give written consent and children's assent will also be obtained.
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Family members
The paper version of the survey will be distributed among parents at local special schools for them to fill in at home with their families.
Online groups of families will also be sent the online survey link.
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Teachers
Teachers at local special schools will be given the paper survey forms.
Online groups of teachers will receive the online link.
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Health Professionals
Online groups of health professionals will receive the online link
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What is the study measuring?
Primary Outcome Measures
Outcome Measure |
Time Frame |
---|---|
Thematic Analysis of Survey Data
Time Frame: 08/2017
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08/2017
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Collaborators and Investigators
Collaborators
Study record dates
Study Major Dates
Study Start
Primary Completion (ACTUAL)
Study Completion (ACTUAL)
Study Registration Dates
First Submitted
First Submitted That Met QC Criteria
First Posted (ESTIMATE)
Study Record Updates
Last Update Posted (ACTUAL)
Last Update Submitted That Met QC Criteria
Last Verified
More Information
Terms related to this study
Other Study ID Numbers
- U Dublin TC
- 200453 (OTHER: NHS - IRAS number)
Plan for Individual participant data (IPD)
Plan to Share Individual Participant Data (IPD)?
This information was retrieved directly from the website clinicaltrials.gov without any changes. If you have any requests to change, remove or update your study details, please contact register@clinicaltrials.gov. As soon as a change is implemented on clinicaltrials.gov, this will be updated automatically on our website as well.
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